Hi there Cori, I want to second kitt's welcome too healingwell!
I'm realy sorry it has taken me so long to reply too you. I am in hospital at the moment for a course of IV antibiotics. While there has been an internet connection present for a while now in the hospital, I am the first patient too attempt too use it, so it has taken a week too get hooked up with my laptop, but I've managed it, and got another patient up and running too:)
I am a married 22 year old and have Cystic Fibrosis myself. I don't have any real secrets though other than just try your best.
I get myself overly excited at the good things, so I can remember them when things get tough. When things get tough I remind myself, I have been in before, as have a lot of people before me, and it's not the end of the world.
Just recently, I think that's what keeps me ploughing forward, knowing that on a rollercoaster you always have too slowely work your way up to a peak, before you can get too the fun easy drop down. CF sometimes makes good things even better and more special.
My health is generally good, I have a high lung function, with an fev1 of 90% (my secret to that is playing the trumpet as a kid)
I go to college, I'm doing a mentoring course aswell as college. CF never holds me back, it's usually the muscle problem I have that does it. I adapted to hopsitals and treatment very young, and is just automatic too me now.
I am currently trying for a baby of my own. Been trying for 5 years now, but only just stepped on the band wagon with the hospital really as too why I'm not preganant yet. I've met a lot of opposition, because even though our child wouldn't have CF, they would be a carrier. But then 1 in 25 people are carriers of the gene anyway.
I can't think of what else too put. I'll respond again later. Hope you and your family are well!
Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine,slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05