reversal and new drugs

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Nov 2007
Total Posts : 74
   Posted 12/10/2007 10:42 PM (GMT -6)   

I went to my Doctors today and I hadn’t gone to see him in ten years as he was not on my insurance most of them. He works at John Hopkins (what a great place with excellent patient service) and I went to see about getting a reversal and getting on the new drugs

Like Rimadal and Humira to see if I could live a life with out my illiostomy.


He looked at both stomas and said they look very good and the fact that I have been with out any meds for 10 years and no flair ups and the new meds the chances look good for me to get the reversal.


I ask him if the new meds help keep the fistulas at bay and he said yes 2/3 patients with

fistulas do well with containing them (anyone with first hand knowledge).


I got my blood work done today and on Jan 2nd I will have a up GI done and MRI.

He referred me to a Gastro/Colorectal surgeon that is going to look at my large intestine

and dilate my sphincter and check for colon cancer.


How is everyone doing with the new drugs and fisulas?



Post Edited (MDdave) : 12/12/2007 9:06:00 PM (GMT-7)

Veteran Member

Date Joined Apr 2007
Total Posts : 531
   Posted 12/11/2007 1:38 AM (GMT -6)   
Fortunately I don't have any major fistula problems, but I have read some great success stories right here, with remicade and/or humira. I'm sure they will be along soon to tell you about it. I sure wish you luck and hope everything works well with your reversal.
Diagnosed at age 19 with CD.
3 small bowel resections, 1 for perforation, 2 for strictures 

Regular Member

Date Joined Nov 2007
Total Posts : 74
   Posted 12/12/2007 8:18 AM (GMT -6)   

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 12/12/2007 8:43 AM (GMT -6)   
I wish you all the best ........

    Contribute today to support Healing Well Forums...Donate @
  CO-Moderator@ Crohns
  Moderator@ Alzheimer's
DX @ Crohns, Pyoderma Gangrenosum ,Anxiety /Panic
New DX of C.O.P.D.
ON too Many meds to post.........
        We Have Anxiety.....Anxiety Does NOT have Us

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/12/2007 8:58 AM (GMT -6)   
Hope everything goes well for you!! And welcome to Healing Well.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 12/12/2007 9:02 AM (GMT -6)   
Hi Dave Sounds great getting the reversal after 10 years didn't know they could do that, after that long wow. I did have a fistula that healed with Remicade it was from my abd. abcess surgery and I had another one . Whether or not that has healed I don't know .I had to go off the Remicade after 6 months but at least it spared me from surgery because the fistula healed. I might try Humuria I am not sure what I will do yet. it is great news for you and I bet you are excited to get the reversal done. Right now I am on the pred. and able to manage so far. Wishing you the best with your testing and keep us updated on how you are doing. lol gail

Regular Member

Date Joined Nov 2007
Total Posts : 74
   Posted 12/12/2007 10:16 AM (GMT -6)   


 Thank you LYN,

         Just trying to see how many folks have found that the new drugs do help

        with the fistulas and also how many folks have been in a bag for 10 years

         and have had a sucsseful reversal?




Regular Member

Date Joined Nov 2007
Total Posts : 74
   Posted 12/12/2007 10:59 PM (GMT -6)   
I had five fistula surgery's in 3 months in 1997 and this is how I was placed in the ileostomy do to loosing the battle to the fistulas so my main worry is not having to go to battle with the little pain in the arses.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, October 21, 2016 8:22 AM (GMT -6)
There are a total of 2,709,398 posts in 298,806 threads.
View Active Threads

Who's Online
This forum has 153326 registered members. Please welcome our newest member, CauderER94.
270 Guest(s), 15 Registered Member(s) are currently online.  Details
JayMot, imagardener2, NostalgicCowboy, SpecialLady, Rikky1, eliza-jo, RobertC, Andrina, czjaba, ks1905, PA_grandma, Old Mike, Robertmp, Maraki, Snarf

Follow on Facebook  Follow on Twitter  Follow on Pinterest

©1996-2016 LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer