To be honest, spend a lot of time on here anyway, I like learning new things. Though I've been a bit quiter this week. Pseudomonas has taken over again, and noone wants too give me any antibiotics. Well, that's a small lie. They are giving me IV's on 8th Sept, though won't give me any orals too tide me over, because I refused too take one type (they have far too many side effects for my liking, more than IV's!) Haha, and thanks for the pint:D
I think you are doing a superb with Gypsy. CF care in England isn't excellant, it can still be improved a lot, my unit is awful, and I send most of the time crying about
it, because I can't trust or understand them.
It's so nice that you are thinking about
Gypsy's 'normal' life. Her friends and family and where she has grown up. My parents never did this. CF ruled my childhood, even though I was really good healthwise. She kept moving us schools, and I think that had a pretty huge impact on things, and the fact that I think now of only the bad things. I cannot recall good memories from my childhood, I only remember the heartache of having too leave my friends and make new ones because my mum thought it would be better for our health if we went to such and such a school.
I think you have got the balance right between the need too be normal and the need for the best care.
Now, I'm off to have a few more pints. Paul's cousin come round there watching a DVD, then were playing on our new Wii, he's brought some games with him we haven't played yet:)
Speak too you soon!
Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine,slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05
Sometimes, I feel that I should go and play with the thunder-In The Shadows by The Rasmus