Calling all parents : How many of your kids have Crohns/IBS?

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Regular Member

Date Joined Jul 2005
Total Posts : 207
   Posted 12/11/2007 9:22 PM (GMT -6)   
Just curious to the parents on this forum, how many of your children have Crohns or IBS?

28 Year old Female. Dx with Crohns 2005. Currently take Imuran 50 mg. had 3 remicade infusions which put me in remission.
Dx with Pyoderma Gangrenos (PG) Nov '07, currently on Prednisone 40mg for PG, slowly tapering from 60mg ...  most importantly the taper is in effect !

Regular Member

Date Joined Oct 2007
Total Posts : 54
   Posted 12/11/2007 9:39 PM (GMT -6)   
I have a 20 month old. No signs of it yet. We're just going to keep a close eye on her to make sure we catch it early if she does have it. I really hope that it passes her over. I'd hate to see her go through what I go through. It would break my heart.
Diagnosed with Crohn's in 1995.
Have used Prednisone, Flagyl, and Pentasa in the past.
Now on Imuran/Prednisone - waiting to start Humira.
One stricture in distal ileum.
No surgeries yet.

Regular Member

Date Joined Apr 2007
Total Posts : 254
   Posted 12/12/2007 3:34 AM (GMT -6)   
I have two daughters 12 and 8 years old, and they are very healthy.  Of course I keep a very close eye on them, their pediatrician knows about my Crohns so he is alerted as well, but unfortunately there is nothing we can do but wait and pray they will not get it.  Now last month my daughter of 12 years old complained about a dull pain just where her appendix is, and she had a little bit of loose stools for a couple of days, but the doctor examined her and he said she is very close to getting her first period really soon (within the next months) that's why she is due to have some small pains now and then.

Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 12/12/2007 9:00 AM (GMT -6)   
I have 2 girls 5 and 7. The oldest has been to a ped. gi for fevers, narrow stools, mucus, and pain....nothing confirmed yet. Praying everyday that both of them never get it.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/12/2007 9:04 AM (GMT -6)   
I have 3 grown daughters and 2 of them have mild IBS. Thank God non of them developed Crohns and everything looks great so far for my grandbabies.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 12/12/2007 9:13 AM (GMT -6)   
I have a teen who has been DX with IBS at ten years old taking Dicetel for it . lol gail

Regular Member

Date Joined Jun 2005
Total Posts : 369
   Posted 12/12/2007 9:45 AM (GMT -6)   
I have 2 kids age 19 and 21. Thank goodness, the 19 year old girl seems fine, but my 21 year old boy has been diagnosed with IBS. He has had diarrhea 6 or 7 times a day for about 7 years. I'm pretty sure he has Crohn's but he's afraid to be tested. I think he just wants to pretend he's normal at this age.

Mormor Vicky
Veteran Member

Date Joined Mar 2007
Total Posts : 684
   Posted 12/12/2007 10:09 AM (GMT -6)   
My 27 year old daughter was diagnosed when she was 12 with Crohn's disease. I found out I had it last year.
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
Daughter (26) also has Crohn's since she was 12.
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor

Elite Member

Date Joined Feb 2004
Total Posts : 20557
   Posted 12/12/2007 1:32 PM (GMT -6)   
I am the kid (at 40 yrs old) my mom has ulcerative colitis...she got sick with it in her late 60's shortly AFTER I got sick with crohns.

So far my 2 kids seem fine, keeping my fingers and toes crossed that forever they will be.

My bum is broken....there's a big crack down the middle of it!  LOL  :)

New Member

Date Joined Dec 2007
Total Posts : 1
   Posted 12/12/2007 1:49 PM (GMT -6)   
I am 26 yrs old and was dx this past june with Crohn's. I have a 5 year old son who complains of stomach problems all of the time and frequently has diarrhea and fevers. But I am too scared to take him in for testing. I am not currently on any meds but was on prednisone while I was in the ICU and was slowered tapered off. I have episodes where I end up in the ER about once every 2 months. I am new to this and am not sure what I can do.

Regular Member

Date Joined Oct 2007
Total Posts : 35
   Posted 12/12/2007 3:13 PM (GMT -6)   
I have 2 boys, age 32 and 26 - both in "informed denial".  They both have at the very least IBS.  the youngest I swear is celiac and the oldest is showing signs of Crohn's. 
We ran blood tests on the youngest about a year after I was diagnosed with celiac, which came out "very likely" but not a firm positive, so he refuses to take it serious - even in the middle of an episode.  The oldest has had stomach aches his entire life and is recently showing signs of IBS, which could actually be crohn's developing, now that we know I have it.  I call it "informed denial" because I made them sit and listen to me not long ago - it's not normal to feel the way they do.  But they don't want to deal with it - yet, anyway. 
Trying to be encouraging toward a better quality of life with them.
Dx with Crohn's Aug 2007; celiac sprue July 2002; Type II diabetes Nov 2006.  Current meds: Entocort , Asacol, Levoxyl, Fosomax, various vitamin supplements.

Regular Member

Date Joined Dec 2006
Total Posts : 244
   Posted 12/12/2007 3:56 PM (GMT -6)   
I have 3 kids (15, 13 and 8), none have shown signs of CD or IBS. My oldest however has had some GI problems (HPylori and lactose intolerance).

MMAC, Wife & Mother of 3 (14, 13 & 7) - Diagnosed w/CD June05 (terminal ileum)

Asacol (9 daily), Imuran (150mg), Prenisone (15mg), Cipro (1000mg)Lunesta (3mg), Phenergan (when needed) - Remicade as of 7/24

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 12/12/2007 4:27 PM (GMT -6)   
Like pb4 I am the kid. I was diagnosed at 23, self diagnosed at 13. My Mom was diagnosed at 32. Both of us were diagnosed when our first born was 1. My two daughters, 20 and 17, both have tummy issues, nothing too serious yet, but enough that I worry. You better believe that when they have their first child, I will be watching like a hawk!

My younger daughter is adamant that she knows she will have CD. She already has lactose intolerance and food allergy issues. I think her statements are a defense mechanism in case she does get it, but hopefully I have shown her that life goes on and it doesn't have to be this horrible thing.

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 12/12/2007 6:28 PM (GMT -6)   
I do not have any children yet. I am the only one in my whole family with CD no one else has any signs of IBD. My mom does have IBS but that has lessened and she has not had an episode of that in at least 5 years now. I read in some research, I wish I could remember where but it stated tahat if only 1 parent has IBD that there is only a 5% chance that their child will have IBD. HOwever if both parents have IBD the risk goes up to 50% risk that the child will develop IBD
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

Regular Member

Date Joined Oct 2007
Total Posts : 75
   Posted 12/12/2007 6:38 PM (GMT -6)   
concur with the statement just above (dragonfly). The cleveland clinic states that it is about 3%. I have no family members within four generations (grandparents/parents/mine/neices and nephews) that have it-I'm the only lucky one! I have two great grandparents that had it (each on opposites side of the family-one on moms and the other on dads).

Elite Member

Date Joined Feb 2004
Total Posts : 20557
   Posted 12/12/2007 6:48 PM (GMT -6)   
Well my 2 cents, the info I have is if one parent has IBD there is a -10 to -15% fold increased risk of their offspring developing IBD as well...if one twin had IBD there is a 40-60% chance the other twin will also develop IBD.

My bum is broken....there's a big crack down the middle of it!  LOL  :)

New Member

Date Joined Feb 2007
Total Posts : 7
   Posted 12/12/2007 8:06 PM (GMT -6)   
I have a 26-year-old daughter who had UC. She had her colon removed 3 years ago.

Veteran Member

Date Joined Dec 2006
Total Posts : 1986
   Posted 12/12/2007 8:42 PM (GMT -6)   
2 Kids, 27 and 29, no sign of IBD, but boy I sweated out every tummy ache when they were kids.
Crohn's Disease   

Regular Member

Date Joined Feb 2007
Total Posts : 67
   Posted 12/12/2007 9:04 PM (GMT -6)   
We've a 4 yr old girl who was diagnosed with Crohn's when she was 2.
We've no one in the family with known IBD/IBS on both sides!! She is
currently in remission with LDN and homeopathic medications and hope
she remains there as long as possible.

Regular Member

Date Joined Mar 2007
Total Posts : 69
   Posted 12/12/2007 9:15 PM (GMT -6)   
I Have struggled with CD for the last 15 years.  I am the only child out of 5 with this problem.  My daughter is 9 and has constapation problems for the last 3 years, taking glycolax daily after 2 bouts of being"filled with crap"  I do not remember having these issues as a child. Her father had colitis as well.  I have never been constipated, but constant D. I have been hopeful that she may out grow this problem.

Veteran Member

Date Joined Nov 2007
Total Posts : 4055
   Posted 12/12/2007 9:20 PM (GMT -6)   
I have two kids, ages 18 and 14. No signs of any GI problems. I do have a neice with severe IBS, and I do wonder if it is really Crohn's.
48 yr. old female, diagnosed with Crohn's Sept-Oct. 2007

Regular Member

Date Joined Nov 2007
Total Posts : 111
   Posted 12/13/2007 11:15 AM (GMT -6)   
i am the child who has crohns and my sister is showing signs of it as well but they diagnosed her with ibs. My parents and my other sister do not have it. I have no idea were I got it and why she is following in my footsteps.
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