What kind of Crohn's????

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Mormor Vicky
Veteran Member

Date Joined Mar 2007
Total Posts : 684
   Posted 12/11/2007 5:17 PM (GMT -6)   
I have fistulizing Crohn's and had to have surgery where half of my colon was removed. I've been in remission since then (8-06). My doctor said I'm considered a mild case but I had read somewhere that because it's fistulizing and strictureing it's consider medium to severe. I haven't had another fistula form since surgery that I know of since I didn't know I had CD until my previous one broke through to my bladder. What are your experience?
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
Daughter (26) also has Crohn's since she was 12.
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/11/2007 8:25 PM (GMT -6)   
I have the stricturing type of Crohns and mine is still considered mild. Hope that helps.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Regular Member

Date Joined Apr 2006
Total Posts : 449
   Posted 12/12/2007 5:41 AM (GMT -6)   

Mild, Moderate-Severe and Fulminant-Severe categories are largely based on response to intervention these days. So if your Crohn's is under good control with minimal meds (ie Pentasa) with or without surgery you are considered Mild at this time. If your Crohn's requires immune modulators to attain remission then you're Moderate. If your Crohn's requires biologics to attain remission then you're Moderate - Severe (even if your symptoms weren't all that bad but your gut was a mess). Fulminant-Severe is pretty much reserved for those folks who do not achieve clinical remission from meds or surgery - failed remicade and/or humira along with lesser drugs and usually have wide ranging severe symptoms and may have multiple AI disorders (lupus, diabetes, RA, AS, etc) suggesting a broader underlying disorder of the immune system.

It's confusing because your classification can change very quickly from Fulminant-Severe to Mild if surgery is required and it is followed by remission. All the categories are blurry and your doctor may or may not agree with this definition. Our experience is that doctors tend to categorize you in the best possible group as they do not like to be the bearers of bad news any more than anyone else does. IMHO they will tell you Mild or Moderate but avoid Severe if at all possible. Fulminant-Severe is apparently a category of ZERO though all of us know folks who are in that group, sadly enough.


Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 12/12/2007 11:35 AM (GMT -6)   

My Doc started out calling me mild to moderate and now he says the word severe sometimes. he actually scared me when he first said that. one of His reasons was because my blood tests still show inflamation even though we keep increasing my dose of Imuran. I am now on 150mg and hope this time around it works!



Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, and feel like I am falling apart sometimes...

Veteran Member

Date Joined Jan 2003
Total Posts : 1129
   Posted 12/12/2007 11:44 AM (GMT -6)   
I have stricturing Crohn's of the small bowel. I avoid terms like mild, moderate and severe, they're a bit subjective.

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