Results!! Some good news..

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dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 12/8/2007 9:42 AM (GMT -7)   
Hi, I don't have chronic pancreatitis YES!!! I have a duct that's not working properly.

The specialist has called out a rx of Entocort, I've just taken the first 9mg's. He will be seeing me on Tuesday to discuss
my treatment plan thoroughly. He's a little dubious that the entocort maybe too little too late, and surgery may still be
in the plan. Followed up with Entocort for maintenance. I cant have any other meds because of my allergies!!

The other issue to be discussed, is the abnormally high amounts of fat in my stool. Now we know it's not due to pancreatitis,
it's more likely to be short bowel syndrome. I'm curious to know how they are gonna get the nutrients & vitamins into me.
I know my malabsorption is bad, so if they can half way rectify this, I might start to feel more human.

Lastly, biopsies are clear for cancer. Thank goodness.

Thanks for all your love & support, although I still feel pretty ill right now, I'm resting a little easier, knowing I dont have
another lifelong condition.....
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 12/8/2007 9:48 AM (GMT -7)   
woo hoo! great news :D

take good care and hope you feel better real soon!
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
10mgs prednisone (getting there!), 50mgs 6mp, 4000mg pentasa, vicodin for pain & a boat load of other drugs for sleep and anxiety!


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 12/8/2007 9:49 AM (GMT -7)   
I'm so happy for you. It must be a big relief for you. Now you can get down to the business of treating you. Did your doctor say why the duct isn't working properly?

As far as the malabsorption, I know there are a lot of people here taking something for that, is it Questran? As far as medications, does that still rule out the immunosuppressants?
Judy
Crohn's Disease   
 
 
 


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 12/8/2007 10:24 AM (GMT -7)   
Yippie!!! Congrats! So glad you have some answers! I hope the entocort works for you!
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, and feel like I am falling apart sometimes...


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 12/8/2007 11:45 AM (GMT -7)   
Thanks guys, it has been a huge weight lifted of my shoulders.

Judy, I only spoke to the doctors nurse, so I don't know the ins & outs of things. As far as immunosuppressants, the doctor
told me at my first visit, that they would be a no go area. I'm not really sorry about that. I truly don't want to get very sick
again. I will look into Questran, it does ring a bell with me. I think it was one of those things I was given, and then ended
up having surgery, so it got forgot, you know how that goes.

My first dose of entocort, has given me a rapid pulse 130. I spoke to the pharmacist, she told me to keep an eye on it, but
it should subside, also feeling a bit floaty.....
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 12/8/2007 12:12 PM (GMT -7)   
Phew.!!!! Now you can't see me so far away but I'm actually doing a happy dance even though its early Sunday morning here in NZ.
Tess

justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 12/8/2007 3:55 PM (GMT -7)   
I'm glad you received so much positive feedback from that ordeal! :-)

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/8/2007 4:12 PM (GMT -7)   
Whoot !!! on the pancre. Cain't tell you how good it is to hear you are doing better on that. Keep looking after yourself and definitely tell us how you are doing. Best Wishes Vicky .lol gail

broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 12/9/2007 7:21 PM (GMT -7)   
GREAT NEWS! You are soooooooo strong Dunny. That would have scared me too death! Have a Merry Christmas why don't you!!!!!
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 12/9/2007 8:33 PM (GMT -7)   
Broom, thanks. I don't know why you think I'm strong, but right now I'm fluffing my feathers a little, and pushing out my chest.
Gee girl I hope I've been strong and not a whine a*** ((hugs))
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


tinglebell
Veteran Member


Date Joined Apr 2007
Total Posts : 531
   Posted 12/9/2007 8:37 PM (GMT -7)   
Hey Dunny, I think you are my twin. I also have a blockage in my common bile duct (it is dilated) and my GI couldn't get in to inspect it with the ERCP. Said he couldn't find the opening. Probably scarring from the crohn's/meds. I am consulting with another GI that he has recommended here in town, more of a liver specialist, I see him on the 13th. I am not in pain right now or turning yellow yet so I guess there is no emergency. Is it your pancreatic duct that is dilated, or the common duct? Anyway, glad you got good news. Keep us informed esp what he is going to do about the duct situation.
DIANNE
Diagnosed at age 19 with CD.
3 small bowel resections, 1 for perforation, 2 for strictures 
 

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