my hair!!!!!my weight!!!!!!!

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soulintome
New Member


Date Joined Jun 2006
Total Posts : 6
   Posted 12/10/2007 9:21 PM (GMT -7)   
omg I can't take this anymore, I had surgery in March, had my terminal ileam worked out, I've been ok with pain, but the diarrh. is still prominent, and all of the other sypmtoms too. Arthirits in knees and ankles...but my biggest problem is that I'm gaining at least 6lbs a month since.....reallly! it won't stop, I'm down to 15mg of pred and taking my asacol daily. My hair is falling out in clumps and i can't get it to turn around. It seems like I've traded one or two things for another like being fat and balled, when I'm usually or b4 I was diagnosed crohns, 130-140 lbs, 115-123 when trying to get a diag, and now I'm 170....I'm so depressed this is the worst trade off. I've bought like 2 or 3 sets of clothing cause my weight is constantly changing,  I have constant acne my life so sucks at this point, it's been a total 360. I work out and still don't loose any wieght, I cut down my eating and gain weight....***.....I don't know how to handle this, i have a fat phobia, I look at myself every day like,  ugh! Am i the only one going through constant changes, and how do I deal withthem any suggestions??????

tinglebell
Veteran Member


Date Joined Apr 2007
Total Posts : 531
   Posted 12/10/2007 10:09 PM (GMT -7)   
Hi, it will get better with less pred. I am down to 10 mg and 3 mg entocort and have lost about 10 of the 30 I gained. It has taken 2 months to lose that, and I did cut out most sugar from my diet. I couldn't believe my image every time I looked in the mirror. I didn't get acne, because I'm too old for that stuff. Thank goodness for some advantage. And my hair stayed in too, maybe that sx is from asacol? I also have 4 sizes of clothes now, from size 6 to 12, am currently in 10's.
DIANNE
Diagnosed at age 19 with CD.
3 small bowel resections, 1 for perforation, 2 for strictures 
 


LiLa
Regular Member


Date Joined Nov 2007
Total Posts : 106
   Posted 12/11/2007 6:50 AM (GMT -7)   
Hey There, sorry to hear you're going through this. Well i had surgery to have my terminal ileum removed as that was where the disease was at it's worst. After surgery, i was put on Questran and nothing else. At first i was really disappointed as i still had cramps and D but after a couple of weeks the Questran stopped all the pain and the D was almost completely under control. It had no side affects, i put on a little weight which made me look like a human as opposed to a skeleton and my hair and skin are fine too. Maybe you haven't had the terminal ileum removed but i just thought i'd share that with you in case it may be of any benefit. Although that was 8 yrs ago, and unfortunately i can now feel the symptoms of crohns coming back to haunt me slowly but surely. But i kind of refuse to let this disease get a hold of me and most of the time i try to convince myself i have nothing wrong with me. I'm not saying this is a good idea and for most people it cannot be ignored, but i just think the power of the mind is very important when you have an illness and if you make yourself believe you are going to get better then it may have a positive affect on your recovery.
I hope you find a solution soon......

paintedsongs
Regular Member


Date Joined Jul 2005
Total Posts : 207
   Posted 12/11/2007 7:40 AM (GMT -7)   
I know how you feel. I have always had issues with my weight. I lost 25lbs, about 2 yrs ago before my wedding, 2 months later I was dx with Crohns and went on prednisone. The increased appetite and mood changes helped me gain all that weight back. I had lost about 15lbs of the regained weight and now i am back on Prednisone. My face is fuller, i feel liek I have a double chin and I don't feel good about myself. I also have clothes in 4 sizes and just keep them in bins if i need them.  This time on Prednisone I am trying to be really wise about what I eat and still remain active to combat any further weight gain. Its sucks b/c I was doing good losing the weight.  One thing that I have realized is how self destructive one can be to themself with negative self talk.  I been trying to do soem positive self talk instead when I get real down. It might sound silly but I look in the mirror and talk myself up. say things like, did you forget you are being treasted for an illness? Your not going to look like mrs. america right now. Remind yourself this is temporary and you can only do so much while on the Pred.  Hope we can offfer some support to you. take care.
28 Year old Female. Dx with Crohns 2005. Currently take Imuran 50 mg. had 3 remicade infusions which put me in remission.
Dx with Pyoderma Gangrenos (PG) Nov '07, currently on Prednisone 40mg for PG, slowly tapering from 60mg ...  most importantly the taper is in effect !


paintedsongs
Regular Member


Date Joined Jul 2005
Total Posts : 207
   Posted 12/11/2007 7:44 AM (GMT -7)   
One other quick thing. The first time on pred I have bad acne also. This time I have not. I am on the pred for Pyoderma Gangrenosa, a skin condition on my leg. I had to see a dermatologist for this. We reviewed my use of soap/lotions. I previousely used Dove face soap. He had me change to Oil of Olay bar soap and Oil of Olay complete moisturizer 2x a day. My skin has never looked or felt better acutually. Might be worth a shot to try those two and see if it helps at all.. just a thought.
28 Year old Female. Dx with Crohns 2005. Currently take Imuran 50 mg. had 3 remicade infusions which put me in remission.
Dx with Pyoderma Gangrenos (PG) Nov '07, currently on Prednisone 40mg for PG, slowly tapering from 60mg ...  most importantly the taper is in effect !


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 12/11/2007 7:45 AM (GMT -7)   
I lose hair when I'm on the steroids for a longer period. I think the hair loss starts after about 4 months. My hair is half as thick as it was 2 months ago, but I am almost completely off. 4mg methylpred every other day!  And, it seems like the hair loss has stopped (beyond normal hair loss, that is).  Last time it took 6 months to notice the re-growth.  Sucks.

---
39 f, dx UC in 2/03, dx changed to crohn's in 4/04, currently on methylpred (for another week or so) and prochymal

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/11/2007 8:28 AM (GMT -7)   
Hi I am going threw the fat and fatter thing now myself and although I try to stay off a lot of sugar the weight gain is feeling like too much .I am doing more cleaning now and trying to keep busier now Xmas season is upon us it does help with keeping busier. I had to get a new coat this year as my old one is too small but I must say it is a nice coat. I am hoping to at least stop gaining, that at least would be a start. Don't have the hair lost issue now but did for awhile it is growing back and finally thicker. I like others just remind myself that it is a part of getting better and hopefully won't last .How much longer will you be on the pred.? I don't know how long for me right now. I guess it is something we try to deal with while we have to at least we are not so thin as to be in need of having to put weight on I was very sick when I started to gain so I try to remember which is worse for me .We"ll get threw this in time . Might be the Asacol doing the hair thing to you or the combination .Hang in here with us we"ll get this licked in time. lol gail

soulintome
New Member


Date Joined Jun 2006
Total Posts : 6
   Posted 12/11/2007 9:11 AM (GMT -7)   
Thanks everyone for the advice and words of encouragement, I
went to sleep reading my bible last night and just kinda stop time and stregthened my spiritual. I admit that I need to be more positive and just give thanks, but there r days that r very trying!!!!! I aslo admit my diet is not the best, but when u go from not eating very mucha t all because of pain to being able to eat without much pain at all...... It seems lately, some days are better than others! or should I say I able to handle some days better than others, but it feels good to be able to freely talk and have someone able to relate in some way....THANK YOU!
24yr female 2kids
dx n 2006
asacol, pred, prevacid
2 surgeries in 2007 due to preforated colon.

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