Hello I have done a ton of reading and I’m worried out of my mind. I haven’t eaten or slept
My 3 year old little girl has tested for Crohn's disease thru blood work and she has an appointment for a colonoscopy in the beginning of January.
She had her first pediatrician appointment on October 7 for diarrhea and one time she had bad (she was screaming in agony) gas pains. I was told she had a stomach bug.
She continued to have foamy, mucusy diarrhea upwards of 5 times a day until about 2 weeks ago (almost 3 months total). Her GI put her on a low fiber, no milk “junk food” diet and now everything seems to be back to normal. She hasn’t gone potty for the last 2 days and today she had a normal bowel movement (we can go out again yey). Thry all of this she hasn’t had any pain, fatigue, fever, bleeding or any other symptoms except for diarrhea.
I just need some advice and I guess I just need to straighten my head out. Does this sound right? What should I expect?
Thank you in advance for any advice.
Post Edited (verry_sweet) : 12/19/2007 3:01:11 PM (GMT-7)
Thank you for all the replies
Gumby44 I have a feeling that it is lactose intolerance but her test came back negative. Oh well like you guys said just wait and see.
I know it’s not a death sentence and I didn’t mean to come across like that, sorry.
I have been fine around her. I believe that parents shouldn’t show weakness in front of a child and they should always (even if they don’t) know what to do. Her number one priority right now is getting some juice, playing and hoping Santa will come early lol.
It’s just really hard on me right now because I want to know everything about this disease and all the symptoms but they are so different in everybody. Plus her daddy is a truck driver and on the road, so it has been hard on us both.
I will update this thread once I find out more in January.
I am so sorry you are going through this! Poor little thing. :( I'll say a prayer for her.
However, I wasn't aware there was a blood test for Crohn's - I know I have never had one, it was a clinical disgnosis that changed from UC to Crohn's last year. What did they tell you they were doing for blood work? I thought they had to actually look at the colon to make a diagnosis.
The doctor didn’t really tell me much and now she is away until the 7th of January. I called Dani’s pediatrician asking him more about it and he said that the paperwork faxed to his office showed high white blood count and that the blood work for Crohn's came back positive. The thing is that they did a stool test before and it came back negative for everything. I would think they checked it for infection. That’s all I know as of now though.
I feel like I’m spinning in circles and I cant get an answer anywhere. That’s probably why I’m so worried and frustrated.