Thanks to Prednisone use?

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Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/14/2007 8:13 AM (GMT -7)   
I went to see a orthopedic guy yesterday because I have been having alot of problems for years with my left knee.  For the first few years it would always lock up on me.  Then this past year it started really hurting more.  My family doc had sent me to a Rheumy because of this and alot of other joint pain.  She diagnosed me with inflammatory and osteoarthritis related to the Crohns.  She discovered I had some bursitis in my knee which she gave me a cortisone shot for, which helped that part of my knee immensely.  But my knee (kinda under and to the right side of the left knee) kept hurting alot, so she ordered a MRI.  Turns out I have a torn meniscus, hence the visit to the orthopedic guy.  I will have arthroscopic surgery on it to fix it in about two-three months.  No biggie.
 
But what he found that was interesting is that my knee joints are worn down much more than they should be for someone my age.  Looks like someone knees 15-20 years older than my current age.  He said I will definetly have some problems as I age.  He also doesn't know if its due to Crohns or genetic (mom had to have Knee replaced).  Personally I think its from years of prednisone use.  I already have osteopenia, so looks like the evil Pred has hit another area of my body.
 
Anyone else seen alot of abnormal wear on their bones like that?  I tell you with this disease if its not one thing, its another.  I don't know if I am going to allow them to use Pred on me anymore unless its absolutely necessary and I am going to make sure its only for a short time if they do.
 
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


thenay
Regular Member


Date Joined May 2006
Total Posts : 167
   Posted 12/14/2007 9:51 AM (GMT -7)   
How long did you take prednisone? High doses too?

It's very like prednisone caused it, depending on how long you took it for and the dosage. Prednisone is an evil drug long term, even short term!

I can't wait to be off it, thaknfully I was on it only for 3-4 months once i'm off. Hopefully that's not too long to cause damage to me.
I've been taking calcium, vit d and mag supplements to avoid bone issues. My knees locked up on the first week on pred. Kinda scary stuff.


Male DX with CD May 2006 @ age 22, Colonoscopy and SBT
Taking Prednisone 7.5mg (tapering), Imuran 150mg, Atenolol 25mg for fast heartbeat (thanks Pred!)
Have used Pentasa, Entocort in the past
 
Have a safe and happy holiday everyone!


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/14/2007 1:20 PM (GMT -7)   
Well I have had Crohns for over 32 years and taken Pred many many times.  So I almost bet that it is the evil cause.  Take your calcium.

Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


bunnypucker
Regular Member


Date Joined Dec 2003
Total Posts : 494
   Posted 12/14/2007 1:29 PM (GMT -7)   
it is most definitely the pred, it is evil. my pred history is about a year at 60mgs and about 5 months this time around. im only 26 years old and i have osteopenia as well. i know its the darn pred that does this.
good luck with your scope, i had one and it was no big deal
 
 
bunny
Crohn's Disease Diagnosed 12/24/03 (Thats Right, Merry Christmas to me!)
Bipolar
Probable MS
 
Im 26 years old, and am currently only taking remicade, protonix and evil prednisone for my CD. am on quite the cocktail for my BP however: Geodon, Lamictal, Celexa, Buspar and Klonopin.
Im also on lipitor for high cholesterol caused by a prior BP med. im on fentanyl patches for pain also, and i take some meds prn for my allergies, asthma, and migrianes.
 
"We are all worms but I do believe i am a Gloworm"
^always makes me smile^
 
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/14/2007 6:04 PM (GMT -7)   
Hi Hope the operarion makes it better for you what kind of results can you expect from it? lol gaol

immunosci
Regular Member


Date Joined Jun 2006
Total Posts : 326
   Posted 12/15/2007 6:18 AM (GMT -7)   
Nanners, I'm sorry to hear about how much damage has been done to your knee. That sounds really painful. I've had arthroscopic surgery 3 times for a torn meniscus. Twice on the left knee and once on the right knee. It's a pretty easy surgery. If you have any questions let me know. Good luck with the surgery.

Jen
-Formal diagnosis of Crohn's Disease in ileum in July 2005.
-Experienced what were most likely flares for 12-15 yrs.
-6-MP, protonix, cymbalta, wellbutrin, trazadone, miralax, allegra, celebrex


MDdave
Regular Member


Date Joined Nov 2007
Total Posts : 74
   Posted 12/15/2007 7:40 AM (GMT -7)   

Good luck Nanners,

 Before I was in my Ileostomy in 95-96 I had rheumatory arthritis went to get bone density done and found loss of calcium.

I was on pred from 1980-1996 mostly 20,30,40mg and only went to 60 or 80mg for flare ups, pred was the only thing back then to keep me under control the sulfur meds they had didn't do anything for me.

As a young 13 year old in 1980 going into puberty one of the long term side effects was that preds stunted my growth...I am 5'6 and could have likely been 2-3" taller.

Also kiddney stones were a battle for me from 94-96 passing 2-3 a year. With crohn's there are a lot of systemic medical problems that come with the disease like rheumatory arthuritis,kiddney stones, fistulas, were just a few problems I had.

My neighbor also has crohn's and he once showed me a small pill bottle filled with kidney stones he had passed in one year also his adrenalin glands are shot from the preds and fears going in to his pool as it is cold and he would go into shock.  He was on preds for a long time and he is a mess with rheumatory arthritis (joint calcium is gone) I know he takes pain meds just to cope with everyday life.

 

It's a shame b/c both he and I have had crohns for a long time and the only thing doc's knew how to treat it was with preds and the doc's admitted back then they don't know the long term effects it will do to the body.

 

 The cause is most definitely the pred eating the joint calcium away.

 

Dave 

 

Post Edited (MDdave) : 12/15/2007 7:55:42 AM (GMT-7)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/15/2007 9:11 AM (GMT -7)   

Hey Dave,

I know what you mean.  I too come from the era that all they ever treated it with was Pred and Azulfidine.  I think I will refuse the Pred from here on as it is too hard on my body.  I know I can never say never, but will avoid it if all possible.  It has affected my eyes and joints the most.  I take pain meds daily just for my joint aches and pains.  I feel older than I am.  Life with Crohns, ain't it grand!

Not worried about the arthroscopy, many have done it and I am hopeful for some relief.  He said it won't be 100% but much better than it is now.

Thanks for all the good wishes. 


Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


crohnie42
Regular Member


Date Joined Dec 2006
Total Posts : 371
   Posted 12/15/2007 9:30 AM (GMT -7)   
I developed avascular necrosis in both knees from prednisone. I can no longer take it
Michele
~~~~~~~~~~~~~~~~~
 
Female Dx'ed with Crohns Disease in 1992
Been on every med for crohns that exists
Several Fistula surgeries
Dx'ed with Colon Rectal Cancer March 2007
Dx'ed with Stage 2 Vulvar VIN
On Chemo and Radiation for 6 weeks
Using Humira with excellent results
IN REMISSION~~~!!!!


wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 390
   Posted 12/15/2007 8:30 PM (GMT -7)   
I have osteopenia as well, I take lots of calcium & vitamin D in general and especially while I am on Prednisone, I can practically feel my bone mass depleting.  eyes  

Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 12/16/2007 9:42 AM (GMT -7)   
I've been on pred for 15 years and haven't really been able to stay off of it. I'm only 35 and I have osteoporosis. They told me that I'm 4x's more likely to have a spine problem than someone my age and 11x's more to have a hip problem. It IS the evil pred that has done this. HOWEVER, I took Fosomax for a year and where most people see a 1-2% increase in bone mass, I had a 7% increase. So, if it gets bad for you, you might consider Fosomax or Boniva or a bone builder like that. And yes, take calcium!!!

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10392
   Posted 12/16/2007 10:25 AM (GMT -7)   
Hi, I'm visiting from the UC group. After 5 years on Prednisone or Entocort, I had a stress fracture (I still don't know how it happened) in both of the bones in my lower leg from osteoporosis. I also have had two shoulder surgeries for avascular necrosis related to the steroids.

My colon will be in the pathologist's office before I take any steroid again.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
 
Intolerant to Asacol and rectal mesalamine preparations.
 
On Prednisone 2001-2006 with only short periods off. 
 
Current meds are Colazal, Azathioprine and Remicade. In remission since April, 2006. Remicade has been my wonder drug.
 

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