I signed out AMA...

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Date Joined Nov 2003
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   Posted 12/11/2007 11:37 PM (GMT -6)   
I haven't been around much lately because I got very ill last week - fever and the all over "exploding joint" feeling. GI thought it most likely a serum sickness problem from the Humira. On prednisone for a quick burst. The fever has continued plus chest pain on the left side. Saw my primary today because of the fever and when I was returning from the lab I had a near syncopal episode. That earned me trip to the ER and a complete cardiac workup. They wanted to keep me overnight for observation but I just could not stay. The dang guerneys were so hard it was making my joints hurt worse. The cardiac tests showed I did not have a heart attack last week but there were some changes on the EKG since my last in 1990. That's why they wanted to keep me....
The ER doc thinks it is likely still a serum sickness problem so BACK on the dreaded prednisone. Have to go to internal medicine tomorrow so they can look at me some more.
There is a lot more to this story but I am worn out from the fever and the long day. Just felt I had to tell someone that I went AMA...I never thought I would do such a thing.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?

Veteran Member

Date Joined Dec 2005
Total Posts : 1782
   Posted 12/12/2007 12:03 AM (GMT -6)   
Wow Ides, you really must be fed up with the whole shebang. Can't say I blame you actually - you've had quite the wild ride the past few weeks or so.

I'm sorry you've been going thru all of this and I hope you get back on the road to wellness soon. Is it me or is it the time of year? Everyone I know seems to be fed up with just about everything lately (including those of us who have chronic illnesses).

Hang in there and take a breath...

Some days you're the bug, some days you're the windshield

RA, AS, intolerance/sensitivity to gluten, wheat and dairy.

Remicade every 6 weeks, Methotrexate weekly, Folic Acid daily

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 12/12/2007 12:18 AM (GMT -6)   
Not sure if I am happy that you did not stay over night but I know what you mean about the amenities. You get that ticker checked out though. I know from experience that it is nothing that can be ignored. Take care of yourself and let us know how you are doing.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Veteran Member

Date Joined May 2003
Total Posts : 9448
   Posted 12/12/2007 7:53 AM (GMT -6)   
(((hugs))), Ides! I hope and pray this passes quickly for you and that you start feeling better again SOONEST!

Thank goodness our hospital now has a Chest Pain Clinic. If one goes into ER for chest pain and there is reason for them to want to keep you for 24 hours observation you are immediately sent to the CPC after the ER testing. In the CPC you have a somewhat smaller than regular private room and a regular hospital bed, not a gurney.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 12/12/2007 8:46 AM (GMT -6)   
Hi Ides so glad you are getting more testing done and hope they get you feeling better soon. We all care about you very much .lol gail

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/12/2007 8:57 AM (GMT -6)   
Wow Ides I am so sorry to hear you have been so ill. Will definetly keep you in my prayers and hope you get feeling better soon. (((Big Hugs))) coming your way.

Please keep us posted on how you are doing.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined Dec 2006
Total Posts : 1986
   Posted 12/12/2007 11:01 AM (GMT -6)   
Ides, you've really been through the ringer. You'll follow up right away right? The heart is nothing to mess with, but I understand about the joint pain. Do they really think this is a reaction to the Humira? Please keep us posted.
Crohn's Disease   

Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 12/12/2007 11:10 AM (GMT -6)   

So sorry you have been through so much!!!


I hope you get better soon. And take care of that ticker!



Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, and feel like I am falling apart sometimes...

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 12/12/2007 8:01 PM (GMT -6)   
Ides, I hope you feel better soon. I know my suggestion will make you laugh but did you tell them that you couldn't hack it because of your joints? Giving your co-condition I would think they would try to better accomodate you - either on a better bed or with some pain meds. I'm guessing you were vocal and they just didn't care in which case, Id say complaint time.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!

Veteran Member

Date Joined Nov 2007
Total Posts : 4054
   Posted 12/12/2007 9:28 PM (GMT -6)   
Sometimes when people go AMA, your insurance company won't pay for any of your stay. Try to make sure your doctors signed you out properly, or can advocate for you. I sure hope you feel better soon!
48 yr. old female, diagnosed with Crohn's Sept-Oct. 2007

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 12/12/2007 11:34 PM (GMT -6)   
Wouldn't that be more of a problem if she went in AMA not out AMA? If I read this right she checked OUT AMA.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!

Elite Member

Date Joined Feb 2004
Total Posts : 20552
   Posted 12/12/2007 11:43 PM (GMT -6)   
Wow Ides, you've really been going through the wringer...I hope you feel better soon, you're in my thoughts.

My bum is broken....there's a big crack down the middle of it!  LOL  :)

Veteran Member

Date Joined Jan 2003
Total Posts : 6044
   Posted 12/13/2007 12:34 AM (GMT -6)   
dont worry ides, youve got such a big heart :) , it will be ok.


Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 12/13/2007 5:12 AM (GMT -6)   
Hi Ides, My prayers are with you. I hope you feel better soon.

Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 12/13/2007 5:12 PM (GMT -6)   
Oh, Ides, I'm sorry this is happening to you. I hope you get some answers and some energy soon.

What's AMA?

Sending you strength,

Co-Moderator Crohn's Forum.

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 12/13/2007 5:33 PM (GMT -6)   
AMA is against medical advice.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!

Veteran Member

Date Joined Mar 2005
Total Posts : 4305
   Posted 12/13/2007 7:54 PM (GMT -6)   
Ides I agree with Sniper make sure to get it checked and please let us know how it goes and remember we are all here for you and I have you in my prayers and thoughts as well.

Regular Member

Date Joined Oct 2006
Total Posts : 121
   Posted 12/15/2007 11:51 AM (GMT -6)   
Ides, hang in there. What you are going through is beyond comprehension. I definitely can understand the feeling of getting to the point where you feel like the only way to survive and not implode or explode is to go home! Hopin' your ticker is okay!!
DX W/AS 1996

DX of CD 8/2006

Taking: Pentasa (1 Gram 4 x Day), Humira (1 Shot Every Other Week), Entocort EC (6 mg), Ultram and hydrocodone as needed for Pain, Advair for Asthma, Synthroid for Hypothyroidism, Metoclopramide as Needed for GP and Nausea, Forvia (2 X Day), Calcium (1200 mg) W/ D Each Day, Milk Thistle (1000 mg daily for liver support), Ambien as needed,

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 12/15/2007 12:06 PM (GMT -6)   

Hey Ides,

Good Morning and I want you to please take care of you and not to worry.  I will be glad to help out on the site and you get some much needed care and rest. 

You are always ready to lend a hand whereever it is needed and now it is your turn to let others help you. 

Please know you are special to so many and we all want you to get well.

Many Gentle Hugs


Moderator Anxiety ~ Panic Disorders
*~* Not a mental health professional at all *~*
Dx: Anxiety/Panic, Depression, GERD, Osteoarthritis
*Wife of a Crohnie*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~

Regular Member

Date Joined Jun 2003
Total Posts : 280
   Posted 12/20/2007 1:40 AM (GMT -6)   
Ides, I'm so sorry to hear about your experience. Can totally relate to how uncomfortable those stupid gurneys are, and how frustrating it is to be parked in the ER for hours. I haven't been on for awhile, not sure if you've posted since this, but hoping you're feeling better by now. Have they followed up on your abn. EKG yet? I hope you don't have serum sickness, but more I hope you don't have cardiac problems. Have they mentioned doing a Persantine/Cardiolyte stress test? That would probably be the doc's first choice, tho' there are plenty of other types of stress tests. Hoping you're feeling better by now, and I'm just way behind as usual. Bets
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