My daughter Katie is 1 yo. She was dx'd w/ CF @ 5wks of age. We had no idea that we were carriers. That day of diagnosis is one I'll never forget either. Her newborn screening test came back high for Cf, but the doc told me she was a carrier. She was having constant feedings but not being satisfied, almost constant crying and stomach pain with feeds, poor weight gain. She tasted salty. I'm a pediatric nurse and I knew something was wrong,but they kept telling me it was colic, breast milk allergy, etc. At our 2 week check up, I pushed for a referral to the Cf clinic. we did bloodwork and DNA analysis and got the confirmation. I had 2 friends die of Cf (in their 30's), so devastated was a good word.
Now, after a year, we have adjusted and have our own "normal". We are pros at giving enzymes and nebulizers and chest percussion. Doing CPT with a 1yo is like wrestling an octopus! That your daughter is 10 and doing well gives me SO much hope and encouragement! I would also like to know how other CF moms handle things with their kids. Thanks!