rant about waiting

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Veteran Member

Date Joined Apr 2006
Total Posts : 1665
   Posted 12/14/2007 12:58 PM (GMT -6)   
do you feel like all you do is wait? for tests to be scheduled, prepped, happen, results, appt, new test, new med, and on and on. I have spent almost two years waiting and still with no answers. thanks for being there to lsiten.
yp, who is currently WAITING to hear about her bowel transit marker test!
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil and vicidin as needed.

Forum Moderator

Date Joined Jan 2004
Total Posts : 3296
   Posted 12/14/2007 1:46 PM (GMT -6)   
Instead of "patients," maybe they should call us "patience."

Jon,  Co-moderator for Crohn's Disease and Depression forums
"The man who insists upon seeing with perfect clearness before he decides, never decides. Accept life, and you must accept regret." -- Henri-Frédéric Amiel (1821-81), Swiss philosopher, poet 
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Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/14/2007 3:27 PM (GMT -6)   
That was a good one Jon. I believe Crohns is the disease of hurry up and wait!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined Jan 2004
Total Posts : 598
   Posted 12/14/2007 3:53 PM (GMT -6)   
I can identify completely, not so much now but in past years. Always waiting for a consultation appt with some specialist, always waiting for test results, waiting to see if a med works or not. This has been going on for 10 years. I'm now winding down but its not over. I'm scheduled for a barium swallow the end of December .They think I might have reflux without any of the usual symptoms. That would be typical of me. I had H.pylori and had no stomach symptoms and probably crohn's without gi symptoms for a long time.

The waiting got better when I forced myself to make the appt and then forget about it. I realize this isn't easy to do until a certain amount of time and frustration has passed.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft

Regular Member

Date Joined Mar 2007
Total Posts : 301
   Posted 12/14/2007 4:39 PM (GMT -6)   
hehe Nanners...crohns is the disease of hurry up & wait!

yp, I am sorry to hear that you are still waiting for your results.I sure hope that you find out soon.

I am a very impatient person who hates to wait for anything(I am currently working on this tho,haha).I am scheduled to have my first mammogram next week,I figure that I might go off the deep end waiting to hear the results.
Official Crohns DX-march 2004.Pentasa 4000mg,B12,Probiotics
         1 resection
Cardiomyopathy DX-may 2004.Coreg,Altace,Digitek,Lasix,Potassium,very low-sodium diet

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 12/14/2007 7:28 PM (GMT -6)   

I am sorry you are having to hurry up and wait............

We have been fortunate and have always had the same surgeon, GI and Internal Med physician in the 32 year history of my hubbies Crohn's Disease.

No waiting, and the tests were always indicative of what was expected, Crohn's as well as an abcess one time.

I will have to say we have been fortunate and I pray our luck stays with us.

My heart goes out to all of you and I live with this disease every day.

Everytime my hubby gets a fever or gut ache I am sure our luck has run out, but we are holding.

Take care.


Moderator Anxiety ~ Panic Disorders
*~* Not a mental health professional at all *~*
Dx: Anxiety/Panic, Depression, GERD, Osteoarthritis
*Wife of a Crohnie*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 12/14/2007 7:39 PM (GMT -6)   
Hi I was always in a hurry for Santa to come years ago, I guess it gave me a little patients but not alot .One thing for sure you will get the results hope it's soon for you. lol gail

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 12/14/2007 7:51 PM (GMT -6)   
ROFLMBO....good one Gail........

I still wait for Santa...........

I also am lucky I have really had No problems with waiting for tests exams ect.....
Nor have I ever waited a long time for any results ...........

I am sorry this is happening to you YP and I so hope you get these answers Dang soon ya know
Enough is enough .IMHO.

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Veteran Member

Date Joined Mar 2005
Total Posts : 2486
   Posted 12/15/2007 3:35 AM (GMT -6)   
Hey Prof, it totally blows doesn't it? All this waiting...for what? I wonder what it is we're waiting for sometimes...like all of a sudden they'll be like, dingalingaling! "Woah, dude, we totally missed that! Silly us!"

Sigh...that'd be nice, eh?

You hang in there. I'll hang there with you. How 'bout that tree, over there? Looks like a good place to hang.
Co-moderator - IBS Forum

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