Hi there Jessie,
I don't really have much of a routine at the minute, due too my life just been spread out all over the place. Still getting used too having something too do.
Usually it's handfull of meds with breakfast-if I remember breakfast or, aslong as I'm not doing anything that starts early morning. If not then my breakfast dose moves too dinner time. If I'm on antibiotics and need 3 doses in a day, my second dose will be either dinner or tea time, my 3rd dose will be tea time or before I go too bed.
I always have my mirtazapine, just before I go too bed.
Physio I do once or twice a day-only 3 times a week if I'm well, and am busy. Increased too more in hopsital (Get PEP out whenever I'm bored, so like 10 times a day.)
I dread them ever finding a neb too suit me again. The 2 antib's they use in neb-I'm allergic too now. I'd never fit it in if they did find something though. I couldnt' fit it into the way I currently do things-that's for sure.
Excercise-I go too physio every week-2weeks and they work me hard. Other than that, I really on the little walks too and from places, like too the shops. As I have a muscle condition aswell, I can't do too much or I feel it for the next 3 days. I also tire out really quickly.
Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine,slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05
Sometimes, I feel that I should go and play with the thunder-In The Shadows by The Rasmus