I had my colonoscopy Thursday. As most of you know I have a enterocutaneous fistula and have been on Humira since September. I also have had 3 CD surgeries this year. I did flare 1 month following the ostomy reversal surgery and I tried Pentasa, and entocort for that which did not help. I was placed on Humira and id did help yet I still have pain and the fistula.
In my scope post I said the findings of the test. The fistula was in fact caused by CD and not a problem from surgery since the type of fistula I have...location wise....is common with abd surgeries. The GI also saw an ulcer which was small and healing. He did biopsies on ther ulcer, the anastamosis(sp?) and the ileum....yes I still have some of that left not sure how much but I know from my CT enterography in jan 07 the last 12cm of the ileum was what appeared to be the affected part. The reason behind all of these surgeries was that the ileum perforated in February since the GI doc I use to have...till Feb 07 when all this happened...was not aggressive enough in his Tx of my CD and on top of that he didnt believe me when I told him I was flaring with D...since most of my flares in the past 20 yrs was with C except for when I was forst Dx in 87.
My GI said he would consider me to be in remission now. He did seepseudopolyps and did those 3 biopsies...and I know they came back all clear since my mom is the secretary for the cheif pathologist and the other woman there that does the transcription was onut on bereivement.
I know this fistula is going to need Sx to fix and I asked why I am in so much pain if my GI says that I am in remission and he informed me that I have some adhesions from surgery. I know my colorectal doc can open that up when he does the fistula Sx. My stomach is so bloated and I know it usually bloats when I flare and I have the extra rancid gas and stool odor. Is this common when in remission?
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987