9ball-thanks! I need all the prayers I can get! I'll pray for your Dtr. too. 23 is so young for these problems. I was 25 when it all started and so naive and a bit of a prude. Now I bare my bottom for everyone. It gets easier
I had a bad experience with the fistula plug. It is not generally used for CD patients. I was out of work for 4 months because I got 2 abscesses in new spots when the plug closed the one fistula. Now I have 2 new fistulas (I got another when I started remicade) I saw a GI at Mt. Sinai in Nov. and he said I never should have had the fistula plug and that it was a poor desicion on my colorectal surgeon's part. He thinks I may have complex fistulas and it was not a responsible choice because the surgeon had no way of knowing where the fistulas were originating. All he did was guess.....
I have a colonoscopy on Tuesday at Mt. Sinai and I meet with their colorectal. Hoping for some good news. Maybe they can help me.
Best of luck and do your research very carefully. Address the issue of possibly getting more fistulas/abscesses and see what the surgeon says. That's my best advice. Wish I was more informed!
36 year old female. Dx'd and undx'd a few times. Was just redx'd again 04/2007.
History of rectal abscesses and fistulas (28 surgeries including abscess I & D, exploratory surgeries, 2 C-ton drains and 1 fistula plug) Count does not include self bursting abscesses.
1st Remicade infusion 6/5/07. Lots of joint pain, and a new fistula since the 2nd infusion 6/19.
Praying I'll get better soon so we can have a baby.