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MyLife2
New Member


Date Joined Dec 2007
Total Posts : 5
   Posted 12/22/2007 11:41 AM (GMT -7)   

Hi – I was diagnosed with Crohn’s Disease right before my 20th birthday...June 2007. I have been serving Active Duty in the Air Force since 2005 and now I am being medically separated. I’m cool with it because the AF lifestyle isn’t for me…it’s more suited for my hubby. My 1st hospital experience was horrible…the needles…the blood work…the colonoscopy…the tube up my nose and down my throat…horrible horrible horrible. I hate the hospital and I hate needles. Crohn’s is making me depressed and it’s hurting my marriage. This is my life and I want to control it but sometimes it is so hard and I know that I should lean on God when times get tough, but I feel like he doesn’t help out too much. My husband puts up well with the mood swings, the ruined plans because of my stomach pains, my constant complaints, and sticking by me when I’m in the hospital. I am going for another colonoscopy in January 2008 and I will be drinking Fleet’s Phospho Soda. Does anyone have any experience with this? I want to know everything about it! I only have to drink 3 oz of it. What should I drink it with? Please help me! Give me some info! How do you get over your fear of IV needles?!?! Can someone give me some inspiration to help me get through the hard times? I’m on Entecort right now and I find myself yelling at my hubby for nothing! I find that sometimes I cry and scream by myself when things go wrong and he’s not around. It hurts my soul and my spirit. My family is on the other side of the country and it’s just me and my hubby. I’m just looking for help in a time of need. I’m scared.

 

This Is…..MYLIFE2

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Lady G
Regular Member


Date Joined Sep 2006
Total Posts : 321
   Posted 12/22/2007 2:08 PM (GMT -7)   
Fleet Phosphosoda isn't really that bad, its one of the better scope preps in my opinion. The thing with Fleet is that you can drink it down with other liquids, and I know theres a lot of people on here who can tell you different things to try and drink it down with to take away the taste, me personally used grape juice and it worked fine for me, others I've read use gingerale and those types, it's all your preference on what you like that would help you get it down. But the Fleet isn't really that horrible (in my opinion).
I've never had a fear of needles, so I can't help you there, best I say is when your getting a needle in, talk to someone, or distract yourself, I know thats what my mom, who does fear needles, just distract and look away. Hopefully someone else has advice for you there.
If your having really bad mood swings and all have you ever tried thinking about asking for an antidepressant? ALOT of us with Crohns take them to help out. I am off them now, but for when I was on them, they REALLY helped me out, for my moods, depression, helped the marriage. I know its not something we really like to have to admit we need or ask for, but they really can help you out if you feel you need the help(its a bit odd that the Entocort would give you mood swings, normally I am pretty sure its a drug with little to no side effects, at least for me it is and I think I've read others saying that too, but as said, everyone is different as well)
Also, now that you HAVE been diagnosed, alot of the initial worst is over, you likely you won't be having anything like your first experiences again, when I was getting diagnosed 10 years ago, that was my worst times and tests too....granted I was just in the hospital 3 days ago for a hugely bad flare up and that wasn't fun, but with all the initial testing and having a diagnosis, that does make the rest a bit easier since now doctors have something to work with instead of nothing.
Also welcome to this board, you will find it helps, especially because everyone here IS supportive and it helps to talk to others who really do experience all the same things as you are going through. Good Luck.
26 year old, married. Diagnosed with Crohns at 17, suspected of having for at least a year or so before that.  Alot of Crohns in my family history.  No surgeries yet. Taking Entocort.  Possible Fistula.


Zazucat
Regular Member


Date Joined Dec 2006
Total Posts : 177
   Posted 12/22/2007 3:33 PM (GMT -7)   

Hi and welcome. I'm sorry you're struggling so much- it really sounds like you're going through a hard time. You describe your husband as being very supportive through everything, but you also think that Crohn's is hurting your marriage? Do you feel like you are letting him down because you can't control what's happening? That's a very hard feeling to deal with and hopefully getting your symptoms under control will help with that. Even though you don't have family nearby, is there someone you can talk to? Maybe a trusted friend, or a counselor? Sometimes it helps just to verbalize things and have a place to vent.

As for the fear of needles, I can definitely relate. I'm not afraid of needles, but I absolutely hate them. The worst part of my first colonoscopy was knowing that I was going to have an IV put in, but it turned out not to be as bad as I anticipated. I really had to get over my hatred of needles when I went on Imuran and I had to get bloodwork done weekly, and then when I went on Remicade, which is given via IV. So many needle pokes! There are a few things I do: first, tell the person poking you that you don't like needles and they will usually be patient with you and talk you through it. Also, take deep breaths. Try not to tense your body when you're waiting for the prick, because that usually heightens your awareness of the sensation. I always clutch something in my free hand and squeeze it tightly, focusing on the object in my hand rather than what is going on with the needle. Tell yourself that it'll be over in a little bit, it's only temporary, and you CAN handle it. If you're the "it could always be worse" type of person, remind yourself that at least you're not getting a bone marrow biopsy with a huge needle being poked into your bones!


 


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 12/22/2007 4:15 PM (GMT -7)   
welcome, hon, so sorry you are going through this. you have found a good place to ask questions and find help. as for fleet, my method is a quick shoot followed by ginger ale, followed by going ack ack ack! (imagine tongue sticking out and yucky face)
this first few months is hard with lots of tests and meds and confusion. try to focus on the good stuff in your life and don't let it become your life. I tend to give people the short version of what is going on and then ask about them to get get the focus off me, as even I get bored with it all. this stuff is hard on hubbys, cuz they can't fix it so they get angry. I do my best to take care of my hubby, even when I feel like crap. it makes me feel a bit better to make him happy.
keep asking questions--things will get easier. yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil and vicidin as needed.


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 12/22/2007 11:38 PM (GMT -7)   
Welcome,We are so glade to have you and please know that you are welcome here any time and we will help in any way that we can.I would like to point this out God is looking out for you rather you know it or not you found this site.We have some very wounderful people on this board.

I understand how you are feeling I know it's no fun to be poked pricked poked I don't think any of us ever get use to it I think it's more like we have just learned to deal with it and go on. I know this is going to sound crazy but as long as I am watching the Nurse or Lab Tech that is taking my blood or inserting an IV I can deal with it. I have to know what someone is doing to me,but I sure don't like it.Please do continue to post and know that we are here for you any time.
Curley
.........
 


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 12/22/2007 11:48 PM (GMT -7)   
hello mylife2. cant help withe needle fear, never had that. but i can help with the medical seperation from the USAF, been there done that. if you have any questions or want some free although unsolicited advice please see my website below, there is a link to email me and i can , if you like try to answer some of your Q?s about being seperated and some things to do NOW before it happens and some people you need to see and talk too. good luck , randy
randynoguts 



     http://www.geocities.com/randynogutsweb/


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 12/23/2007 4:17 AM (GMT -7)   
Hi and Welcome, With the fleet I use apple juice. I now the fleet is yuk, I am already used to the needles. I have been getting sticked for a long time. I also had to get used to needles because I have to give myself a B-12 injection.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


Mar1anneC
Regular Member


Date Joined Aug 2007
Total Posts : 79
   Posted 12/23/2007 8:08 AM (GMT -7)   
Welcome. I don't like needles either. I have learned to "go to my happy place" I close my eyes and imagine I am on the beach with the waves rolling in. I also have a weird coping mechanism where I stick my finger nail on my other hand and pay attention to that pain instead of the sting of the needle. Weird but it works for me - ha ha.

I feel bad for my hubby alot of times. When I was in the hospital he was taking care of the kids, the house, working, worrying about me! I called all my friends in town and asked each of them to go over to the house and babysit the kids for a few hours so hubby could get a break. I am really glad your hubby is supportive. Just keep letting him know how much you love him! Times will get better! Antidepressants help me - I can't really function too well without my zoloft. Eeek. I hate to admit that but it is true.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/23/2007 9:28 AM (GMT -7)   

First off welcome to Healingwell.  You will find alot of kind and supportive folks here.  With the needles I used to be so freaked out about needles.  I had allergies as a child and used to have to have an allergy shot once a week.  Used to take multipe nurses, docs and my mom to hold me down.  I was diagnosed with Crohns about 3 weeks after my 18th birthday.  With the needles you just learn to deal with them.  Now I am not so afraid of them, because usually I feel so bad I want those needles to provide me the medicine that will help me to feel better.

As to the crazy mood swings, that is pretty normal when you are on steroids such as Entocort or Prednisone.  These are bad medicines for there side effects, but great medications to get our flares quickly under control.  A kind of necessary evil.  I have a wonderful husband. He is a very athletic and healthy man, but can become my gentle giant and when I am sick and can be so supportive of me.  Its hard when you are so young.  Hopefully you can educate him so he can be more understanding when you are having a bad day.

In my opinion the Fleets is the easiest prep to do.  It has the least amount you have to consume to get the job done.  Just chug it down and then follow it with something to wash the taste down.  When whats coming out is yellowish clear, you will know you are cleaned out.  The prep is the worst part as you are sedated when the actual test is done.  One tip, don't wipe, but pat dry as you are going thru the prep part.  Also, baby wipes without alchohol, and a diaper cream are really helpful.

Good luck on your tests and come here and ask any questions you have.
 
God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 12/23/2007 10:27 AM (GMT -7)   
Welcome to Healing Well
You will never find a better group of friends and supportive ppl ANYWHERE............
I am sorry you are going thru so bleeding much but I do hope you will go to Randy's site
He is a fountain of INFO there are other Vets on here as well ......Everyone is caring supportive and empathetic
STAY with us

God BLess
LYN


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Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 12/23/2007 7:56 PM (GMT -7)   
For the Fleets - GINGERALE GINGERALE GINGERALE!!! This is the most compatible drink that I have found to go with it. It makes it almost bearable, almost. It'll taste like salty gingerale. The carbonation helps too.

I'm sorry you're going through such a rough time. Keep your chin up. Talk to your husband and see what you 2 can do together to get through the tough times. I know my husband has been through the wringer with me, but he's hanging in there. It's not easy, but anything worth having takes the hard work that is needed to make it good. Remember "sickness and health"? It's time to cash that one in.

You will find a lot of good support here. Welcome. I hope things with get better soon.
Stef

packfan
New Member


Date Joined Dec 2007
Total Posts : 18
   Posted 12/23/2007 9:50 PM (GMT -7)   
I tried orange soda. Nothing makes it taste good but that might help you get it down. One more tip. Chug it down DO NOT sip it. Good luck and keep us posted.
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