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New Member

Date Joined May 2004
Total Posts : 1
   Posted 5/11/2004 4:24 PM (GMT -6)   
Hi, I am doing a project on cystic fibrosis for school because recently someone I know was diagnosed with it. I have to interview someone for my project and since I am trying to write my paper about what it's like to live with it and was wondering If I could ask someone with the disease or knows a lot about the disease some questions. If so email me at

Regular Member

Date Joined Feb 2003
Total Posts : 53
   Posted 5/15/2004 7:34 PM (GMT -6)   


I do not have CF but I am the mom of a 5 year old with CF.  I am happy to answer questions about what we have gone through so far. is my e-mail--put "?about CF/healingwell" in the subject line so I know who I am talking to and my hubby doesn't delete it.   another good site with helpful people would be

you can also get some info from my site at

 I hope this helps!!!!


mom of Rachel, 5 & 1/2  with CF, and a boy on the way, no CF

New Member

Date Joined Jun 2004
Total Posts : 9
   Posted 6/26/2004 6:52 PM (GMT -6)   
I am 24 years old and was diagnosed with CF when I was a month old. Almost all my friends have done projects througout college and high school on this, so I don't mind helping. You can e-mail me and I'll answer as many questions as I can.

Regular Member

Date Joined Oct 2004
Total Posts : 183
   Posted 11/30/2006 6:20 PM (GMT -6)   
hello to all the new pepole, and welcome braids. and teas i do not have any infor. for you sorry. i was diagose by OHSU, with small fiber neuropathy very painfull and it took around 8yrs to diagose me. my pain has been low today thankgod i was needed a break. what is CF? if you dont mind me asking. if anybody has any infor. about small fiber neuropathy please send my way thankyou. i have to make it short have thing to do you all have a goodnight!
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