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packfan
New Member


Date Joined Dec 2007
Total Posts : 18
   Posted 12/20/2007 8:50 AM (GMT -7)   
I am going to see a new GI tomorrow. I have looked him up online and he is not a member of the CCRA. Does anybody know if this is important?  There are other GI's at the same clinic who's name comes up on CCRA. So does that mean that this Dr is going to know nothing about crohns?
 
~M~

luglug
Regular Member


Date Joined Dec 2007
Total Posts : 29
   Posted 12/20/2007 9:16 AM (GMT -7)   
I'm going to see a new GI tomorrow also. What is CCRA. I want to look mine up now.
Dx with Crohns Nov 07'
Taking 12x 400mg Asacol


onebloodonelife
Veteran Member


Date Joined Feb 2006
Total Posts : 842
   Posted 12/20/2007 12:23 PM (GMT -7)   
Are you from Wisconsin by chance? (Guessing by your name, packfan). Anyway, I'm originally from the La Crosse, WI area, but now up in the Twin Cities for school. I saw a phenomenal GI back at home. He was originally listed in the CCFA's physician list, but isn't anymore. Doctors have to pay to get on the list, so I don't find it to be that important. Any GI can get on the list as long as they pay, no matter how good they are.
Crohn's Disease for a year and counting
Imuran: 150mg
Humira:finally got approval on 9/21, done with loading doses, starting biweekly schedule on 10/10
Dicyclomine and hyoscamine for intestinal cramping and spasms
www.myspace.com/onebloodonelife
http://studentwebs.winona.edu/catraun4902 <--This link will be changing, but for now it works!


mcleaver1969
Regular Member


Date Joined Jun 2006
Total Posts : 267
   Posted 12/20/2007 2:48 PM (GMT -7)   
What is CCRA?
Marci, 38 years old, Rockledge, FL
Dx with Crohn's disease March 2006, currently on bi-weekly Humira, daily 6mg Entocort, daily 2-3x 5mg hydrocodone (for pain), and daily 75mg Effexor, plus 3x per day heavy iron supplements for anemia


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 12/20/2007 4:37 PM (GMT -7)   
I think it was a typo they I think meant CCFA since that is the Crohn's and Colitis Foundation of America and it is www.CCFA.org both of my GI docs have been on this list and I love my old doc as a person but he was not aggressive enough with my Tx and didnt believe me when I told him I was in a flare even after medical tests showed that I was flaring. My new GI is also on the CCFA list and he is one of the directors of CCFA. When I moved to Cali I was searching for a doc out there before moving there figuring I didnt know anyone to give me referals out there for a GI. None of the docs on the list were in the area I was moving to and the ones that were were not covered by my health insurance.

There were 2 GI docs in the city I lived in while I was in CA I chose the doctor whose name I could pronounce he was a great doctor and helped me through a flare however he was not allowed by law to script out pain meds stronger than vocodin. He was even unable to script percoset since it is on a different tier. So no all good GI docs are not on the CCFA list
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


packfan
New Member


Date Joined Dec 2007
Total Posts : 18
   Posted 12/20/2007 7:47 PM (GMT -7)   
I'm sorry yes I meant CCFA. I really don't know much about it besides its a website that my original GI Doc recommended me to. Yes I am from WI originally started doctoring at the U of M, but my primary care clinic puts up such a stink about giving me a referal every time I have to go the the doc even though they are the ones who originally sent me there. So now I am going to the Duluth Clinic in Duluth. It is good to know that being on that list is not that important. Im sure everyone can relate to the referal thing, what a pain!!!!!!!!!!!

~M~

onebloodonelife
Veteran Member


Date Joined Feb 2006
Total Posts : 842
   Posted 12/21/2007 9:42 AM (GMT -7)   
If you don't mind me asking, who did you see at the University clinic? I'm seeing a GI at the U of M clinic now since I live in Minneapolis for school.

Sorry to hear that your primary care clinic was having such an issue with giving you referrals, especially when they're the ones who sent you up there in the first place.
Crohn's Disease for a year and counting
Imuran: 150mg
Humira:finally got approval on 9/21, done with loading doses, starting biweekly schedule on 10/10
Dicyclomine and hyoscamine for intestinal cramping and spasms
www.myspace.com/onebloodonelife
http://studentwebs.winona.edu/catraun4902 <--This link will be changing, but for now it works!


packfan
New Member


Date Joined Dec 2007
Total Posts : 18
   Posted 12/21/2007 2:39 PM (GMT -7)   
Dr Chris Shepela was my doc at the U. And then there was always a fellow of course.

onebloodonelife
Veteran Member


Date Joined Feb 2006
Total Posts : 842
   Posted 12/21/2007 4:56 PM (GMT -7)   
That's who I currently see! Small world! :-)
Crohn's Disease for a year and counting
Imuran: 150mg
Humira:finally got approval on 9/21, done with loading doses, starting biweekly schedule on 10/10
Dicyclomine and hyoscamine for intestinal cramping and spasms
www.myspace.com/onebloodonelife
http://studentwebs.winona.edu/catraun4902 <--This link will be changing, but for now it works!


packfan
New Member


Date Joined Dec 2007
Total Posts : 18
   Posted 12/22/2007 9:52 AM (GMT -7)   
Oh thats cool. Keep me posted on how its going!~!!!
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