Welcome to the board. I am Kitt and I do not have CF but I have known friends who have raised children from infancy with CF. First of all you are a wonderful Mother, and you did not bring this on your children so please do not blame yourself. It is a disease and why do bad things happen to good people? I do not know but I know your a good person.
Please read throught the topics on here and I am sure someone will be along to visit with you that has more knowledge on this topic then I do. I am glad you are reaching out for help.
I am going to post a couple of links for you that may be helpful. God Bless and know we care.
i just turned 24 i had my baby when i was 17,GYPSY.when we were sent 2 crumlin i was callin it statistic fibrosis i had'nt a clue. (i still dont have a clue) i thought it was the end of my world,it feels so bad when your lyin over your baby gettin canulas in,i could talk 2 u about all the bad things that happened to gypsy and we as mothers feel, but at the end of the day my baby is 6 now and she is the best thing that ever happened to me and i know how u feel, but you have to stay positive and hope 4 d best. im computer illeterate! im only after finding this site. ive been unbelievibly alone. i have never talked to anyone that has children with cf. but at the end of the day i dont know wat 2 say 2 u but i just want you 2 know that your dream is the same as mine evey nite u lay ur head on ur pillow 2 go 2 sleep that some day there may b a cure! i just want 2 say that i know how u feel and that i can talk 2 u about it.... plz write back 2 me and let me know how ur 2 little boys r doing! xxxxxxxxxx (after drinking a bottle of wine) crying like an idiot writing this note 2 u