Remission with Fistula & Fissures? Possible??

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

descrapster
Regular Member


Date Joined Jun 2007
Total Posts : 155
   Posted 12/8/2007 4:15 PM (GMT -7)   
I am extremely confused.  I have not had any abdominal symptoms (i.e. diarrhea & cramps) for about 2-3 months but I still have my fistula which I have had for over a year and my fissures which I have had since June.  My fistula has been great.  I have not really had much pain since my major pains were from going to the bathroom.  My fissures have improved about 75% from what they were. I overall feel the best that I have in my entire life!  Is this remission or do all my symptoms have to be gone?  I would like to start trying for a baby in January but I am worried that this might not be the right time. 
Descrapster
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY! Seton Drain currently in.
8 Pentasa/day
Had to stop Flagyl because of numbness in my toes!
 


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 12/9/2007 8:43 AM (GMT -7)   
Hello!  Wow!  I've never heard anyone say "My fistula has been great"! :-)   Have you been to the doctor lately to see how things are healing?   Fissures can take a long time to heal.  Remission in the clearest sense means the CD isn't causing your body to continue to attack itself.  Glad to hear you are feeling better! 

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 12/9/2007 9:09 AM (GMT -7)   
I would definitly have a colonoscopy prior to trying for a baby especially having a fistula. My Sx were supposed to hopefully get me in remission and I was supposed to have a scope in December 07 to make sure all was being controlled with meds. Unfortunately as you know I havent had the luck that most have post op and I am having that scope in Deecmeber but it is to see how much more of my intestines have to be removed when the area where the fistula is gets removed.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


descrapster
Regular Member


Date Joined Jun 2007
Total Posts : 155
   Posted 12/10/2007 6:54 PM (GMT -7)   
I never thought I would be able to say that since those suckers cause soo much pain but it doesn't bother me unless I have a flare. I am going to the bathroom once a day and I don't even know it's there. I just had a scope in June and the dr. doesn't want to repeat it until a year and a half from now. MY GI won't give me clearance to have a baby unless my colo surgeon does. My colo surgeon won't give me clearance because she wants to put in a fistula plug first and with that plug I have to have to start Remicade. If I start the remicade she won't give me the ok to have a baby because she doesn't think that there is enough research on the long term effects of the baby. So i'm pretty much up a creek without a paddle. I am in a circle that doesn't even seem to end. I figure if i can get pregnant now that my intestines are under control and I am not in pain then I can have my baby and after a few months have the plug put in and start remicade. I dont have to wait around years for everyone else to decide that it's ok. I am young but my husband is 16 years older than I am and I don't want to have my first baby when he's 50! (this is all God willing ofcourse!)
Descrapster
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY! Seton Drain currently in.
8 Pentasa/day
Had to stop Flagyl because of numbness in my toes!
 


descrapster
Regular Member


Date Joined Jun 2007
Total Posts : 155
   Posted 12/12/2007 7:08 AM (GMT -7)   
bumping up
Descrapster
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY! Seton Drain currently in.
8 Pentasa/day
Had to stop Flagyl because of numbness in my toes!
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/12/2007 7:18 AM (GMT -7)   
I don't understand your doctor not wanting you to have a baby on Remicade. There have been so many Remicade and Imuran babies born to mom's on this board. Maybe you need to find another OB/GYN that has a little more progressive thinking.

As for the fissure, I think I would let that heal first before trying. You tend to have alot of pressure on that area when pregnant and giving birth.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


ginger71
Veteran Member


Date Joined Nov 2005
Total Posts : 722
   Posted 12/12/2007 9:09 AM (GMT -7)   
I just saw a Dr. at Mt. Sinai last week. I have a fistula and I am on remicade and it does not seem to be healing. Well, it seems that my former Dr. should have put me on an antibiotic with the remicade because my seton drain and fistula are infected.
I have been trying to get pregnant for 6 months with no luck and the Dr. told me that I probably won't with an active infection in my body because babies don't like infection. So I guess if you have an infection in your body,you might not be able to get pregnant.
BTW, I will not be able to deliver naturally because I am a mess down there so it would be a scheduled c-section so I don't think your fissure would have an affect if you have a c-section. It just may get more sore as the baby grows.....
Wish you lots of luck :-)


36 year old female. Dx'd and undx'd a few times. Was just redx'd again 04/2007.
History of rectal abscesses and fistulas (28 surgeries including abscess I & D, exploratory surgeries, 2 C-ton drains and 1 fistula plug) Count does not include self bursting abscesses.
1st Remicade infusion 6/5/07.  Lots of joint pain, and a new fistula since the 2nd infusion 6/19.
Praying I'll get better soon so we can have a baby.
Ginger :)

Post Edited (ginger71) : 12/12/2007 9:28:22 AM (GMT-7)


descrapster
Regular Member


Date Joined Jun 2007
Total Posts : 155
   Posted 12/12/2007 9:31 AM (GMT -7)   
This is so frustrating!! Yes many women have had perfect babies but my doctor is looking at the future. No one knows what the long term effects are. There is no guarentee that my fistula will heal with remicade so what if it doesn't and I have the fistula for another 5 years...am I not supposed to have a baby till i'm perfect?? I feel good now...I can handle being pregnant now, 3 months ago I couldn't. People have fissures for years that don't heal. I am going on 6 months and all I can do is wait it out and see. If I didn't have the fissures or the fistula then I would say that I feel perfect. So because I have them I might not be able to get pregnant because of infection? I have been on antibiotics and while they did work great for a month I developed and neuropathy on my feet. The only option they are giving me is remicade! I want to hold of on remicade as long as I can. I am controlling it with just the pentasa and am doing great. Once I get on Remicade i will be on it for as long as my body can take it and then its off to something else. I am just so tired of a million different versions and no one doctor can give me a straight answer!!!! AGGGGHHHHHHHHHHHHHHHH!
Descrapster
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY! Seton Drain currently in.
8 Pentasa/day
Had to stop Flagyl because of numbness in my toes!
 


ginger71
Veteran Member


Date Joined Nov 2005
Total Posts : 722
   Posted 12/12/2007 9:49 AM (GMT -7)   
My Dr. in Albany does not want me to have a baby because I am on remicade but the Dr. at Mt. Sinai said he doesn't see a problem. He said,like anything,you are taking a chance. I mean it has only been FDA approved for 9 years or so and there are no long term studies. It is a choice you have to make. It's not fair that we can't have normal lives but we just have more to worry about....
36 year old female. Dx'd and undx'd a few times. Was just redx'd again 04/2007.
History of rectal abscesses and fistulas (28 surgeries including abscess I & D, exploratory surgeries, 2 C-ton drains and 1 fistula plug) Count does not include self bursting abscesses.
1st Remicade infusion 6/5/07.  Lots of joint pain, and a new fistula since the 2nd infusion 6/19.
Praying I'll get better soon so we can have a baby.
Ginger :)

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 9:07 PM (GMT -7)
There are a total of 2,732,389 posts in 301,013 threads.
View Active Threads


Who's Online
This forum has 151175 registered members. Please welcome our newest member, melissapsa.
281 Guest(s), 10 Registered Member(s) are currently online.  Details
PeteZa, desert bound, Gear, mbisoux, Hawaii3654, poohcheez, bdavis, BostonMarigold, LymeMother, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer