Eugh, STILL not in hospital yet. They still have no beds!!! Started home IV's this afternoon. I'm really not impressed I don't do home IV's anymore, as I don't feel I can cope with tem, but for now I have no other option. I really want to be well and happy for my hols at end of month. My lung function has dropped now again, my first test was 75%, second 83% must have cleared something on first blow lol Was wheezing and spluttering throughout. It's quite a drop from 93% for me, it's not very often I ever lose any lung function. Explains why it's feeling so hard to breathe right now anyway.
Physio's had a go at me, for not doing my balance excercises this week. They're really missing the point about
being in pain and breathless. Ah well, I guess I can ignore them for now, and face them when I'm feeling a little better.
So sorry to hear about
your Grandma. Give her a cake from me - cakes much better than grapes when you're not your best. Hope she's up and pottering about
soon, my prayers are sent chuck.
All the best!
Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine,slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05
Sometimes, I feel that I should go and play with the thunder-In The Shadows by The Rasmus