I am Andrea and my daughter is 5 & 1/2 with CF. She was diagnosed at 9 months. Feel free to visit our family site at http:groups.msn.com/teamRachelJane or contact me at JohnDrea@msn.com
or go to http://groups.yahoo.com/group/cfparents That is a wonderful group of parents, patients and loved ones who support eachother and ask/answer questions, and generally give you a place to voice your concerns. If you have a problem or question, the chances are that someone there has been there or done that already and will be happy to offer thier experience.
mom of Rachel 5 & 1/2 with CF and a boy on the way, no CF
mom of Rachel, 5 & 1/2 with CF, and a boy on the way, no CF