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dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 12/17/2007 4:16 PM (GMT -7)   
Ok sort of a continuation on the last post but sort of a new one.  I am finding that today I have continued to be nauseous all day.  I am not having pain as severe as it has been recently and again the fistula is not draining feces at this point just blood and pus.  Some of the pus from overnight appears to be a darker color I am unsure if it is mixed with small amounts of stool or if it is mixed with the blood making that color on the gauze.  I have not hade "true feces" come out of the fistula in a few days.  I find on days when I do not have a BM that is when I see an increase in stool from the fistula but before even when I was on the TPN I was having D every day and still had a large amount of drianage coming out of it.
 
This is the first day where I have continued the nauseous feeling throughout the whole day.  I had some tea when I got home and some room temp water.  I also had pastine earlier with some butter on it.  I just made hamburger helper for dinner...I am not lactose intolerant.  I dont know why the feeling wont pass.  I am not getting the increased burping as I did earlier  and not having the salivation that precedes the vomiting.   I am totally exhausted but find when I finally get into bed I have difficulty sleeping. 
 
Right now I cannot take my vitamins or iron since that is what my instructions for my colonoscopy say...says 5 days before stop all that and pepto bismol  it also lists other things to not have within the 5 days prior to the test.  I just feel blah all the time not sure if it is from the pain meds, the possibility that maybe after all of this I am begining to actually heal with the increased dose of humira...maybe it is the increased dose of humira doing this to me.  I do my injection every friday in the early afternoon.  You think I would feel the absolute worst witin the 2 days following and I am  not vomiting daily but I do get the burps that taste like bile.  The salivating is not something that happens on a daily basis like it did when I had my ostomy done, weird how I would have the pre vomit salivation daily from about mid april until my reversal in june.  Every morning I was over the bowl wondering if it would turn into more thinking maybe if it did take the next step I would feel better...but I wasnt one to ever feel so sick I would make myself vomit...ugh I hate vomiting more than pretty much anything.
 
I am just so confused typically the fistula slows down its drainage looks like it is going to heal then bam looks like a blister then the wholemucosa thing popsw out again the drainagae increases...slowly the mucosa receedes then the vicous cyclke begins again.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 12/19/2007 9:04 PM (GMT -7)   
I know this post is a couple of days old, but I hate seeing someone go through this without even a "I know how you're feeling..."

I had fistula/abscess problems around my anus for a long time. I was a couple surgeries in before they started rx-ing different meds to try to help (but they hadn't figured out that it was crohn's yet), and I think the meds just made the over-all picture worse. The Asacol was the worst for me. It made everything I ate taste like lighter fluid. This did not help my nausea and dry heaves!

So, are you just not taking ANY meds at all in preparation for the scope? Or are you still on pills? Any change, whether adding or subtracting, had a tendency to make me nauseated for several days. Plus, the stress of knowing that a Colonoscopy is around the corner probably doesn't help!

My fistula always drained more (often feces) when I had D. In order to slow down my bowl movements and give my body a rest, I usually found relief by just eating chicken broth and jello. My fistula always seemed to appreciate this, as the D really seemed to make it mad.

Good luck with your scope... and I hope you and your doc figure out something to give you some relief!
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade only, every 16 weeks.
Digestive enzymes, and probiotics.
Doing pretty darn good, all things considered. :-)

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

~Marianne Williamson


packfan
New Member


Date Joined Dec 2007
Total Posts : 18
   Posted 12/20/2007 8:55 AM (GMT -7)   
Hope you feel better. Seems like sometimes periods of nausea just happen with no explanation. Im sure the stress of the colonoscopy is not helping what so ever. Please let us know how it goes

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 12/21/2007 6:32 PM (GMT -7)   
The results showed that the Humira has put me in remission there is still one small ulcer that is healing my GI took a biopsy of that, the ileum...I didnt have all of my ileum removed in my resection this past year, and the anastomasis (sp?). The fistula was as clear as day the GI also had a fistulagram result from the week before to help him locate the fistula in the transverse colon too so that made that go quicker. I have some pics he took so that I may bring them to my surgeon next week since he will be doing this 4th surgery on me. I asked why I am in so much pain still if I am in remission he told me that I have some adhesions in my colon from the surgeries. He said that can be fixed when the surgeon goes in to fix the fistula.

I have had every other way to try and treat the fistula and surgery is the absolute last option in all doctors eyes but it is what I must do since it isnt getting better with any other method. The nausea has been going on more noticably with protonix I think. I am going to bring that up with my surgeon this upcoming week and I see my GI in the office 2 days after I see my surgeon. I only started back up on that when I went on TPN since I was getting heartburn a lot when I went on the TPN. I tried to stop the protonix again when I went off the TPN and the heartburn was there and I was popping tums as if it were candy so I went back on protonix. I was not on Protonix for a few months and in those months I dont recall having the nausea issues and if I did it wasnt daily it was more if I had a lot of post nasal drip. I get that nausea feeling when I have PND a lot but it is winter here so my PND is better but the nausea is worse I have not vomited in a few months I did the other day prior to that it was maybe july or august.

Maybe it is being caused by the adhesions they found who knows...


I was on the clear liquid deal along with the TPN for 3 weeks and it didnt help the fistula at all so thaks for the responce and advice spiders but we have tried that that is the last step before surgery.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 

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