Well I am back from my ileocecal resection, and I can say that it was quite the experience. I had my surgery on the 13th, and just got home this afternoon so I was in the hospital for a week. Needless to say when I got released I was sooo ready to go home! My surgery went really well, but instead of only one stricture and active area my surgeon found 3 areas that were strictured and had active disease. Therefore I had just over a foot of my terminal ileum removed as well as my ileocecal valve, appendix, and a bit of my colon. I woke up in A LOT of pain, but the docs got it under control thank the lord. I had an epidural for pain control and I would advise anyone who is having this surgery to have the epidural... it was amazing. For the first two days I had the epidural in which was awesome because I could not feel my stomach and a bit of my back, which was great for pain management. However when my docs tried to stop the epidural pain medication because it was making me so darn itchy I was only given oxycodone, and 1mg of dilaudid which is nothing for me and I ended up being in the most horrific pain ever, and cried for 1 hr 30 min while they got a doc to order me a med and the pharmacy to deliver it. I was given a pain pump of dilaudid, and once that was in I was much more comfortable, but at first it was tough because I was playing catch up with the pain management. Of course mid way through my stay I developed a urinary tract infection after my catheter was removed, and that was incredibly annoying and uncomfortable. I also of course (sorry guys) started my period so I was in and out of the bathroom for every reason in the book. My main issue that kept me in the hospital was that the docs couldn't find a combination of oral medications that kept my pain under control, and kept me comfortable. Finally they figured it out, and I am on 10-20mg oxycodone every 3 hours, 5mg of oxycontin every 12 hours, and tylenol every 6 hours. I am also taking benadryl because all narcotics make me itchy so this also relaxes me and makes me fall asleep. Overall it was a great success, and although there were many many painful moments I was able to get through it and I am so excited to be on the other side of surgery. Oh I have about a 5 inch scar and 24 staples holding my guts in.
I have a few questions for the other people that have had surgery:
1. How long were you in pain after surgery?
2. When you had your staples removed did that hurt a lot?
3. How do you care for your wound...lotion, soap, etc?
Oh fun fact: I have another scar from a previous surgery just below my sternum and it runs just above my belly button...my new scar starts where that one ends so now I have a 9 inch scar somewhat straight down my stomach...intense
Diagnosed: 2003, age 18 (had issues with it since I was 12)
Meds for crohns: 20mg Prednisone, 9mg Entocort, 400mg Remicade, 50mg 6-MP, 40mg Prilosec, 1mg Folic Acid, 5/325 Percocet.
Other medical issues: Hereditary Spherocytosis (hemolytic anemia) iron deficient anemia, polyarthralgia, ovarian cysts, Migraines
Surgeries: Spleen and gallbladder out at age 6, Tonsils and Adenoids out at age 21. Looking at resection surgery this year.