What's the longest you've ever not going to the bathroom

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kwlulu24
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Date Joined Mar 2007
Total Posts : 31
   Posted 12/9/2007 3:57 AM (GMT -7)   
2 days?
6 days (this is when i get worried)
10 days (what do you do in this situation?)
 
I know have any blockage - but sometimes the D is so bad I need to take Immodium. The Rx drugs such as bently will help stop the D once it arrives, but doesn't prevent it.
 
How do you get things "moving again"- normally :)
 
It's be 6 days for me, It's 6 am and apparently I had to go (after cramping, sweating and noises like an alien). I drank a glass of milk and the rest is history (a new no no). ALL I can say right now is THANK GOD for ambien. I just want to sleep.
 
 

Optymystic
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Date Joined Apr 2007
Total Posts : 218
   Posted 12/9/2007 8:39 AM (GMT -7)   
Six days is not that unusual for me. Patience, eating less, and drinking more water is my usual method.  I don't like taking laxatives either. Then about once every few weeks my system will decide to completely clean itself out. What a releif !!!
 
Good luck with whatever you try.  I know it's very uncomfortable.
Age 41 female.
dx'd in April 2007 - feeling better now
4000mg Pentasa and 75mg 6-MP
Primal Defense probiotic by Garden of Life


dragonfly137927
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Date Joined Sep 2006
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   Posted 12/9/2007 9:04 AM (GMT -7)   
I have had many issues with C in the past from my stricture etc. I would go sometimes a couple weeks with no BM. I take stool softeners to help sometimes but be careful if you buy them since some of them also contain laxatives they are usueally the ones that are about $1 more than the others of the same quantity in the same brand. I also had been on Miralax prior to Sx this was before it was OTC, you can still get it by scrpit if your doc wantsyou on it but in your case I would avoid things that bind you ex rice, bananas, tea, applesauce, cheese

make sure to take in more fluids mainly water. I have also gone as far as having to use glycerine suppositories. I am one that cannot give myself an enema but suppositories are no problem for me.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


Nanners
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Date Joined Apr 2005
Total Posts : 14995
   Posted 12/9/2007 10:09 AM (GMT -7)   
I take a stool softner every night to keep things moving. If I don't I am in pain if I even miss a day.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


pb4
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Date Joined Feb 2004
Total Posts : 20576
   Posted 12/9/2007 11:36 AM (GMT -7)   
This is why I take fibre supplements daily as my GI directed me to (for the rest of my life he suggested) because in the past I've had issues with both C and D, not anymore thank goodness, neither is pleasant as you all know.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


gemini kiwi
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Date Joined Nov 2006
Total Posts : 1136
   Posted 12/9/2007 11:57 AM (GMT -7)   
Bout 4 weeks, happened after an emergency appendix operation, twisted bowel.......................Big trouble.

broomhilda
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Date Joined May 2007
Total Posts : 1488
   Posted 12/9/2007 7:10 PM (GMT -7)   
Never had an obstruction, have suspected some stricture at times. Sometimes it's 4-5 days for me. Constipation is not as big a problem for me as the D, but, let's admit that 4-5 days worth can make you miserable. So.....I drink lots of water, stool softner Glucolax is my choice or daily fibre supplements if you can handle them (start out slow on the fibre). But the most helpful thing for me has been to WALK everyday or ride my stationary bike. Exercise keeps things moving along.
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


Mormor Vicky
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Date Joined Mar 2007
Total Posts : 684
   Posted 12/9/2007 7:22 PM (GMT -7)   
The longest I've gone without going is probably 2 days and that is when I take an imodium. It's the strangest feeling after going 3-4 times a day for years.
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (26) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


Matthew
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Date Joined Oct 2004
Total Posts : 3932
   Posted 12/9/2007 7:39 PM (GMT -7)   
5, maybe 6 days on certain pain meds ( Coedeine, to be precise..). Since I cannot use that med any more, its only 2-3 days when on pain meds.
And as I just found out, when fighting the latest intestinal bug that is running rampant around here, those meds are useless against the big D..

Matthew

wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 390
   Posted 12/9/2007 8:05 PM (GMT -7)   
I have this problem, my dr says C is very common after a flare, which is crazy since you spend so long (weeks, months) having constant D.  He has me take Metamucil, and I HAVE to drink over a gallon of water a day.  Even with that it isn't completely back to normal, I can tell it's mostly the fiber that I am taking (which TMI alert but completely discredits any claim colonic-proponents have regarding mucoid plaque and the need for colon cleansing, what they are talking about is the result of taking a lot of fiber)

yogaprof
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Date Joined Apr 2006
Total Posts : 1665
   Posted 12/9/2007 9:19 PM (GMT -7)   
I am in horrible pain after skipping a day. since I am currently in the middle of a sitz marker (bowel transit) test, I can't take glycolax and am miserable. hopefully tomorrow the test will be done.
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil and vicidin as needed.


malakai
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 12/10/2007 3:29 AM (GMT -7)   
The longest I haven't gone to the bathroom since I've been diagnosed was 6 days and I was sicker than a dog. MY PCP and GI said to go to ER if I found no relief between 6 & 7 days.

I am more C than have D. When I first got diagnosed I would not go and then have diarrhea and then go back to to not going. Since october when I started the imuran, I don't have D at all but now have to creatively find ways to have a bm because it is as if the switch is off and I don't feel the need to go. My belly aches and is telling me that there is something up there but no feeling of needing to push something out. =0(

I drink lots of fluids, take metamucil every day, eat oatmeal every day, was taking docusate (stool softener) but now have switched to miralax and take it every 2 days on top of everything else. (It is not a laxative even though it has the lax at the end) The miralax works but I need to keep playing with it so I can go more regularly.

I read your email again..... My coworker who has IBS had this SAME problem for the past month. She is going to see my GI in mid Jan but has been advised NO immodium until they figure out what is going on and now she has to go on a low residual diet. She said that she was having explosive diarreah and so she would take 3-4 immodiums to stop it since that was the only thing that worked for her and then would get so bound up that she would eat salad to get diarreah again because the pain from the C was so great! maybe you too could go on a low residual diet till your tum tum feels better. good luck
Newbie - 35 yrs old Diagnosed: 08/03/07
Meds:
Asacol 3x day
Imuran 50MG 3 x day
Lamictal 125 MG/day for bioloar II

Post Edited (malakai) : 12/10/2007 3:34:22 AM (GMT-7)


thenay
Regular Member


Date Joined May 2006
Total Posts : 167
   Posted 12/10/2007 6:39 AM (GMT -7)   
Drinking more water will help you go to the bathroom I generally drink about 6-8 glasses a day (which is 4x500ml water bottles).
The longest i've gone was 5 days, and yes it feels weird cos I usually go to the bathroom when I wake up everyday and sometimes just before bed.
It's a relief but I get scared thinking an accident is gonna happen, but it doesn't.. lol

If you have a fever and have lots of pain i'd see a doctor, if it's really bad i'd go to ER.
Male DX with CD May 2006 @ age 22, Colonoscopy and SBT
Taking Prednisone 10mg (tapering), Imuran 75mg (eventually 150mg I was told), Atenolol 25mg for fast heartbeat (thanks Pred!)
Have used Pentasa, Entocort in the past
 
Have a safe and happy holiday everyone!


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 12/10/2007 7:22 AM (GMT -7)   
Gem! I think you are the winner. You should get some kind of prize. I bet that was really scary.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


Clcaj
Regular Member


Date Joined Oct 2007
Total Posts : 82
   Posted 12/10/2007 8:50 AM (GMT -7)   
7 to 11 days is not unusual for me.   I take a stool softener, drink glycolax every day and use suppositories, but even with all that, it can still be 7-11 days before anything happens.   
 
The biggest problem is when I do finally go, I'll spend a couple of days in the bathroom and I'm totally wiped out by it.   Not sure which is worse..!!
 
 
DX: mild to moderate Crohn's for 34 years
Additional benefits: chronic anemia, B12 deficient, peripheral neuropathy, facial mylagsia, joint pain, underactive thyriod
Current meds: Colozal, Nexium, Entocort, Flagyl, steriod cream, monthly B12 injections, Neurontin, Synthroid, Effexor ER, pain meds as needed


gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 12/10/2007 1:45 PM (GMT -7)   
Fitzy,
If I was being really honest, it haunts me to this day. I guess the prize for me was I got to tell the tale and survived it. I will never forget that pain, forget to 0 to 10, I crashed, one surgeon said why don't we go in, and the other one would say no we take it slowly. Actually the pictures I put up on the photobucket site that Gladbag started up, were taken at that time. TPN got me through, I recovered to a certain degree then started to deteriorate, that's when they went in and discovered Crohn's, several weeks later.
Tess

gemini kiwi
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Date Joined Nov 2006
Total Posts : 1136
   Posted 12/10/2007 1:52 PM (GMT -7)   
I forgot to add when I finally went, they announced it on CNN live, yep they broke into Larry King live and announced it. LOL. I call the Nurse aid that called the code that day my little angel, I love her to bits, and we see each other often and email regularly. This year for Xmas I've got her a year's sponsorship of a little Donkey in the UK at one of the Donkey Sanctuary's. Sher's a real animal lover and has some coloured sheep, I only hope the card arrives from the UK in time.
Tess

MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 12/10/2007 1:56 PM (GMT -7)   
Mormor Vicky said...
The longest I've gone without going is probably 2 days and that is when I take an imodium. It's the strangest feeling after going 3-4 times a day for years.

That is what happened to me.  I was taking my vitimins and I took some immodium (because I was going out) and the next day realized I hadnt gone to the bathroom for 2 full days.  
 
It was sooooooo long!  It's times like that i'm glad I have soft stools. LOL
32 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


malakai
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 12/10/2007 2:20 PM (GMT -7)   
gemini, they really announced you finally going on larry king live? WOW.

where is that photobucket area that glad bag put up? now you have me curious
Newbie - 35 yrs old Diagnosed: 08/03/07
Meds:
Asacol 3x day
Imuran 50MG 3 x day
Lamictal 125 MG/day for bioloar II


gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 12/10/2007 2:58 PM (GMT -7)   
No,....................... Just kidding, but that's what I said to the surgeon when he'd heard the news, and he laughed.

gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 12/10/2007 3:00 PM (GMT -7)   
I forget the password,.............. .hang on here it is
Crohnsdisease 6mp 3asa

Haven't checked it in ages, heaps of us put pictures up awile ago.
tess

malakai
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 12/10/2007 8:53 PM (GMT -7)   

what is the url?

aka www.......

I went to www.photobucket.com but it was asking for a user name and password.
Newbie - 35 yrs old Diagnosed: 08/03/07
Meds:
Asacol 3x day
Imuran 50MG 3 x day
Lamictal 125 MG/day for bioloar II


princesscolon
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Date Joined Apr 2006
Total Posts : 733
   Posted 12/10/2007 8:57 PM (GMT -7)   
Clcaj said...
7 to 11 days is not unusual for me.   I take a stool softener, drink glycolax every day and use suppositories, but even with all that, it can still be 7-11 days before anything happens.   
 
The biggest problem is when I do finally go, I'll spend a couple of days in the bathroom and I'm totally wiped out by it.   Not sure which is worse..!!
 
 

This is my life story!

Adrienne,27
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade
2007:Increased Remicade dosage-660mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia
Current meds: Remicade 660mgs every 6 wks, Lomotil, Tramadol, Darvocet, Clorazepate, new meds I am about to start: Prograf, Cymbalta, Lyrica


gemini kiwi
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Date Joined Nov 2006
Total Posts : 1136
   Posted 12/10/2007 8:57 PM (GMT -7)   
Crohnsdisease 6mp3asa

minou
Regular Member


Date Joined Jan 2005
Total Posts : 140
   Posted 12/10/2007 9:17 PM (GMT -7)   
I've gone a whole 3 weeks without a BM and my doctor seems to think that's normal. I'm on a strict diet to try and keep things soft (so to speak), I take stool softeners and I a cortenema every night. So, to make long story short, I'll be going for a second opinion in January. I can't wait to get a fresh opinion.
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