Any Ideas on getting my cf baby to eat

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Nov 2008
Total Posts : 5
   Posted 11/12/2008 11:38 PM (GMT -6)   
 I'm new and 9 months ago I had a little girl she was born with twisted intestants,she had ostomy bags for a while and then we got the news her genetic profile came back positive for cf
My problem is she is taking a bottle just fine and still not gaining weight they want her to start eating but she hates food
She is 13 lbs and has cf and short gut syndrome
I think I'm gonna go nuts is anyone out there having the same problem

Forum Moderator

Date Joined Feb 2007
Total Posts : 1050
   Posted 11/13/2008 4:50 PM (GMT -6)   
Hi there,
I just wanted to say welcome too Healingwell.

I've not come across this problem myself. My brother has a twisted bowel, but, he rarely actually experiances any problems. He is 20 and really skinny, but so far no soltion is offered except treat blockages in his bowel straight away with laxatives, and regular scans to make sure he's not got any huge obstructions. I knwo ways of getting older kids and adults too eat, but I don't think they'll help you.

I hope someone knows something about this and can respond too you. Sorry I can't be helpful.
All the best
Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine,slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05
Help support the forums so we can support you:
Sometimes, I feel that I should go and play with the thunder-In The Shadows by The Rasmus

New Member

Date Joined Nov 2008
Total Posts : 5
   Posted 11/13/2008 9:09 PM (GMT -6)   
Thanks for responding not many people have any ideas for me but I thought I would try
Anything we give her to eat she spits,turns her head,screams or just vomits everywhere I think its a power struggle lol

New Member

Date Joined Nov 2008
Total Posts : 1
   Posted 11/18/2008 11:28 AM (GMT -6)   


I am not sure how much this will help..but here goes.  You could try the bottle trick. Place cereal in your babies bottle and shake it until it dissolves.  You can make the formula the consistency of a milkshake.  Then puncture larger holes in the nipple and see if you daughter will take this.  If this is sucessful you can also try to put pureed fruits and vegetables in the bottle and get her to take them this way.


Let me know if it works.  I used the cereal trick to help my Son with really bad reflux when he was a baby.




New Member

Date Joined Nov 2008
Total Posts : 5
   Posted 11/18/2008 11:38 AM (GMT -6)   
I wish it did work she will take cereal before bed and thats it
She confuses me my 2 boys were chow hounds I've never had this problem before
She is not gaining like they want she is 5 pounds under weight at 9 months so they are talking about a feeding tube which I really don't want but I may have no choice
Thanks for the ideas I havn't tried pureed fruits or veggies yet so we will try that
Thanks and hope to hear from you again
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, October 28, 2016 5:31 AM (GMT -6)
There are a total of 2,713,293 posts in 299,178 threads.
View Active Threads

Who's Online
This forum has 153758 registered members. Please welcome our newest member, MJ0404.
198 Guest(s), 2 Registered Member(s) are currently online.  Details
George_, island time

Follow on Facebook  Follow on Twitter  Follow on Pinterest

©1996-2016 LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer