please describe your pain

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survivor49
Regular Member


Date Joined Oct 2007
Total Posts : 241
   Posted 12/8/2007 6:36 PM (GMT -7)   
where is your pain located? what makes it better? is is dull, burning, cramy, intermittent? is there a certain time of day that it comes?
i am trying to figure this out, and just wanted to hear other's experiences

rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 12/8/2007 7:02 PM (GMT -7)   
Mine feels like there are shards of glass in my RLQ and my intestines are bumping into them. This only happens occasionally now on pentasa I never had cramping I also get intermittent pain in my URQ and down the right side.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/8/2007 7:04 PM (GMT -7)   
Hi Most days I am pain free but have had some this month which I think is related to eating some foods when I get these pains they are like a cramping I guess pain then I get nausea and vomit because the food doesn't go threw like when I had scrimp a few days ago which I haven't had in years. Once I V then I soon get better usually. What kind of pain do you have? When I had the abcess it was very bad like going on for hours I kept running to the DR.'s alot and one day to the hospital where they gave me a needle for pain but forget what was in the needle . Do you get your pain when you have D or C ? Or both ?lol gail

mcleaver1969
Regular Member


Date Joined Jun 2006
Total Posts : 267
   Posted 12/8/2007 7:08 PM (GMT -7)   
Well, I know for me personally the cramping is located mainly in the middle, below my belly button. The cramping comes on so sudden that I have to take slow, deep breaths until it passes, then I head to the bathroom because the cramps always lead to D. Sometimes there's vomiting too but that has slowed down a lot for me, but the D is always a constant. This happens every day, numerous times a day, always after I eat. And once in awhile as an added bonus my lower ileum becomes so inflamed that it gets almost completely blocked, causing terribly painful stomach pain and vomiting, this can last for a few days at a time. It sucks the life out of me and makes me so tired it's all I can do to get out of bed and go to work 5 days a week. If I am feeling up to it after work I do some tidying up, etc, but a lot of nights I'm so tired I watch TV and head to bed early, just to start all over again the next day. This disease has changed my entire life and nobody who doesn't suffer from it can possibly understand. It's frustrating and depressing.
Tell us about your experience.
Marci, 38 years old, Rockledge, FL
Dx with Crohn's disease March 2006, currently on bi-weekly Humira, daily 6mg Entocort, daily 2-3x 5mg hydrocodone (for pain), and daily 75mg Effexor, plus 3x per day heavy iron supplements for anemia


survivor49
Regular Member


Date Joined Oct 2007
Total Posts : 241
   Posted 12/8/2007 7:20 PM (GMT -7)   
It sounds a lot like yours. I am doubled over a good bit of the time. It starts around late morning, early afternoon, usually because i am on steroids and starving, so i give in and eat someting. It is just adjacent to and below my navel. it is a horrible burning pain. i go to bed with a heating pad every day, and it gets manageaable by morning, only to start again later. I agree with you- it changed my life, and i am at the end of my rope.

Matty G
New Member


Date Joined Dec 2007
Total Posts : 19
   Posted 12/8/2007 8:25 PM (GMT -7)   
mcleaver1969 said...
Well, I know for me personally the cramping is located mainly in the middle, below my belly button. The cramping comes on so sudden that I have to take slow, deep breaths until it passes, then I head to the bathroom because the cramps always lead to D. Sometimes there's vomiting too but that has slowed down a lot for me, but the D is always a constant. This happens every day, numerous times a day, always after I eat. And once in awhile as an added bonus my lower ileum becomes so inflamed that it gets almost completely blocked, causing terribly painful stomach pain and vomiting, this can last for a few days at a time. It sucks the life out of me and makes me so tired it's all I can do to get out of bed and go to work 5 days a week. If I am feeling up to it after work I do some tidying up, etc, but a lot of nights I'm so tired I watch TV and head to bed early, just to start all over again the next day. This disease has changed my entire life and nobody who doesn't suffer from it can possibly understand. It's frustrating and depressing.
Tell us about your experience.


hey mcleaver1969, when you do have the symptoms of a "blockage", when do you deceide its time to go to the hospital. I have had your symptoms before but whenever I start throwing up, I tend to panic and go to the hospital. For which then they admit me. I was told by my GI doc that you should wait at least 2 days before going to the hospital (if your symptoms haven't gotten better).

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted Yesterday 10:21 AM (GMT -7)   
I personally go to the ER when i can't stand the pain anymore. I have strong pain meds in my medicine chest but when i start throwing up what good are they if I can't keep them down.

My pain is alot from joint pain, but I also get cramps every so often. Yesterday I had cramps like menstrual cramps,but Bentyl helped with that. But the going to the hospital pain is like labor pains that come in waves and just steals your breath away. Two days is way too long to wait.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4101
   Posted Yesterday 5:38 PM (GMT -7)   
I have different kinds of pain in different places at different times. The weirdest though, is when I have this diffuse, prickly pain all through my intestines. It feels like I swallowed a cactus or round hairbrush. maybe the shards of glass description is the closest to what I feel. I have no clue what this is!
48 yr. old female, diagnosed with Crohn's Sept-Oct. 2007


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted Yesterday 9:25 PM (GMT -7)   
my pain is upper right and feels like ground glass. hurts when I breathe, so I often hold my breath :)
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil and vicidin as needed.


Mar1anneC
Regular Member


Date Joined Aug 2007
Total Posts : 79
   Posted Yesterday 10:10 PM (GMT -7)   
I have an almost constant achey pain in the left lower quadrant and sometimes I also feel it in on my right side. The worst effect for me is the aching joints and muscles all over my body and fatigue. I don't notice the pain during the day, but at night it gets really bad.

When I am going to have D I get very sharp crampy pains, and whe I am C I get a bloated naseus aching. (I go back and forth between C and D)

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted Yesterday 10:50 PM (GMT -7)   
Most of the pain that I get now is cramping up, and that hurts all over. This usually is followed by D. Thankfully it doesn't happen often. Now I also will get a deep ache in my lower right hand side, sometimes it can become sharp. There really is no time of the day that it always hits me. Mornings can be bad (the earlier I get up the worse it can be too). After a big meal it can hit me. Then there is the middle of the night pain attacks. I had one last night, at 3 am. That was fun. eyes   Thankfully it was short lived and didn't come with any D. But I woke up extra tired from it all.


~Jennifer
 
Diagnosed with mild Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Asacol and Questran.


malakai
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted Today 3:02 AM (GMT -7)   
when I first was diagnosed in july/aug, my pain was located on my R lower quadrant. when I ate, I felt as though I was eating glass shards and felt it while it traveled through my intestines all the way to my R side where I felt like I was being stabbed repeatedly by a huge hunting knife like in the action/horror movies. It was very sharp whenever I would eat, so the only way I controlled it was to NOT eat or drink OR eat/drink as little as possible 1/2-1c max. Basically my side would throb in pain 24/7 but have the sharpest pain when I ate. I sometimes had to put my r hand on it and press when I would walk around. I don't think it did anything but it felt better. Also after I ate, I would get more bloated and gassy. note.... pain sharpness seemed to dull after I started visiting acupuncturist so I still felt it but it was more muted, bloating decreased after I started taking dietary enzymes with my food. The area affected felt warm to the touch.

lately, I explained my pain to someone as still being in my R lower quadrant, but now localized to a 5 in gash in my side with rubbing alcohol being dripped on it 24/7. (I measured the location so that's where I got 5 inches from) So it's more of a never ending burning, stinging, paper cut irritation pain. However, it DOES become more sharp when I eat. I can now eat food without it feeling like glass going down and have upped the amount to 1-1.5 c a sitting, BUT I still have to take dietary enzymes to counteract the bloating. I also still go to the acupuncturist every Wed and usually by Tues the pain level intensifies until I see him. I also just placed my hand on the affected area and it definately is still warmer than my l side in the same area. =0(

Since I experience more C than D, I don't experience the cramping right before projectile diarrhea. It feels more like a menstrual cramp where my appendix would be if I had one. I normally have the "I know that I have to go poo but can't no matter how hard I try to push achy belly moments."
Newbie - 35 yrs old Diagnosed: 08/03/07
Meds:
Asacol 3x day
Imuran 50MG 3 x day
Lamictal 125 MG/day for bioloar II

Post Edited (malakai) : 12/10/2007 3:07:25 AM (GMT-7)


Clcaj
Regular Member


Date Joined Oct 2007
Total Posts : 82
   Posted Today 1:38 PM (GMT -7)   
Mar1anneC said...
I have an almost constant achey pain in the left lower quadrant and sometimes I also feel it in on my right side. The worst effect for me is the aching joints and muscles all over my body and fatigue. I don't notice the pain during the day, but at night it gets really bad.

When I am going to have D I get very sharp crampy pains, and whe I am C I get a bloated naseus aching. (I go back and forth between C and D)
My pain is very similiar - varies from a constant ache to a very sharp pain in the left lower quadrant.  Also can get sharp pains in the middle of the abdomen.   Fissure pain too - which feels like a knife in the rectum.  
 
But mostly, day to day, it's the constant left side ache, joint pain and fatigue that get to me...
 
Mar1AnneC - How long have you had Crohns?  Just curious - also what meds you might be on.
DX: mild to moderate Crohn's for 34 years
Additional benefits: chronic anemia, B12 deficient, peripheral neuropathy, facial mylagsia, joint pain, underactive thyriod
Current meds: Colozal, Nexium, Entocort, Flagyl, steriod cream, monthly B12 injections, Neurontin, Synthroid, Effexor ER, pain meds as needed


MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted Today 1:51 PM (GMT -7)   
my 'normal' pain is JUST LIKE strong menstral cramps.   I also get very bad throbbing anus pain on a bad D day.
 
I once had this radiating pain from what felt like my stomach up through my esophagus.   I vomited from the pain, but nothing really came out.   I didnt know if I was blocked or what.   It went away after a couple of hours.
32 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted Today 2:06 AM (GMT 0)   
Hi. I am new to this forum. I was diagnosed with Crohn's approximately 6 months ago after three ER visits and one hospitalization. My pain feels like I am digesting broken glass. It hurts like heck and comes with horrible nausea. In response to your question on whether it gets worse. For me, it has. Each time I have a flare up it seems to last longer than the last one. I am to the point where I am in tears. I am currently having a flare up that started five days ago. I wanted to go to the ER so bad so that I could get some ease for my suffering, but I don't like the high costs and unnecessary tests that they put me through.

This would be my question: What is the standard operating procedure for Crohn's and the ER? Why can't we go in, be seen by a physician, have them write us a prescription for hospital-strength pain and nausea medications, then be released? It would be more cost efficient for me. My GI doctor will not prescribe strong pain meds. This disease has cost me 1,700 so far (bills still coming in), not to mention all the missed work.

I am happy to know that there are others out there like me. I need someone to talk to who understands and can offer good advice.
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