I'm having lots of pain while in remission and am currently seeking a new GI

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Regular Member

Date Joined Nov 2007
Total Posts : 26
   Posted 12/7/2007 1:52 PM (GMT -6)   
I have been diagnosed for 3 years and have been considered in remission for a year.  I still have problems with regular bowel movements; one week its extreme diahrrea and urgency to go, the next week I can't even have a bowel movement from horrible constipation and with that comes bloating.  And, I guess I always assumed that bowel movements would never be regular.  But the pain is still bad, like really bad.  Sometimes I can't make it to class on times.  Unfortunately, there is a problem with my GI and I can't get in to see him about this...but is it something that others experience?  Is there something that I can help to dull the pain?
And to just rant a bit.  Right now, my GI returns my calls only after weeks of me calling him.  He doesn't even call to give me test results.  If I want to schedule an appointment, it takes a couple weeks to just get a hold of him, and I have to schedule about a month or more out.  Sometimes, they are completely full and don't even have the schedule out for the next month.  They ask me to call them back at the beginning of the next month to schedule and then I'm rushing to beat everybody else who is calling to schedule an appointment.  I am in the process of trying to find another GI because while I like the fact that he doesn't want me to constantly be on pills, I dislike the fact that it seems he has to many patients to actually keep up with.  If you know any good GIs anywhere from Tulsa, OK to Little Rock, AR or a site that lists some good doctors, please let me know!  It's very stressful that I can't get my calls returned.

Veteran Member

Date Joined May 2003
Total Posts : 9448
   Posted 12/8/2007 10:31 AM (GMT -6)   
WHAT makes you think you are in remission? WHO says you are in remission? THAT'S CRAZY! You are NOT in remission! Repeat your symptoms to yourself. Do YOU call THAT remission?

[quote] .. while I like the fact that he doesn't want me to constantly be on pills ... [/quote]
THINK about what you just said! Why do you LIKE not treating your ACTIVE DISEASE? You'd rather continue to suffer than take pills every day? You and your gastro BOTH need an attitude adjustment.

Do you understand what is in store for you if you continue to NOT MEDICATE your ACTIVE CROHN'S DISEASE?

I run into similar problems w/my gastro. She's so busy doing scopes and seeing patients for their annual or semi-annual "well visit" a timely appointment for a sick patient is out of the question. So why bother? I see her for my scopes, won't be bothering w/any well visits and get my Crohn's medications from my family doctor. And I'm doing very well this way. (Except for when "I" decided I could eliminate one of my Crohn's medications and get by w/just one of the Crohn's meds).

Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 12/8/2007 8:33:55 AM (GMT-7)

Regular Member

Date Joined Oct 2007
Total Posts : 241
   Posted 12/8/2007 11:47 AM (GMT -6)   
it does sound as though you need a new doc, and it does not sound as though you are in remission. you can have active crohn's in the presence of normal studies. listen to your body.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 12/8/2007 8:34 PM (GMT -6)   
Hi Randaria Seems your having some problems have you tried your GP while your GI is so busy? I know it can seem like we are alone at times when it comes to medical help but hopefully your DR. is a good one.Have you tried low roughage to see if it helps with the pain management? Hopefully you can get to your GI and discuss some of this .lol gail
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