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Regular Member

Date Joined Nov 2007
Total Posts : 41
   Posted 12/16/2007 12:38 AM (GMT -6)   
my dr's all seem to think that i have crohns BUT they all say that they cant be 100% sure. if its not crohns, what is it?
Diagnosed with cd in Sept. 2007 after an E.R. visit and surgery on a fistula. Problems for as long as I can remember...


Current Meds:

Pentasa ... Pred ... Nexium ... NeLuv ... Humira ... Cipro ... Canasa ... Yasmine (bc)

Veteran Member

Date Joined Apr 2006
Total Posts : 733
   Posted 12/16/2007 12:50 AM (GMT -6)   
The only other guess I would have is Ulcerative Colitis. I thought there was some type of biopsy to test which it is but not sure...
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade
2007:Increased Remicade dosage-660mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia
Current meds: Remicade 660mgs every 6 wks ( I may be developing antibodies?), Lomotil, Darvocet, Clorazepate, new meds: Prograf, Cymbalta, Lyrica

Forum Moderator

Date Joined Mar 2003
Total Posts : 10382
   Posted 12/16/2007 1:29 PM (GMT -6)   
There's a new line of thinking in the GI research community that UC, Crohn's and some other types of colitis may be a continuum of diseases of the same spectrum. In other words, much more alike than previously suspected. I know a lot of people on the UC forum who have started out with a UC diagnosis and it's been changed to Crohn's. There are also some who have gone the other way - from UC to Crohn's. Apparently it can be tricky to differentiate between the two.

At this point, you're receiving treatment that would address either problem, so I hope you're soon feeling better.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Intolerant to Asacol and rectal mesalamine preparations.
On Prednisone then Entocort 2001-2006 with only short periods off. 
Current meds are Colazal, Azathioprine and Remicade. In remission since April, 2006. Remicade has been my wonder drug.

Veteran Member

Date Joined Apr 2006
Total Posts : 1665
   Posted 12/16/2007 6:17 PM (GMT -6)   
I am the freak who was totally positively diagnosed with crohns and then undiagnosed and have spent the last 18 months with no idea what is wrong, so confusion with a diagnosis is not unheard of. just be glad they are trying, that is all I can do! :)
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil and vicidin as needed.

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