Questions about flares

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Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 12/11/2007 2:59 PM (GMT -7)   
My Crohn's came on gradually over many, many years. I also have IBS. Then all of the sudden I'm in remission due to surgery. I've been okay for a year now and have been loving it but whenever something strange starts happening I'm so afraid I'm coming out of remission. I don't know what to look for. I've never have gone from remission to flare. I've gone to the doctor 2-3 times because something strange has happened and it's always turned out to be something else. Not the Crohn's. Mouth sores from 6-mp, not CD. Tail bone pain due to dislocated tailbone and not from inflammation in my rectum. More "d" but it was from a new med and not CD. I get so confused sometimes. I get all these tests run and then it's nothing. Don't get me wrong, I'm not complaining.

I've been having gut pains for a week. Lots of gas and bloating. It's probably my IBS but I just don't know. It does feel different though. Hurts almost everytime I eat something. More sharp, like stomach flu. I know I'm stressing about Christmas and how to pay for it. I always do stress.

I never had weird blood tests or weight loss or bloody stools or fever or anything else. Just "d" and cramping.

I want to know what others experience when they start to flare.
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (26) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


thenay
Regular Member


Date Joined May 2006
Total Posts : 167
   Posted 12/11/2007 3:47 PM (GMT -7)   
For me a flare of symptoms are gas, pain in my right side non stop (where my CD is) and sometimes D which happens usually every 3 weeks if i'm active with my CD. If your having D everyday your CD can be active, however yes meds can cause it, it's hard to say. I'd talk to your doc if thats the case and your having pain all the time.
Male DX with CD May 2006 @ age 22, Colonoscopy and SBT
Taking Prednisone 10mg (tapering), Imuran 150mg, Atenolol 25mg for fast heartbeat (thanks Pred!)
Have used Pentasa, Entocort in the past
 
Have a safe and happy holiday everyone!


mindyk81
Regular Member


Date Joined Oct 2007
Total Posts : 54
   Posted 12/11/2007 5:20 PM (GMT -7)   
I start out with fatigue. Then comes the nausea and pain. Then comes the low grade fever. It takes awhile for me to get a full blown flare.
Diagnosed with Crohn's in 1995.
Have used Prednisone, Flagyl, and Pentasa in the past.
Now on Imuran/Prednisone - waiting to start Humira.
One stricture in distal ileum.
No surgeries yet.


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 12/11/2007 5:30 PM (GMT -7)   
I think that is what I'm trying to find out. Is it more of a gradual escalation of symptoms or a sudden onset. Oh, I've always had fatigue. That's probably my worst symptom because it is always with me. I do seem to be more tired lately but maybe because I'm busy. I just don't know.
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (26) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4099
   Posted 12/11/2007 6:02 PM (GMT -7)   
I agree with you Vicky...I have had IBS my whole life, but was diagnosed with Crohn's in Sept. '07. I think I'm in remission because I am not having diarrhea, but I also have fatigue, and weirdo intestinal pains that I can't explain. I'm getting blood work done tomorrow to make sure I'm not anemic. I think you should let it be ok if you go to your doc and find out it's something other than Crohn's...how are you supposed to know unless you check it out? I wish I could be oof more help!
48 yr. old female, diagnosed with Crohn's Sept-Oct. 2007


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/11/2007 6:16 PM (GMT -7)   

Vicky I consider a flare if my symptoms last more than a week.  I usually just think its the flu or something, but if it doesn't get better within a week I know I am starting to flare.  My flares almost always start with the joint pain.  I would say my flares usually have multiple things happening.  Joint pain, nausea, D, fatigue and the wonderful pain.

I have started realizing that stress really effects my guts alot.  When I feel like its getting out of control I will take 1/2 Valium and that helps to quiet things down again.  Sometimes it will take the whole Valium, but its part of my life now.

Within time you learn to recognize what is what.

Hang in there friend! 


Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

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