Just found out I'm pregnant!!!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Jun 2006
Total Posts : 33
   Posted 12/19/2007 5:43 PM (GMT -6)   
Hi there
I just found out today that I am pregnant for the first time. It is very early. I am super excited but also hesitant to get to excited because of this disease. I usually take Remicade and was due to get one yesterday but I got a positive home pregnancy test. In Canada you are unable to get Remicade if you are pregnant. So now I am due for my drug and can't get it. I am having trouble getting through to my specialist and my family doctor is on Mat leave (go figure). I was just wondering if anybody had any advice or experiences they could share with me. Anything is appreciated.

Veteran Member

Date Joined Nov 2007
Total Posts : 4054
   Posted 12/19/2007 5:48 PM (GMT -6)   
Congratulations! I was pregnant prior to my illness, so I'm not much help, but I have read that many people have successful pregnancies and very healthy babies with Crohn's. I'm sure others will chime in who have more experience than me.
48 yr. old female, diagnosed with Crohn's Sept-Oct. 2007

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 12/19/2007 6:02 PM (GMT -6)   
Hi Congr. no help here either what did your DR. say about the Rem. and preg, ? Happy for you hope you have a great preg. lol gail

Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 12/19/2007 6:11 PM (GMT -6)   
Congrats. Sorry I canot help as far as advise since in Canda you cannot get your medicine. Maybe your doc can suggest something else maybe even Humira but since you know you are pregnant they may not allow you to do that either but you do give it to yourself. GL with it all and hope you get some good answers soon about what to do as far as meds.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

Regular Member

Date Joined Oct 2007
Total Posts : 75
   Posted 12/19/2007 6:48 PM (GMT -6)   
Remicade is considered a category B medication during pregnancy and from the research thus far is considered perfectly safe. There are a lot of girls that have had Remicaid babies here-Stef comes to mind for sure. Crohns does not have any impact on miscarriage unless your Crohns is active when you become pregnant-it is a little higher rate then-but not a given. I just received a bunch of information on pregnancy/remicaid, etc.... from my doctor if you are interested. I don't really know how to e-mail to you without you posting your address though. Good luck. E-mail stef on this website for more details. Her user name is stef something....

Regular Member

Date Joined Oct 2007
Total Posts : 75
   Posted 12/19/2007 6:51 PM (GMT -6)   
It's stef17. She has a story of having two healthy babies on Remicaid.

Veteran Member

Date Joined Mar 2006
Total Posts : 1034
   Posted 12/19/2007 8:06 PM (GMT -6)   
congrats. if it is a boy can you name it bryan for me. thanks.
Crazy Harry

Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07

Veteran Member

Date Joined Mar 2007
Total Posts : 900
   Posted 12/20/2007 12:06 AM (GMT -6)   
Had 2 successful pregnancies with CD...got thru them without CD meds but it was very difficult. My babies however were worth every worry and every sacrifice.
Whatever the doctor decides to do as far as meds go...have faith that many women here have had successful pregnancies while on CD medication. You won't be alone...
Congratulations ...try not to worry too much....how are you feeling so far? You will get thru it with flying colors and so will this precious baby. '
Come talk to us often....let us know how you are doing...we'll be thinking and praying for you !
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.

Veteran Member

Date Joined Feb 2003
Total Posts : 1811
   Posted 12/20/2007 11:13 AM (GMT -6)   
WOW! Congrats on your pregnancy!!!! So, in Canada can you absolutely NOT get it at all??? Or can the doctor do a medical over-ride? It's very important for you to not have a flare and the beginning part of pregnancy can feel like a mini-flare because of all of the hormonal shifts. Get a hold of your GI ASAP and insist that you stay on your meds. Can you come to the U.S.??? :) I know that's crazy, but if you can't get REmicade in Canada while you're pregnant, at least you could come and get it here.

Let us know what your doc says. And yes, email me if you'd like! Click on my user name to get my email address.

Regular Member

Date Joined Jun 2006
Total Posts : 326
   Posted 12/20/2007 3:33 PM (GMT -6)   
Congratulation!!!! Best wishes for a safe pregnancy and a healthy baby.

-Formal diagnosis of Crohn's Disease in ileum in July 2005.
-Experienced what were most likely flares for 12-15 yrs.
-6-MP, protonix, cymbalta, wellbutrin, trazadone, miralax, allegra, celebrex

Regular Member

Date Joined Jun 2006
Total Posts : 33
   Posted 12/20/2007 3:58 PM (GMT -6)   
Thank you all for your best wishes advice. Still working through my options. I would prefer to get thru it without medication if possible. I guess my concern is miscarrying because of a flare up but I am trying not to get a head of myself. One day at a time for now. I will keep posting.

Regular Member

Date Joined Jun 2006
Total Posts : 267
   Posted 12/20/2007 4:55 PM (GMT -6)   
Congratulations on the wonderful news! I'm sure that you and the wee one will be happy and healthy throughout pregnancy...don't stress, not good for baby ;)
Happy Holidays!
Marci, 38 years old, Rockledge, FL
Dx with Crohn's disease March 2006, currently on bi-weekly Humira, daily 6mg Entocort, daily 2-3x 5mg hydrocodone (for pain), and daily 75mg Effexor, plus 3x per day heavy iron supplements for anemia

Regular Member

Date Joined Jun 2007
Total Posts : 25
   Posted 12/20/2007 5:14 PM (GMT -6)   
hi congrats on your prgnancy.i was dgnsed with crohns with my first pregnacy.no meds.struggled for 5 years to get it on track.got pregnant 2 years ago and i was really sick and on pred.i stayed on a low does of pred for the whole pregnanc
y and we are fine.so good luck and if u have any questions please just ask me...

Regular Member

Date Joined Jul 2007
Total Posts : 188
   Posted 12/20/2007 7:36 PM (GMT -6)   
I had two healthy boys while having crohns/ I was no0t taking any meds during both preg. And had no problems!!!!!
As a matter of fact, that is the best I ever felt!!

Regular Member

Date Joined Aug 2007
Total Posts : 79
   Posted 12/20/2007 7:56 PM (GMT -6)   
Congrats! I was diagnosed after my 2 babies were born, but I can tell you that in some respects I was healthier while pregnant that not. I was surprised that my "messed up" body could do what it did! I am constantly amazed at my 2 healthy kids. :-)

Regular Member

Date Joined Nov 2007
Total Posts : 165
   Posted 12/21/2007 3:05 PM (GMT -6)   
I had a HUGE flare during pregnancy starting at my 11th week. I was very sick the entire time, in and out of the hospital 6 times, on pain meds and pretty much MISERABLE!! Although at the time I was NOT diagnosed with Crohn's. I recently had a bowel resection and am feeling wonderful!! I just went to my GI yesterday and he said it is FINE for us to try to have another baby and stay on Remicade (which is the only drug that has worked for me). I am sorry to hear that your options might be limited to something out of your control in Canada. Goodluck and best wishes!!!
Fibromyalgia DX March 2003
Crohn's DX Jan 2006 (Symptoms since 96-Misdiagnosed as "female" problems-Major flare during pregnancy in 05 which lead to DX)
1st resection July 2007
Currently on Remicade/8 weeks

New Member

Date Joined Dec 2007
Total Posts : 18
   Posted 12/21/2007 10:26 PM (GMT -6)   
CONGRATS to you!!!!!!!!!!!!

I am jsut now being diagnosed but suspect I have had this for several years now that I look back. If I am correct on when this started (going by symptoms only) then I had one of my pregnancies with CD. Obviously I was not medicated and it was a rough pregnancy. The 3rd trimester was the hardest and I spent several evenings going to the hospital to get rehydrated (vomiting and the big D non stop). But my baby ended up being full term and very healthy, most importantly, I would do it all over again!

Try to keep all of your Drs in the loop about what is going on and I am sure you and the baby will be fine!

Enjoy the pregnancy, it goes so fast!!!!
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, October 23, 2016 3:13 AM (GMT -6)
There are a total of 2,710,432 posts in 298,895 threads.
View Active Threads

Who's Online
This forum has 153439 registered members. Please welcome our newest member, canmcdfw.
181 Guest(s), 1 Registered Member(s) are currently online.  Details

Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer