Has anyone else taken the IBDQ? I filled one out after my Remicade treatment this week. The nurse said that the ultimate goal is a 170 or higher- that they consider that remission. My score was 96, which she said was one of the lowest she'd seen. It was kind of a shock, because I've been trying to convince myself that I'm "not that bad", even though I've felt so lousy. After all, I haven't had to have any surgery yet, and I manage to drag myself out the door to work most of the time. (Even though I'm mostly useless when I get there.) I thought I'd gotten past the denial, but apparently not.
I've been chewing on all of this for a couple of days now. On the one hand, I think it's good that I'm honest and clear with myself about what's going on with my body. On the other hand, what difference does it make? I'm doing everything I can to treat the disease, and I have no activities left to cut back on. I don't even do more than the absolute basics around the house- a friend comes in a cleans for me twice a month. The only thing left to cut back on is work, and I just can't do that. I can't afford to go part-time either financially or for the insurance. So all being honest really gets me is more depressed. I think I prefer the rosy glow of denial.
Hm. I've wandered off the original topic a bit. Is anyone else familiar with the IBDQ? What do you think of it- has it helped you gauge where you are with this DD? If you know your score, do you mind sharing?
Thanks for "listening" to me yap. Again.