I finally got to see my doctor again today. He was out with a death in the family. He has decided to try and taper me off of the pred again and to refer me to the UCSF Crohn's Colitis Center. Hopefully I will be able to get some answers soon. I do expect to see anyone there until after the first of the year. At least some progress is being made.
I want to thank everyone that has supported me and offered their suggestions. I will keep you posted as to what happens.
Still not diagnosed. Problems since 2003
Prednisone 5mg every other day,
Donnatol 12.5mg as needed for cramping (doesn't help),
Prevacid 30mg daily
Depression taking paxil 30mg daily
Injured Right knee with 2 failed surgeries
Herniated disc t11-t12 being treated
I am currently on disability for my knee awaiting retraining.