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Bible
Regular Member


Date Joined Jul 2007
Total Posts : 188
   Posted 12/6/2007 5:02 PM (GMT -7)   
i have had crohns for 21 yrs.  Since I was 15 yrs. old.  I am a teacher and have awesome benefits, including disability short and long term.  I am about to vent.  I am so tired of leaving my classroom in the hands of my assistant for me to go to bathroom.  I go avg. 6 times a day just while kids are in class.  I feel so embarressed that my assistant and the other lady in the room knows how many times that I go, what im doing, how long it takes me, etc.  To me it has become humiliating!!  If it were not for my assistant, I would be leaving students with autism by themselves to go sh..  I can't see doing this much longer when I have excellent disability coverage to take over because I am unable to perform my duties.  Any suggestions?  It seems like my doctor just thinks that I want out of work.  He does not see me as disable and I don't either-  However, I am going to have to change jobs just to get one so that I will be comfortable going to the restroom.  Right now I fill like I am in a prison cell and these people don't get it as to why I leave to go so many times.  Cmon I have part of small intestines gone!!  Then again, I hate to change jobs due to not being able to perform my duties and lose all my disability benefits that I have through my job.

Smrtgrl96x
Regular Member


Date Joined Nov 2007
Total Posts : 47
   Posted 12/6/2007 5:43 PM (GMT -7)   
First of all, it sounds like you need a new doctor! No doctor should think that you're just being lazy and don't want to work. I was a teacher for a few years in Florida, now I'm doing social work while I'm in graduate school for special education. One of the reasons I decided on Sped was because I won't be locked in a room all day and I can have more freedom to go when I need to go. Talk to your school board. They should have a policy about disabilities and Crohn's is one. I'm sure it is embarassing, but it's a disease that you did nothing wrong to acquire. Are your assistants making snarky comments? If so, maybe you need a new one or two. i know the politics of teaching and it's all easier said than done, but I do wish you the very best of luck!
Claudia

belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 12/6/2007 8:58 PM (GMT -7)   
What about an administrative position within the school system?
Belleenstein:

30+ years living with Crohn's.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 12/6/2007 9:11 PM (GMT -7)   
Hey Bible,

I know where you are coming from because I used to be a corrections officer. I had 2 other staff in my unit and I couldn't go into the bathroom without telling them where I would be. Also, if I was outside of the unit I would need to find a replacement staff to fill my spot while I used the bathroom. Often all 28 of my "residents" would know I was in the bathroom because they were waiting to go to the food hall and couldn't leave until I got out to join the unit. BUT!!! I am so glad I stuck with it and worked through the embarassment. Here is why! I learned that I should not care who knows I am going to the bathroom and how many times I am going. I realized it really really isn't important to me what people think of me. I know I am smart, attractive, fun, and loving lol. I have my husband, my dog, my cat, my career, and my parents. And that, honestly, is all I need. If someone doesnt want to be friends with me because I poop too much, then it is THEIR problem, not mine. It honestly took me YEARS of working there to get to that realization. But, I am so glad I came to it. And if I had left work to find something more crohns convenient I would probably still be embarassed to get sick on a bus, or at a friends house, or at the mall. But I am over that. And without getting to that point I never would have gone to law school and could never stand up and try a case. I have a mock trial on Saturday and when I have to poop I am just going to tell the judge I need a recess. Poop. And resume the trial. Thats how it goes.

Even after I left corrections I went to therapy to help me get more comfortable with this. But again, best decision I have ever made. You are not in a position where you are going to have accidents because there is no one there to take over for you. You have the help and the freedom to leave if you need to. You just have someone that knows that you leave. WHO CARES :) And I made light of it too. I poop kind of quick so sometimes Id just say, oh too much water today. But if you are only going 6 times thats like once an hour. I am sure they are not counting and not noticing "how much" you go. I know people that pee way more than that.

Dont let this disease ruin your career. Find a way to be comfortable enough with yourself that you can do what you need to and not worry what others think. The more you give in to that embarassment the worse it will get. Rather than no longer having embarassment you will find something new to be embarassed about.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 12/6/2007 10:22 PM (GMT -7)   
Bible, I also wanted to add that I do still get concerned that people might think I am being inconsiderate or something. I do tell most people that I may step out often because I have crohns or something like that. So I guess in some situations I care what people think. I don't want them to think I am rude. But, I have no worries that people will think ew, she poops too much lol. If they know I have crohns I dont care what they think of me. But, I dont want someone thinking, "who does she think she is taking 8 breaks a day." I looked over my above post and just didn't want to seem all high and mighty. I am not perfect, I get self conscious at times too, but, I was able to get a lot of my life back and keep my career on track by an adopting an " i really don't care what you think" attitude.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


athensgirl
Regular Member


Date Joined Apr 2007
Total Posts : 254
   Posted 12/7/2007 1:56 AM (GMT -7)   
I work for an insurance company, I'm the secretary of the CEO so it's a very responsible job.  It is not easy to leave my desk several times a day to go to the bathroom, so at the beggining I was really embarassed, because no one knew about my CD.  When I was hospitalised 1 1/2 year ago due to a partial blockage, everybody including the CEO were so concerned because we have been working together for 15 years.  So when I came back to the office I explained to him the situation, and I told him that I would understand if he wanted to have another assistant.  He was so caring and understanding, he told me "I don't care how many times you have to use the bathroom, you are excellent at what you do, and that's why you are in this position, so just let go of your worries".  So now, when we have a meeting and he hears my bowels making funny noises, he says "you want to interrupt and use the bathroom?  We can continue later!".  My point is, that you may be surprised of how understanding people is if you explain the situation.  I know I have to use the bathroom several times a day, but I won't accept that I am disabled because I'm not!!!  My mind works 100% and - this may sound arrogant - I honestly believe that I am the best at what I do.  So why let CD ruine this for me?????  My career and my future are all mine!!!
 
Christina

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted Today 6:24 PM (GMT -7)   
How you doing today Bible? Hope to hear back from you.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


Bible
Regular Member


Date Joined Jul 2007
Total Posts : 188
   Posted Today 7:13 PM (GMT -7)   
I have been taking lortab for three days and have done awesome. I have used the bathroom one time each day. It has been great. Now, I am out of lortab so tomorrow back to the embarressment of running to the bathroom. I don't mean to sound negative, but lortab makes me "normal" What I mean is that most people get constipated well, I just go one to two times a day and I don't have the pain that makes me have to sit down or double over. I also have more energy b/c I haven't used it all going to bathroom and/or stressing in pain.
I appreciate your concerns!!!!!
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