How many pills do you take a day?

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whaley
New Member


Date Joined Feb 2003
Total Posts : 15
   Posted 12/19/2007 3:36 AM (GMT -7)   
This is my second flare up of CD and I've been put on Pentasa (8 tablets a day) and Prednisolone -40g (8 tablets) to be tapered down over coming weeks. 
 
This is a lot for me as I'm not used to taking regular medication and I don't suffer from anything else, but I'm guessing somepeople are popping massive amounts of pills all over the place!  What's the maximum amount you've been on in a day?
 
Does any body else have real trouble swallowing Pentasa as they are so big?  Is there a smaller/easier to take version?
 
 

chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 12/19/2007 7:23 AM (GMT -7)   
Are you taking the 500 mg of pentasa? I know those are big, but the regular ones aren't big. Maybe you can switch to those....it would be more pills, but not as big. I only take 5 pills a day now, but I am on remicade. I can't even remember what I used to take when I was on pentasa....it was 16 pentasa I think.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/19/2007 8:17 AM (GMT -7)   
I have had Crohns for over 30 years. I think I have taking as many as 40 a day when I was at my sickest. Now I take between 20-25 depending on what kind of day I am having. Its something you will have to get used to with this disease. You don't always have to take alot, but during those sick times you do. Funny thing is I can get most of those down at one time. A talent we Crohnnies have to learn I guess.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 12/19/2007 8:21 AM (GMT -7)   

My GI wants to switch me from the 250mg Pentasa to the 500mg to cut down on the number of pills, but so far I'm resisting.  The 250mg are big enough, thank you!

At the moment I take:

8 Prednisone, 16 Pentasa, 3 Flagyl, 2 Cipro, 3 Imuran, 2 Rocalcitrol, 1 potassium, 1 B-complex, 1 probiotic, Ambien as needed, Tylenol as needed, and 1 Actonel on Saturdays.  On bad days it can be as much as 43 pills.  Yes, I rattle when I walk! tongue    I have my second Remicade infusion this afternoon, and I'm hoping to be able to start my Prednisone taper, so fewer pills soon!


rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 12/19/2007 11:59 AM (GMT -7)   
I have developed swallowing difficulties and am having a barium swallow next week. Of course I think of the worst possible scenario (esophageal cancer) but according to my gi NP and regular NP it can be much less serious than that, i.e. reflux (not that that doesn't have its risks) I first realized I was having a problem when I could no longer swallow pills. I still don't have problems with pentasa though. Even my small pills "stick" but pentasa slides right down.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 12/19/2007 12:10 PM (GMT -7)   
a tip I learned is with light capsules like pentasa, tip your chin down, not up, and they float into the throat!
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil and vicidin as needed.


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 12/19/2007 12:12 PM (GMT -7)   
I just say lots now a days. At one point I was taking including vitamins right around 50 pills. I only am on Humira for my CD now tho nothing else was working so my GI figured no sense in staying on meds that are not doing anything. Most of my pills these days are suppliments I do take pills for other ailements too not including things such as injections and inhalers I am around about 30 pills now
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4097
   Posted 12/19/2007 3:46 PM (GMT -7)   
I take 9 250mg of Pentasa a day. I have tapered off Prednisone. I also take 5 Metamucil tabs a day, a vitamin and 3 Omega 3-6-9 pills. I never took anything before I got sick, but you do get used to multiple pills, especially it it helps!
48 yr. old female, diagnosed with Crohn's Sept-Oct. 2007


malakai
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 12/22/2007 12:19 AM (GMT -7)   
I take about 20-30 meds and supplements a day. Sometimes I get sick of taking some of the supplements so that's why I have the range of 10.

50 pills sounds kind of scary but if that is what it takes to keep the ol engine running when it's not doing to hot.... bring it on!
Newbie - 35 yrs old Diagnosed: 08/03/07
Meds:
Asacol 3x day
Imuran 50MG 3 x day
Lamictal 125 MG/day for bioloar II


croony
Regular Member


Date Joined Aug 2006
Total Posts : 177
   Posted 12/22/2007 12:35 PM (GMT -7)   

the most i've taking is 14 pills.

6 in the morning and 8 at night.

this was when i was taking 60 mg. of pred. and was taking off and put on 100mg of Imuran

 


38 yrs old male. dx with cd of ileum June 2006.
3 feet of large intestine and 1 1/2 feet of small intestine removed because of complications from diverticulitis (fall '03) i.e. hartman's surgery(starting to wonder if i was misdiagonized and was actually CD)
med. : 100mg imuran ,remicade Dec.06 every 6 weeks
 arthritis in fingers and knees


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 12/22/2007 3:58 PM (GMT -7)   
depends on the day. it's just over 20 which includes all my meds & vitamins/supplements
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
OFF PRED FOR GOOD!, 50mgs 6mp, 4000mg pentasa, vicodin for pain & a boat load of other drugs for sleep and anxiety!


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 12/22/2007 5:40 PM (GMT -7)   
I take 23 pills aday and I all so take Humira once a week.
Curley
.........
 


Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 12/22/2007 8:22 PM (GMT -7)   
Good question. I was wondering about this, as I am at 16 pills a day... my purse looks like a medicine cabinet!!


_____
40 year old female
Diagnosed this year
Been through every test possible
Can't remember names of all the meds - am on Pentasa
Just got home from ER - added another 4 pills as of today (still groggy from IV meds) eyes

Mar1anneC
Regular Member


Date Joined Aug 2007
Total Posts : 79
   Posted 12/23/2007 8:11 AM (GMT -7)   
9 colazal
1 zoloft
1 claritin
1 prilosec

and a partidge in a pear tree

Kanditron
Regular Member


Date Joined Oct 2006
Total Posts : 148
   Posted 12/23/2007 11:20 AM (GMT -7)   
I take 12 Asacol a day, 32 Mg of prednisone which is 4, a folic acid pill, a blood pressure pill, humira injections bi-weekly, and a weekly methotrexate injection too.
25 years old
Diagnosed 9/06 with Pancolitis. The diagnosis was changed 9/20/07 to Crohn's disease.
Located in my large intestines, stomach, and mouth.
Asacol 3 3x's a day reinstated 9/20/07
Methylpred 40 mg a day.

myspace.com/kandice789


Gloriousm84
Regular Member


Date Joined Nov 2007
Total Posts : 114
   Posted 12/24/2007 12:11 AM (GMT -7)   
Well lets see here...my pills are kinda akward because I just had surgery, but on average I take atleast 25 a day, and up to about 35 or so. Oh good times...15 in the morning with breakfast, and pain killers, antibiotics, and allergy pills throughout the day from the narcotics making me itchy.
What makes the pills add up is when you are on meds like Asacol or Pentasa and you need to take about 10 to make any difference. Needless to say those babies didn't work for me, and I moved on from them relatively quickly.
 
Diagnosed: 2003, age 18 (had issues with it since I was 12)
Meds for crohns: Off all meds for 1 month until I heal. Still on 10mg Prednisone, and 20mg Oxycodone every 3 hours, and Oxycontin 5mg every 12 hours.
Other medical issues: Hereditary Spherocytosis (hemolytic anemia) iron deficient anemia, polyarthralgia, ovarian cysts, Migraines
Surgeries: Spleen and gallbladder out at age 6, Tonsils and Adenoids out at age 21. Ileocecal (small bowel) resection on December 13th. Appendectomy during small bowel resection


Clcaj
Regular Member


Date Joined Oct 2007
Total Posts : 82
   Posted 12/24/2007 7:09 AM (GMT -7)   
I have to agree with Nanners.   Long term Crohnies could probably win a 'how many pills can you swallow at once?' contest.   I take 28 per day, including supplements.  In the morning, I take 12 at once, with one sip of water.  

DX: mild to moderate Crohn's for 34 years
Additional benefits: chronic anemia, B12 deficient, peripheral neuropathy, facial mylagsia, joint pain, underactive thyriod
Current meds: Colozal, Nexium, Entocort, Flagyl, steriod cream, monthly B12 injections, Neurontin, Synthroid, Effexor ER, pain meds as needed


Blaze
Regular Member


Date Joined Aug 2005
Total Posts : 50
   Posted 12/24/2007 10:16 AM (GMT -7)   
44 pills per day and 3 injections a month (humira & B12)

Developed the ability to swallow a handful at once early on :)

 

Crohn's disease diagnosed in 1974 at 13 years of age.  First surgery at 18 removed entire colon, rectum and 3 ½ ft of small intestine resulting in an ileostomy.  Multiple surgeries since, with only 4-5 ft of small intestine remaining at this time.  What remains is in bad shape with two severe fibrotic strictures. Very painful.  Any further surgery would likely put me on TPN, which I've been fighting to avoid with anti-motility meds and pain management.  Silver lining - My hubby of 21 years is the kindest man in the world and my hero, and our 18 year old son is a constant source of pride and joy for both of us.


auntkay
Veteran Member


Date Joined Apr 2004
Total Posts : 1199
   Posted 12/24/2007 3:58 PM (GMT -7)   
I never really counted them up i'm not intrested in knowing because there are to many and i hate taking meds so best to just leave it alone.

Erik45
Regular Member


Date Joined Oct 2007
Total Posts : 149
   Posted 12/24/2007 7:26 PM (GMT -7)   
Too many LOL!!!!
Crohns for 11 years
1 surgery so far
2 times in hospital for blockages
MEDS:
Remicade
Imuran
B12 Injections


Metallichic
Regular Member


Date Joined Oct 2007
Total Posts : 76
   Posted 12/27/2007 6:03 PM (GMT -7)   
16 Asacol
1 prednisone
3 Entocort
2 Levbid
2 Lomotil
1 HCTZ
1 Lisinopril
1 Cymbalta
2 Aciphex
3 Soma
1 Multi-vitamin
1 B-12
1 Vitamin A&D
1 Zinc


Pain meds and NuLev as needed, Remicade every 8 weeks. My husband takes one pill at a time, he always gags when he sees me swallow my morning bunch of 17+.
Shannon
Asthma (diagnosed at 12)
Fibromyalgia (diagnosed 9/01)
Crohn's Disease/Colitis (diagnosed 12/02)
Diverticulitis (diagnosed 6/07)
Chronic pelvic pain/endometriosis, leading to hysterectomy (9/07)
Torn rotator cuff/labrum (repair 11/20/07)
Bladder sling (8/06), cholystectomy (2/06), tubal ligation (2/06), failed ablation (3/07)
Taking Asacol, Prednisone, Entocort, Remicade, Levbid, NuLev, HCTZ, Lisinopril, Cymbalta, Effexor, Ultracet, Protonix, Lomotil, Soma, Frova, Questran powder/Carafate suspension, and pain meds.


lady1012
Regular Member


Date Joined Nov 2006
Total Posts : 304
   Posted 12/31/2007 9:12 PM (GMT -7)   
3 endocort
2 imuran
3 omega 3
3 flax seed oil
1 calcium
1 vit d

then half ounce of aloe vera juice mixed with water to swallow the pills down

seems to be working so far


I'm cute. Let's put me in charge.(happy bunny)
 
 
 anemia, b12 deficiancy, and malobsorption, moderate joint pain,severe weight loss, gastritis
 omega 3, digestive enzyme, calcium, vit d, flax oil, aloe vera juice, 9mg of entecort
 diagnosed with a CT scan september of 2007.


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 12/31/2007 9:43 PM (GMT -7)   

OMG, you are all amazing.  No wonder some people cannot remember if they have taken their meds.

You have true grit for sure.  I take a lot and I don't have Crohn's, my hubby does however.

You are all wise souls and I pray for a cure for this disease daily. 

Hugs to All

Kitt


 
Co-Moderator Anxiety ~ Panic Disorders
Co-Moderator Crohn's Disease Forum
*~* Not a mental health professional at all *~*
Dx: Anxiety/Panic, Depression, GERD, Osteoarthritis
*Wife of a Crohnie*
******www.healingwell.com/donate***
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 

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