rant---no wonder people with crohn's are getting flagged as drug seekers--they are using our diagnos

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malakai
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Date Joined Aug 2007
Total Posts : 277
   Posted 12/23/2007 3:12 AM (GMT -7)   
I was working in the ER today instead of my usual spot and I checked in this patient. Said he had crohn's and felt like he was having a flare. I looked up at him and said: "I am sorry man. I have crohn's too. I hope they take care of you." I even gave him the URL of this website and told him if he needed to talk to people here is us! I was wearing my mask to I protect myself from the cooties and he asked why are you wearing the mask and I said I was on immunosuppressants and needed to make sure the germs stayed away and he looked shocked. You can be that bad?

Turns out the guy isn't taking ANY meds, says he has mesalamine at home but isn't taking them, has no history and wanted percosets. Just that. I feel like crying. All of us that are in pain day after day taking 50 million pills and you have these yahoo's that come in and when you REALLY REALLY need the meds they withhold it from you because they think you are a drug seeker. Look at the file folks. You would see our 50 million tests, our 50 million visits, or 50 million pills. AND THEN YOU WIND UP GIVING IT TO THE ONES WHO DO LIE! murrrrrrrrrr Even better, since they had no job, we have a program that pays for your emergency and followup visits for 1 month, they got the ER visit and the pills for free! What about all the other people in this world that really need to go to the dr but are afraid to because they don't have the insurance and suck it up and then wind up so sick they get admitted and then have no funds to pay for it so their credit gets screwed or they die. Makes me sick.

Once I found out that they were giving him pills and nothing else I wanted to run after him and say he should be ashamed of himself. Oh and then there was his gf who came in with "back pain" and was complaining that the drugs they gave (AGAIN THEY GAVE HER NARCOTICS) weren't strong enough) again, she didn't want any drugs there. Just wanted to take some home. If my butt was going to an ER for pain management, dontcha know I would be asking for some dilaudid, morphine, SOMETHING intravenous on top of the drugs because it hurts that much and you wanted to make it dull BEFORE you went home--Hell the visit is atleast $400! Karma baby. Live a couple of days in our shoes.... Then let's see if he uses Crohn's as his disease du jour to score drugs.

Sorry you guys. I needed to get that off my chest. Am so angry I am teary eyed. Need to go to bed. 10 hour shift in 10 hours.
Newbie - 35 yrs old Diagnosed: 08/03/07
Meds:
Asacol 3x day
Imuran 50MG 3 x day
Lamictal 125 MG/day for bioloar II


CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 12/23/2007 6:10 AM (GMT -7)   
Fudge, in my case, I've yet to find a script oral pain medication that didn't make me sicker than a dog, nauseous at least, but often to the point of gagging and/or dry heaving and even vomiting. Either Tylenol Rapid Release gives me release or I am in a world of hurt!!! At that point, GIVE ME THE IV DEMEROL, works for me! Thank goodness I respond well to Tylenol!!! I'm not as thrilled w/morphine. I was just given my first dose of that a couple of years ago - instant vomiting the second it hit my IV. I refuse it UNLESS they give me phenergan at the same time. Its not my favorite pain reliever by any stretch!

I understand that IV Toradol works WONDERFULLY - but I'm not sure how safe it is for someone w/Crohn's since it is an NSAID. But the medical profession is finding it often works as well as morphine and the various narcotics w/o the potentials of those drugs.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Howlyncat
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Date Joined Jan 2005
Total Posts : 24909
   Posted 12/23/2007 7:49 AM (GMT -7)   
I dont blame you at all for being upset ........Just went thru 4 hours on toilet night before vomoittting and D for all that time and Cait ( daughter cleaning me up) .......I know as soon as I go to the ER here I get " the LOOK"

I carry all maintenaince meds with me ...........just in case and hades yep do it there

Take it home??????????????????????????

Now we have a drive thru narcotics window ......whats wrong with that picture ........

** I am like you C2 I dont do the morphine at all I am on oxycontin but with Gravol .........


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pb4
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Date Joined Feb 2004
Total Posts : 20576
   Posted 12/23/2007 10:53 AM (GMT -7)   
I don't blame you for being upset but you have to realize that people with drug addictions will go to any length to get what they need, it's not them, it's the addiction and they offend and hurt people because of their addictions but they have a serious problem and that's a whole other can of worms...just a note: I've had constant CD with no full remission for the last 16 yrs, I have never taken pain pills for my CD, I've never had stomach pains bad enough to need them (thankfully), point is we all vary with IBD, for me pain is at the bottom of my list, it's frequency and lack of total control that are my biggest issues with having CD.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Marie-Claire
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Date Joined Mar 2007
Total Posts : 900
   Posted 12/23/2007 6:28 PM (GMT -7)   
There are always a few who ruin things for people who really , really need it. There are "abusers" in every system unfortunately. I was an RN for years and believe me I have seen my share of people who fake it, and people who are truly in need,,,and are shy, or afraid to ask for what they need because of the stigma that goes with many of these situations.I suffered from migraines, and CD for over 30 years. I could spot a "faker" from a mile away just by the look on his face and his general body language. Also, vital signs don't lie. Usually if a person is under a great deal of pain their BP goes sky high, their breathing and pulse are higher. ...these are things you can't fake. ..but for some reason doctors get fed up .....and its usally the person who really needs it that ends up getting his short end of the stick. The abusers make it hard for everyone. The real patient, and the doctors and nurses that have to care for them.
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.
 
 


FitzyK23
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Date Joined May 2005
Total Posts : 4219
   Posted 12/23/2007 8:04 PM (GMT -7)   
Marie- you are SO right about the vitals. I always have low BP. Not dangerously low just low/normal. (I can't remember for sure but I want to say 100/70 or something). So I did something to my neck last year and could barely move my head. Super super bad pain. The first doc I could get in with was a new chiropracter. She took my vitals and said hmmm do you always have high blood pressure?? I was like WHAT, no I actually have low normal BP. She took it again and it was definatly high (don't remember the exact read out but above normal). Her response was, well now I know you are in a ton of pain. Lets get this better. She helped a lot but I ended up having to get muscle relaxers from my primary. The BP was the tell tale sign I was in agony.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


Matthew
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Date Joined Oct 2004
Total Posts : 3932
   Posted 12/23/2007 8:14 PM (GMT -7)   
 
 
     mad mad mad
          Well, at any rate, you know that sometimes ER docs are suspicious for a reason! There are two sides to every argument, afterall..
    Oh well, there are also phony "Pain Clinics" in some parts of the country too. Just what the addict ordered, Dr. Feelgoods with their poison! Oh well, no matter what we do, someone will find a way to abuse something. Of course, the one that gets to me is kids that steal or buy a bottle of Robotussin & take drink the whole thing at once! YUCK.
 
   Sincerely,
    Matthew
 
    Of course, the downside of all this nonsense we all know, very hard to get our pain meds for REAL pain. <Sigh>

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 12/24/2007 6:04 AM (GMT -7)   
Am like other posters with B/P mine is normally 100 /70 when in bad pain it goes to 140 / 100 whatever lol.........then they do know ....I also am a retired RN

So right Mattew and all ..........
God Bless




Lyn
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chelsea_doll
Regular Member


Date Joined May 2006
Total Posts : 229
   Posted 12/24/2007 6:24 AM (GMT -7)   
Hi i just wanted to say not everyone that asks to take the drugs home is a drug seeker either. I have asked to bring it home because I have driven myself to the ER and I will not drive on narcotics.

kimberlayn
Regular Member


Date Joined Jul 2007
Total Posts : 239
   Posted 12/24/2007 7:52 AM (GMT -7)   
Vital signs do lie sometimes, I'm proof. My bp is usually low, sometimes dangerously so, and I am on a bp med to keep it up at normal levels. The problem is my bp almost never gets above 120/70, even when I'm in level 9 or 10 pain. Luckily I've only had to be in the ER twice with pain, but the first time when the pain was the worst it took along time for them to give me painkillers (the morphine finally took the edge off) and the second time, even when I said the pain was lessening, they gave me dilaudid (is that spelled right?). I had to ask them for something less intense later. My love and appreciation goes out to all the ER docs and nurses and EMT's because you guys have a lot to deal with and do it with alot of concern and care, even for the addicts.
diagnosed 11/06, solving the mystery of years of on/off abdominal pain. No more "it's just a virus". 33f with 2 boys, a lovable dog, and a wonderful husband. 150 mg Imuran, bowel resection 9/07, healing well and feeling well.


survivor49
Regular Member


Date Joined Oct 2007
Total Posts : 241
   Posted 12/24/2007 8:12 AM (GMT -7)   
My first GI doc said "take tylenol and don't eat" when he saw me with a BP if 170/100 in the ER.
Thank God he was not my primary

SeanM
Regular Member


Date Joined Dec 2007
Total Posts : 44
   Posted 12/24/2007 9:18 AM (GMT -7)   
I can totally assimilate, I still get the look from my gastroenterologist when I ask for pain meds.  I wouldn't know what to do without percosets.  I need a new bottle every 3-4 months to help me through rough patches.  For some reason percosets also bind me up as well as quell the pain, which is an added bonus.

32 yr old male
Diagnosed with Crohns in 1994 (lower bowel/ileum)
Medication history:  prednisone, azacol, sulfasalazine, cipro
Current Medications: entocourt (periodically-as needed), Remicaid, flagyl
Surgeries: 2002 (remove fistula), 2004 (6" of ileum removed)


Blaze
Regular Member


Date Joined Aug 2005
Total Posts : 50
   Posted 12/24/2007 10:03 AM (GMT -7)   
Just to point out how weird this disease can get and that one can't necessarily count on blood pressure to tell the story... I had a complete blockage, I was in so much pain by the time my husband called the ambulance that I couldn't even say no... which is my normal stance, justified or not... however I did not receive pain meds in a timely or compassionate way because my "blood pressure was really low for having all that pain". I was in "shoot me now" pain, writhing around... it was horrible. It wasn't until I started projectile vomiting that the pain and nausea meds arrived. The blockage was confirmed by a CT scan later and then the ol NG tube etc...

My blood pressure was very low in spite of the agony because I'm always fighting dehydration... I have very little intestine left and I don't absorb fluids without the help of anti-motility meds to control that... but when the blockage had gone so far as to need the hospital I was dehydrated and thus low blood pressure/volume. Something the body does... grabs fluids from the body to push the blockage through in the intestines... It was really scary being literally tortured while meds were held up because of bp, not to mention that it was dangerous as I could have ruptured with all that pressure. Only one of the most horrible nights of my life.

I have a 33 year severe disease history and plenty of scars and an ileostomy bag to tell the story but I was still treated as if what I was saying might not be true and that was horrible. I'll never go to that hospital again, but considering that medical people place so much importance on pain vs blood pressure it seems likely that I may go through this again. I think what bothers me the most is that they don't listen. My husband explained as much as they would stand still for to no avail... but vomit on them and that gets the ball rolling. God what if I hadn't vomited! Because I'm very good at not vomiting. Hate it.

I don't think the medical profession should even try to figure out who's faking and who isn't because they are going to make a lot of mistakes thinking they can spot a faker... you may just be facing someone who has a weird terrible disease with altered anatomy since childhood and can "look" very normal because they've developed the ability to fake being ok. This way the sick people would always get the care they need without insult... as far as the fakers go, well they are going to get them anyway because they are willing to lie, cheat and steal... it dangerous to make policy based on the few fakers because all it really does is let the ill people slip through the cracks.

 

Crohn's disease diagnosed in 1974 at 13 years of age.  First surgery at 18 removed entire colon, rectum and 3 ½ ft of small intestine resulting in an ileostomy.  Multiple surgeries since, with only 4-5 ft of small intestine remaining at this time.  What remains is in bad shape with two severe fibrotic strictures. Very painful.  Any further surgery would likely put me on TPN, which I've been fighting to avoid with anti-motility meds and pain management.  Silver lining - My hubby of 21 years is the kindest man in the world and my hero, and our 18 year old son is a constant source of pride and joy for both of us.


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 12/25/2007 1:56 PM (GMT -7)   
Yes great point Blaze
Mine is really low as well when Dehydrated and blocked.....thanks

I hope it was not taken as me thinking someone that took drugs home were " drug Seekers" as this is not what I meant ....it was a drive thru joke ...sorry if I offended you or anyone........


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  CO-Moderator@ Crohns
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New DX of C.O.P.D.
ON too Many meds to post.........
 
        We Have Anxiety.....Anxiety Does NOT have Us
 
 
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      Please Stay Safe and Have  a Designated Driver .........
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ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 559
   Posted 12/25/2007 6:29 PM (GMT -7)   
For those of you who have experienced complete obstruction and the agonizing pain, a useful thing to know is that there is a non-narcotic drug which can give you major short-term relief. That drug is Buscopan, which is not available in the USA, but there is a near equivalent, Levsin. It's available as a pill, but that isn't much use if you're obstructed, as you'll simply throw up. Fortunately, it's available in injectable form too.

http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a684010.html

There is also Levsin S/L (sublingual) which can be dissolved under the tongue, but the injection is by far the most effective. I have found that it's best to inject it IM rather than IV, as IM will be absorbed more slowly and thus will last longer.

Realize that this is an anti-spasmotic drug, not a pain killer, but it works well by controlling the painful cramps that accompany obstruction. I've taken it at home, injecting myself in the hip. It really does work well, and everyone here should be aware of it. I'm just surprised that it isn't used more in the USA (I used to live in Taiwan, where I spent many bad nights in the ER).

about the low blood pressure problem - if you do require morphine, I can say from experience that it's also best injected IM rather than IV, because an IV injection will immediately lower your blood pressure, making you feel very faint, and can also cause you to throw up. Again, the idea is that the drug is absorbed slowly.

If you're in the hospital for a lengthy period of time, there is a device which can be attached to an IV than allows you to give yourself micro-doses of morphine. This is mostly used after surgery rather than emergency relief of pain. None of the doses are very large, but it's enough to keep you feeling much better.

best regards,
Robert
Crohn's since 1988
3 resections

Post Edited (ozonehole) : 12/25/2007 6:34:01 PM (GMT-7)


Matthew
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Date Joined Oct 2004
Total Posts : 3932
   Posted 12/25/2007 7:46 PM (GMT -7)   
Yeah, I used to be that way with my BP before I started on BP meds ( Which I need to get refilled!). Nowdays, nothing changes the darn blood pressure, even solid pain. Oh well. at least nurses aren't nearly having their own heart attacks when they read mine! Got to admit 155 over 115 was pretty scary.

Matthew
Happy X'mas Everyone..
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