Thank you for your letter. I am really glad to hear from people in my boat!! Did they find your CF as a child? I was 27 and VERY SHOCKED. I was always told it was bronchitis or pnemonia. When they first told me I didn't know what to do or where to go. After I started getting sicker and needed O2 and more meds. and ALL that great stuff, my ex walked out. But that's all good now, I have two WONDERFUL boys who support me and help me out when needed. My oldest is 13 and youngest headed for 11. They are excited for me because they want me to be able to run and do things with them.
I'm glad that you found such a great husband. I decided to go back to the father of my kids, on and off for 19 years, thought he'd understand and be the BIGGEST supporter of them all but just told me he's leaving after my surgery. So another hits the road. Maybe I should write a song about it! (HAHA)
You know I was just at the Clinic today, yeah I live in the Cleve. area, and I met a lady who is 46 and going for her SECOND transplant. She is 10 years out but caught pneumonia and started to reject. She also told me about the transplant buddies. That's twice in one day so I'm going to check it out!!! Sorry if I'm babbling but it is so nice to hear about ADULTS having this. At first it seemed like all I heard about were young kids and it was depressing!! I know how you feel about needing small lungs, this is REALLY upsetting me.
Okay, I'm really going to stop talking now! Please responed if I haven't driven you crazy. Please take care of yourself and again THANK YOU for your time