My poor GI's worst nightmare

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 12/18/2007 5:58 PM (GMT -7)   
Yes, that'd be me - but I tried to take it easy on him today.

He told me my scopes looked good, even into the jejunum, that the biopsies were clear, no evidence of celiac or IBD or collagenous colitis or tumors or aliens. I mean, it's really good to know that I'm not going to pull a "Space Balls" move and have a little slimeball jump out of my stomach and start singing ragtime. :) However, this still leaves us to the conundrum of: why do I weigh 118 pounds, down from 135 in September? Why do I get the same epigastric pain when he palpates my small bowel every time? Oh, and that ever-elusive answer of why do I have diarrhea 15 times a day?

Well, he did say something about the possibility of a herniation of my small bowel into the mesentery (the tissue that attaches your intestine to the posterior abdominal wall). But he and I both think that is pretty unlikely. So I will pass on the laparoscopic surgery for now, thank you very much. I give him props for thinking of that possibility, though - how random, yet interesting!

In the meantime - this is the best - his goal is to make me constipated. I'm not even kidding you. He asked if I ever pushed the cholestyramine enough to constipate myself (I said to him, "And what is that term again, constipation?"). So that is what he wants me to do. And also take VSL #3, which is a hot new-ish probiotic with 8 strains of bacteria that is supposedly undergoing FDA approval for treatment of IBD, SIBO, and IBS. And drink Ensure and always have Gatorade on my person. He said with as much diarrhea as I have, a little constipation wouldn't hurt.

Now, after he palpated me, I have a terrible tummy ache. That always happens after he palpates my upper abdomen...it's sore for the rest of the day. I don't usually have too much pain other than when he does that, and it's only in my epigastric region, nowhere else.

Okay, that's my update for the minute, thanks for listening :)
Co-moderator - IBS Forum


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 12/18/2007 7:24 PM (GMT -7)   
Hey Sarita,
I just wanted to ask what is up with the multiple posting? You got a lot tonight!

LOL
Matthew

PS.
I thought you long ago knew you'd always be the mystery patient.

Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 12/18/2007 7:27 PM (GMT -7)   
OK, delete that comment! Man, my meds are fogging up my head tonight! My apologies, you were making replies. Which begs the question: How can I make needed responses of my own when the Anti-Spam filter kills them?!

Sincerely,
Matthew

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4095
   Posted 12/18/2007 7:41 PM (GMT -7)   
Hi Sarita,
I hate hearing about how sick you've been with no diagnosis....it drives me crazy, so it must really drive you crazy!!!! What are your medical options? Can you afford to go to Mayo Clinic, or some other major medical mecca? Something is absolutley wrong (I know you realize that!) and I really wish you had a decent diagnosis so that you can get well. I hope you are not getting caught up with not wanting to insult your doctors because you work with them or something. It is time to be selfish and put yourself first. I don't know if this is even your issue, but I know that when you work in the medical community, the relationships can get complicated.
48 yr. old female, diagnosed with Crohn's Sept-Oct. 2007


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 12/18/2007 7:53 PM (GMT -7)   
Have I missed something here? Where's the various looks at the small intestine? SBFT, CT Enterography, etc.? There's also the camera pill, the double balloon endoscopy ... ??
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 12/18/2007 8:15 PM (GMT -7)   
Matthew, you are nuts. But you are like the candied variety that are so yummy. That is a compliment.

Hey C2, good question. Well, I had an SBFT a couple years ago, that was my first test. It showed some non-specific narrowing in the duodenum. However, if you have an abnormal SBFT, the next step is an EGD. My EGD was normal except for some gastric "erosions" the first time that I suppose have healed by now because they didn't mention them after this last scoping. I had a CT that showed some abdominal fluid that was likely due to my gallbladder surgery, and a negative capsular study (which was done two years ago). None of these findings should cause enough diarrhea to lead to malabsorption of nutrients or potassium loss or such drastic weight loss.

And gumby, it IS weird being a medical student who can't get an answer for a serious medical problem, and it just makes me uncomfortable, like, "Why the heck am I such an alien?" I wouldn't mind being the doctor that dealt with the Mystery Patients, I just don't want to be one myself (well, who does?). Sometimes its worse for med students because the docs either think: a) we are immune to serious health issues (yeah, that makes sense) or b) we definitely hypochondriacs because all we do all day is read about medicine. I'm lucky that I don't think my docs treat me this way; overall my docs are all very good, very helpful, and if I were in their situation, I'd probably be proceeding the same exact way.

Blarg!
Co-moderator - IBS Forum


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 12/18/2007 10:24 PM (GMT -7)   
Hmmmm-sorry you aren't doing so well, wish I had something to offer. I would watch the gatorade since it has so much sugar. If the goal is to constipate you the sugar isn't going to help. As long as we are on this topic, if you are constipated wouldn't that be more of a condusive environement in the intestines for even more bacteria growth? I mean it is warm & toasty in there and feces hanging around any more than the normal "loose term" time frame is sure to build more bacteria wouldn't you think?

I'm also known as my GI's "problem child'.
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 12/19/2007 7:34 AM (GMT -7)   

HI

I think I remember you posting awhile ago that your docs didn't want to try treating you for IBD until all the testing was done in case it complicated the picture.  Why not do a trial of medication now and see how you respond?  They can't find positive evidence of crohn's in me either (although I have some of the "extra" stuff like joint inflammation) but my gi started me on pentasa and most of my gi symptoms went away and the ones that didn't (i.e.gurgling) are greatly improved. 


10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 12/19/2007 8:38 AM (GMT -7)   
I ditto root. I am not a clear cut case either but my doc put me on asacol first and then pentasa and it has helped me tremendously. I did one round of entocort in a really bad flare and I responded to that as well. My doc basically said if I respond to all these meds and have high promesthus markers than I guess its crohns!
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 12/19/2007 8:41 AM (GMT -7)   
no way! I am so sorry. we are quite the pair, yes? I would be so happy to just have a clear idea of what is wrong, so I sypathize a bunch.
are you all over your flu bug?? hugs, yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil and vicidin as needed.


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 12/19/2007 10:00 AM (GMT -7)   
Well, I've never been a 100% definite either, except that I have IBD (of some type) but I guess that still puts me a bit ahead of you Sarita.
As for nuts, heck, I don't suffer from Insanity. I ENJOY EVERY MINUTE OF IT! LOL.

Matthew
Still hoping you get a dx one of these days..

Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 12/19/2007 10:45 AM (GMT -7)   
Well, so far so good today with the increased load of cholestyramine, I've already been awake for half an hour and haven't used the bathroom! SCORE! Maybe this stuff will do the trick after all.

Oh, and the best part - those two exams I took in anatomy and histology on Monday? Right after I was sick as a dog? Yeah, I blew both of them away (i.e., I passed)! WAHOO! It's nice to know I'm still afloat here even though I am a garden hose!
Co-moderator - IBS Forum


rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 12/19/2007 11:52 AM (GMT -7)   
Another thing I thought of is that it could be microscopic which won't show on a scope and the biopsy will only be positive if it hits the right location. In crohn's, that is hit or miss if you can't see it.  Meanwhile, untreated, it continues to get worse.  I know mine did- granted it took awhile. I went from no gi symptoms (other than pain) 10 years ago to definite gi symptoms just before I was treated this past spring.  Isn't the med you are taking treating the symptom, similar to how loperamide would.   
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 12/19/2007 12:11 PM (GMT -7)   
Yay to passing grades!!!!
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


malakai
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 12/22/2007 12:23 AM (GMT -7)   
yay to passing grades and here a sprinkling of wishes that your tum tum cooperates with you soon.
Newbie - 35 yrs old Diagnosed: 08/03/07
Meds:
Asacol 3x day
Imuran 50MG 3 x day
Lamictal 125 MG/day for bioloar II


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 12/22/2007 2:15 AM (GMT -7)   
Well, good news and bad news - the good news is that I passed my second exam of the week (took physiology this morning - they graded it right away for me, aren't they sweet - I got a B!). Now I have 10 days off.

The bad news is, what I thought was a miracle cure isn't so miraculous after all. I think what happens is that when "Aunt Flo" comes to visit each month, I tend to get a little more "bound up." I guess the radical decrease in estrogen and progesterone at this stage of the cycle helps me out. Aunt Flo hasn't visited me as frequently this year, so I kind of forgot about that side effect. Now that she's made her ceremonious departure after a 3-day visit, I am again Garden Hose Central, cholestyramine/VSL notwithstanding.

Sometimes I ask myself, why am I giving nearly-daily updates about my diarrhea saga? And then I remember...oh yeah, you guys'll hear me out. And that feels good. Thanks.
Co-moderator - IBS Forum


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 12/22/2007 9:00 AM (GMT -7)   
I love to hear your saga although I wish you were better!! If hormones help is there away to do that artificially? I guess you could only artificially increase hormones not decrease them. I am not suggesting a life long visit from Aunt Flo, just the hormone to cause the benefit.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 12/22/2007 10:16 AM (GMT -7)   
dear Sarita,
congrats! on your exams!  {i always HATED a lull of days off...always lost "my groove"...seemed like once ya' got back into rotations you've already forgot everything & where everything is}...
i read that you've had biopsies taken, w/ the colonoscopy did your GI do an endoscopy also?
just a thought b/c sometimes they only do the colonoscopy.  the bulk of the CD was in my small intestines; and same thing...massive diarrhea & i went from 115pounds to 79 pounds in a month.
hang in there!
erin
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation. MVP & Tricuspid Valve Prolapse. Kidney Stones (oh joy). 
Meds: Remicade 600mg Q3weeks; Intra-articular knee injections; 6MP; Mesalamine; Prednisone; Entocort; Meclizine; Azithromycin; Tigan; Reglan; LidoDerm; Diazepam; Diclofenac; Dilaudid; OxyContin. 


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 12/23/2007 6:18 AM (GMT -7)   
For me, and this was YEARS ago, I always knew when Aunt Flo was going to stop by because a day or two before she appeared my Crohn's would flare and I would do the "big dump" (I was always prone to constipation, not diarrhea). Those one or two days before her visit I would "clean out" w/4-6 or more visits to "the throne", each visit getting looser and waterier.

At that time they suggested going on BC pills to stop Aunt Flo's visits, but I ended up having an emergency resection before we had the opportunity to try that.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 02, 2016 11:18 AM (GMT -7)
There are a total of 2,731,693 posts in 300,951 threads.
View Active Threads


Who's Online
This forum has 151123 registered members. Please welcome our newest member, Joyce Apuzzo.
372 Guest(s), 9 Registered Member(s) are currently online.  Details
JayMot, tickbite666, mtm3461, reminder, panicgirly, ChickenArise, Tim Tam, straydog, multifacetedme


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer