My GI wants to switch me from the 250mg Pentasa to the 500mg to cut down on the number of pills, but so far I'm resisting. The 250mg are big enough, thank you!
At the moment I take:
8 Prednisone, 16 Pentasa, 3 Flagyl, 2 Cipro, 3 Imuran, 2 Rocalcitrol, 1 potassium, 1 B-complex, 1 probiotic, Ambien as needed, Tylenol as needed, and 1 Actonel on Saturdays. On bad days it can be as much as 43 pills. Yes, I rattle when I walk! I have my second Remicade infusion this afternoon, and I'm hoping to be able to start my Prednisone taper, so fewer pills soon!
the most i've taking is 14 pills.
6 in the morning and 8 at night.
this was when i was taking 60 mg. of pred. and was taking off and put on 100mg of Imuran
Crohn's disease diagnosed in 1974 at 13 years of age. First surgery at 18 removed entire colon, rectum and 3 ½ ft of small intestine resulting in an ileostomy. Multiple surgeries since, with only 4-5 ft of small intestine remaining at this time. What remains is in bad shape with two severe fibrotic strictures. Very painful. Any further surgery would likely put me on TPN, which I've been fighting to avoid with anti-motility meds and pain management. Silver lining - My hubby of 21 years is the kindest man in the world and my hero, and our 18 year old son is a constant source of pride and joy for both of us.
OMG, you are all amazing. No wonder some people cannot remember if they have taken their meds.
You have true grit for sure. I take a lot and I don't have Crohn's, my hubby does however.
You are all wise souls and I pray for a cure for this disease daily.
Hugs to All