Hi – I was diagnosed with Crohn’s Disease right before my 20th birthday...June 2007. I have been serving Active Duty in the Air Force since 2005 and now I am being medically separated. I’m cool with it because the AF lifestyle isn’t for me…it’s more suited for my hubby. My 1st hospital experience was horrible…the needles…the blood work…the colonoscopy…the tube up my nose and down my throat…horrible horrible horrible. I hate the hospital and I hate needles. Crohn’s is making me depressed and it’s hurting my marriage. This is my life and I want to control it but sometimes it is so hard and I know that I should lean on God when times get tough, but I feel like he doesn’t help out too much. My husband puts up well with the mood swings, the ruined plans because of my stomach pains, my constant complaints, and sticking by me when I’m in the hospital. I am going for another colonoscopy in January 2008 and I will be drinking Fleet’s Phospho Soda. Does anyone have any experience with this? I want to know everything about it! I only have to drink 3 oz of it. What should I drink it with? Please help me! Give me some info! How do you get over your fear of IV needles?!?! Can someone give me some inspiration to help me get through the hard times? I’m on Entecort right now and I find myself yelling at my hubby for nothing! I find that sometimes I cry and scream by myself when things go wrong and he’s not around. It hurts my soul and my spirit. My family is on the other side of the country and it’s just me and my hubby. I’m just looking for help in a time of need. I’m scared.
Hi and welcome. I'm sorry you're struggling so much- it really sounds like you're going through a hard time. You describe your husband as being very supportive through everything, but you also think that Crohn's is hurting your marriage? Do you feel like you are letting him down because you can't control what's happening? That's a very hard feeling to deal with and hopefully getting your symptoms under control will help with that. Even though you don't have family nearby, is there someone you can talk to? Maybe a trusted friend, or a counselor? Sometimes it helps just to verbalize things and have a place to vent.
As for the fear of needles, I can definitely relate. I'm not afraid of needles, but I absolutely hate them. The worst part of my first colonoscopy was knowing that I was going to have an IV put in, but it turned out not to be as bad as I anticipated. I really had to get over my hatred of needles when I went on Imuran and I had to get bloodwork done weekly, and then when I went on Remicade, which is given via IV. So many needle pokes! There are a few things I do: first, tell the person poking you that you don't like needles and they will usually be patient with you and talk you through it. Also, take deep breaths. Try not to tense your body when you're waiting for the prick, because that usually heightens your awareness of the sensation. I always clutch something in my free hand and squeeze it tightly, focusing on the object in my hand rather than what is going on with the needle. Tell yourself that it'll be over in a little bit, it's only temporary, and you CAN handle it. If you're the "it could always be worse" type of person, remind yourself that at least you're not getting a bone marrow biopsy with a huge needle being poked into your bones!
First off welcome to Healingwell. You will find alot of kind and supportive folks here. With the needles I used to be so freaked out about needles. I had allergies as a child and used to have to have an allergy shot once a week. Used to take multipe nurses, docs and my mom to hold me down. I was diagnosed with Crohns about 3 weeks after my 18th birthday. With the needles you just learn to deal with them. Now I am not so afraid of them, because usually I feel so bad I want those needles to provide me the medicine that will help me to feel better.
As to the crazy mood swings, that is pretty normal when you are on steroids such as Entocort or Prednisone. These are bad medicines for there side effects, but great medications to get our flares quickly under control. A kind of necessary evil. I have a wonderful husband. He is a very athletic and healthy man, but can become my gentle giant and when I am sick and can be so supportive of me. Its hard when you are so young. Hopefully you can educate him so he can be more understanding when you are having a bad day.
In my opinion the Fleets is the easiest prep to do. It has the least amount you have to consume to get the job done. Just chug it down and then follow it with something to wash the taste down. When whats coming out is yellowish clear, you will know you are cleaned out. The prep is the worst part as you are sedated when the actual test is done. One tip, don't wipe, but pat dry as you are going thru the prep part. Also, baby wipes without alchohol, and a diaper cream are really helpful.