How is everyone?

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Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 3/4/2008 1:22 PM (GMT -7)   
This forum has been moving so slow recently, and I was just wondering how everyone is doing.
 
Spring will be here soon, daffodills are already sprouting up. It's nice too know that warmth is on it's way.
 
I've been super duper busy recently, delving into alsorts too try get me back to feeling normal. I've started college, I'm going to start mentoring disabled people. Been to the physio once a week. Started talking too my mum again. It's all fun and games.
Had about 3 hundred thousand arguaments with my docs.......But well, nothing new really, and it will all be sorted when I get the guts to contact the CF trust, to get them back into a resonible mode.
 
Hope everyone is well, and enjoying themselves.
Gem
xxxxx

Ps, and if you're new, or just surfing the forum, pop in and say hello. New faces are as lovely as old ones:)


Co-moderator in the: Cystic Fibrosis Forums
 Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
 Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine,slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05
Help support the forums so we can support you:  http://www.healingwell.com/donate
 


Another Day
Veteran Member


Date Joined Mar 2007
Total Posts : 1055
   Posted 4/18/2008 8:59 PM (GMT -7)   
Gem,
 
I just popped in over here to see how you were doing.  It sounds like you're doing well if you're that busy.  I hope you are doing well.
 
That's great that you have started college.  Aren't you excited?  You have a busy life young lady.  Maybe you won't have time to think about being sick, but please don't get too busy and overlook anything health wise.
 
Big Hugs!
 
Carla

Moderator, Allergies/Asthma
 
Help support the forums so we can support you:  http://www.healingwell.com/donate
 
 
Epilepsy, asthma, fibromyalgia, GERD, depression, hypothyroidism, tinnitus


Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 4/20/2008 7:13 AM (GMT -7)   
Hi Carla, thankyou so much for your post. Just reminded me not to sink, like I keep doing.
Health has been pants. A massive de ja vu is happening with doctors. If anyone suggests anymore that my lungs are bleeding because of depression, I will not be held responsible for my actions. I next see them on the 28th, I've not seen them for a couple of weeks, and I feel deserted. With everything else that had been going on, I really don't know who I am most days.

College is still going strong. The walk there is really hitting me harder each week, but once I'm there, I feel better. I'm doing well, and flying through the course, and get only praise from my tutor. The first unit should take 20 hours, yet I completed it in 12 hours with not one single error. The course is so easy, but that's a good thing. If it was harder, then I wouldn't be as keen to go.

I'm not spending much time at home. I've been going to Paul's brothers most days, and offering our services to look after nephew Kain more. I'm trying to keep as busy as I can.

My physio made me do a shuttle run on Friday. A run to test how fit you are. I couldn't manage as long as I did in january, though wasn't far off. I've been told this is actually a good thing, as I'm obviously not well. I guess I am impressed with myself in a way. That I was able too push myself as far as I did.

Lol, don't worry though, all this business I can't forget my health. I don't think my body would actully let me.

So, a mixed view of how things are going on my end. Thankfully, the good stuff, is keeping me a bit more balanced than usual. Which is handy as not seen my psych in a couple of months now.

Ooooo, also now got an appointment with hosp on 13th May, with my doctor and Paul and my CF nurse. The topic will be.....Babies. I am happy about this. Super duper happy. It means I've got support again from that angle of things. For a while now it's been: don't talk about kids infront of Gemma, as she'll get upset and we can't help her. But my consultant is finally in a helpful mood in that respect. Probably not healthy too get my hopes up again. But well, it's exciting, and I can't help it:P

Hope you're well Carla! And again thankyou. You've just given me reminder too evaluate, which I keep forgetting to do. Evaluating how things are going, always makes me feel better as the dark things don't feel as dark.

Huge hugs back

XxXxXxX


Moderator of the Cystic Fibrosis Forums
 Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
 Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine,slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05
Help support the forums so we can support you:  http://www.healingwell.com/donate
 


Another Day
Veteran Member


Date Joined Mar 2007
Total Posts : 1055
   Posted 4/20/2008 8:39 PM (GMT -7)   
Gem,
 
You always make me know I can make it through anything!  I have started having seizures again and of course I have the severe asthma.  Well, I now have fibromyalgia and the pain and fatigue are terrible.  But, I'm not taking it lying down.  I have a good doctor for the fibro. 
 
He started me on Lyrica this week and also on some stretching exercises.  I have also walked with a friend/neighbor a couple of times.  I have to use my inhaler before I go.  Today we went 45 minutes, which was too long for me and I had to use my inhaler to get back home, but I made it.
 
I draw strength and courage from people like you. I think I had the three seizures last week because I thought I couldn't face yet another chronic disease, which would make three.  Then I get back on this board and I realize I can, I have to.  I look at what you and some others have been through and I know I can do it.  I'm also going to do it without the pain pills.
 
Please keep me posted as to how you are doing.
 
Take care!
 
Carla

Moderator, Allergies/Asthma
 
Help support the forums so we can support you:  http://www.healingwell.com/donate
 
 
Epilepsy, asthma, fibromyalgia, GERD, depression, hypothyroidism, tinnitus


Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 4/21/2008 3:32 AM (GMT -7)   
Carla,

You know the strange thing is, I have similar thoughts to you.
The other day, there was a wrestling show on, it was all day from 11am to midnight. An extremely long day, and I was just going too do half of it. I really didn't want to tire myself out, and had this plan mapped out, that paul would do all the walking too the bar from our seats to get drinks and stuff, as there were a lot of steps.

On the way there we stopped off at a shop, and they had a collection bin for this 2 year old girl with CF and Deborah Disease, as she needs a sensory room. I got chatting to the lady behind the counter, and she showed me pictures of this absolutely adorable little girl. On a really good day, she just looks like any 2 year old. It just made me think, ok I've got my own set of problems, but how would I cope with that combination of things.

I ended up spending the whole 13 hours at the wrestlng venue, didn't take my crutches and got all my own drinks. It just puts things into perspective that things could be much worse. I decided I was going to go through that day in pain, but I'd get some excercise done aswell, and that will be good for me.
I've realised today, I didn't have to go in pain though, without meds for it, so I don't think I'm doing it again, as I am infact not wonderwomen. Though, I have realised, I can probably go without my crutches a bit more often, so that's what I will be doing.

I think sometimes, it does take someone else, to help you realise, that you aren't alone in how you're feeling. Sometimes it is extremely hard to cope with knowing that things aren't normal for you.

Take care sweetie
Gem
XxXxX


Moderator of the Cystic Fibrosis Forums
 Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
 Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine,slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05
Help support the forums so we can support you:  http://www.healingwell.com/donate
 

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