hi Darkies Gem

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hazer
Regular Member


Date Joined Jul 2008
Total Posts : 33
   Posted 11/23/2008 8:58 AM (GMT -7)   
hi gemma,hazel here havent been on the site in a while now. have been quite busy was over to cool disney world with gypsy it was brill :) was sad to be comin home we had such a good time.gypsy is keepin realy well at the moment just a small bit of a bug so fingers crossed she'll be grand through christmas. How r u keepin i hope everything is alright with u. im moving house soon cant wait. just waitin on all the details to go through in limbo dont know if i'll be movin in the middle of the christmas holidays so needless to say no1 is gettin presents. anyway thats about it apart from gypsy here farting on me tongue   chat soon xxxxxxx

Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 11/23/2008 10:02 AM (GMT -7)   
Hi Hazel,

It's very good to see you. Was wondering where you'd gone!
Glad you enjoyed Disney World-you could've slipped me in your suitcase you know. I sooooo want to meet Minnie mouse again hehe! scool
Hope the little bug is gone before Christmas, it's sucky feeling ill when everyone else is jumping about getting excited lol. Last year was like this for me, I had an awful cold, plus had just started Tobi nebs, so my voice disappeared. I had to sup honey and lemon mixed with hot water, and had to take the jars round with my to everyone's house. I really hope that this doesn't happen for Gypsy, Christmas should always be fun and happy when you're little. smurf
 
I've got a cold-a nasty one that's jumped straight onto my chest. I'm hoping to be starting Tobi nebs soon through my Ineb. I've got permission from my team now. I just hope it works. I need something to keep me churning over Christmas, as my IV's aren't due until the end of January.
I've been having to sleep on the sofa chair this last 2 weeks, as laying down is to much for me. It's not too bad, but my back is killing, and Paul is missing me. cry
Got clinic tomorrow, so I should be able to get some oral antbiotics to tide me over until I get the new chamber to my Ineb, so I can start the Tobi. Hopefully shouldn't take too long.

I've started a new college course now, having completed last years with flying colours. This one is 15 hours a week! It's been keeping me very busy lol. It's fun though, not really learning much, but proving what I'm learning in something I enjoy.
Also been fixing a computer that was riddled with viruses and worms and spyware, and had a request to fix another one, that's just running slow. I've gone from doing not a lot to doing milions. It's kinda scareing me a bit, having all this work to do. But, it's quite satisfying that I've found something to keep me busy, which doesn't effect my health.

Also, got my bread machine down. Hot bread layered with butter is good for me, and is very comforting. Paul's not impressed as much though, as having to stop him eating it all as he's putting on weight.
Got a few new games for my Wii, including Wii Play, Guitar Hero, Big Brain Academy , Mario and Sonic at the Olympics, Mario Kart and Mario Party 8. I should have real big muscles in my arms soon, haha! Paul's brother, sold his Wii to his Mum, who already has all the games. So, sold the games to us really cheap. yeah

Stay well Hazel, and hope Gypsy stops farting soon smilewinkgrin

Hugs
Gem xxxx


Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine,slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05
Help support the forums so we can support you:  http://www.healingwell.com/donate
Sometimes, I feel that I should go and play with the thunder-In The Shadows by The Rasmus

Post Edited (Darkies Gem) : 11/23/2008 10:14:44 AM (GMT-7)


hazer
Regular Member


Date Joined Jul 2008
Total Posts : 33
   Posted 11/24/2008 4:44 AM (GMT -7)   
gypsy's on tobi at the moment aswell. shes been on and off it now 4 about 6 months or more. but she seems to be doing well with it. i nearly had a heart attack when we got to america her nebulizer wouldnt work cause they run on different watts than us. that might be a good thing to warn people on this site about if some1 was planning to go on holidays there. but in a strange way im glad now cause 4 2 weeks outta her life she got to forget about them and just have fun and i got such a break aswell. sorry to hear your not the best right now i'll be sayin a prayer 4 u............... now just said 1. i've never been 1 4 praying but i decided to start cause it dosent do any harm and when some1 says that to u its nice to know they r thinking of u. was going to to get the wii 4 gypsy this christmas but now that i'm moving house i just havent got the money. got her loads of hannah montana stuff though, dont know if u have heard of her but my head is wrecked with her. (mylie cyris) gypsy is MAD about her. u r so lucky in 1 way that u can eat realy fatty food if i looked at that bread and butter id put up a stone in weight and i LOVE food, oh well. are u expecting anything nice 4 christmas? or any ideas what your gettin the hubby. chat soon kk

Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 11/24/2008 10:24 AM (GMT -7)   
Hannah Montana and High School Musical, my sister is mad on them at the minute. She insists on playing it while I'm there. She's 13 though, so hopefuly she'll grow out of it soon haha!

Thankyou for your prayers. Hey, it must have worked an done some good, because the hospital were actually helpful today!!!!

I'm now on Azithromycin long term. The new chamber for my neb has been ordered and should be on it's way. I'm getting a barium scan done, to finally find out what's wrong with my belly. I've been feeling sick on and off for years. They're finally going to test to find the problem. Previously, they tested my brother every year, and decided I must have the same problem as him, so never tested me, just put me on the same medication as my little brother which didn't work for me.

It's nice to have an appointment that hasn't made me so angry at them for once.

This made me laugh today:- The Ineb can be plugged into the hospital computers. The results are then downloaded for how often you've been taking it, how long treatment has taken, whether it was a full treatment session etc. My physio decided to plug mine in, forgetting I've not used my Ineb for a year and a half. So she was annoyed for a bit, and asked me what the point of starting Tobi was, if I was being complient with the med I used to take. I pointed out that I hadn't used nebs in so long, because of allergies to old med colomycin. She was confused because it said I had done a bit of a treatment this morning, she thought I'd done one session this morning to proe I'd been using it or something. I'd ran saline through it, before setting off for hosp, to make sure it still worked ok, to save time in clinic, which showed as half a treatment session on their computer.

Haha, at least I know it's definately recording treatment right lol.

I'm expecting some pans for christmas, and a new Nintendo DS. The pans from my mum, because the ones I've got now, I can't lift and aren't very safe for me to use as I have a habit of dropping them.
A new DS, from Paul, as my old one is an original one, and it's that scratched that I can't play games properly anymore.
Have no clue what to get Paul for Christmas. There's nothing he specially wants. It's probably going to be a dressing gown, slippers and a game like last year lol.

Are you expecting anything good for xmas?
We got our Wii through a hire/purchase company called Brighthouse. Could this be an option for you? It's £5 a week, and you end up paying more than RRP in the end. But, it lets you get stuff without having too fork out a lot at once. The good thing aswell, is while you're paying it off, they fix any problems with it for free. Which is good, as I've heard of Wii's breaking after a year or so.

Chat soon
Gem xxxx


Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine,slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05
Help support the forums so we can support you:  http://www.healingwell.com/donate
Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.


hazer
Regular Member


Date Joined Jul 2008
Total Posts : 33
   Posted 12/1/2008 10:12 AM (GMT -7)   
your not going to believe this! last friday i was talking to a friend of mine about the hospital in mullingar the one i was telling you about, when they messed up with taking out gypsys long line and she was telling me about this girl that went there having her baby, whatever happened to cut a long story short the baby died a few weeks later. well i got so thick that i went to the shop got some credit for my phone and rang the News Of The World. had a chat with them over what happened to gypsy and that solisters did'nt want to get involved cause it's realy hard to sue the helth board. news of the world told me to write a letter to them and ask why gypsy was addmitted for rutine antibiotics and ended up in crumlin under annistetic then said they have to reply to me by law and then get straight back to them.So i rang the solistors just so they could write the letter for me and as soon as they heard news of the world they where like"oh you definately have a case". Its not about the money even though i won't deny it would be nice for her to have something to fall back on when she's older, but i realy want to name and shame them and hopefully they'll be more carefull with the next little boy or girl that walks through them doors. chat ya later gem xxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
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