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Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 2/14/2009 7:06 PM (GMT -7)   
Hi guys,
 
Thought I'd do a check in, to see how people are.
 
I'm back from hospital now-and calmed down a bit. So, thought I'd let you know I'm back!
The endoscopy went horrible-though I did have a surgeon who was just a mardy cow-no other explanation for her. I did have my dietician holding my hand though, to keep me safe from the meaness of the surgeon. To be honest though the problem is, she was a very get down to business, stop being so pathetic and crying, type person. Where as I'm a big wuss, who had been crying most of the day before, right up until the endoscopy. But I got through it, with just a sore throat, and I managed not to have to bite anyone (though came close lol smilewinkgrin )
 
My Tobi Ineb feels like it's completely stripped my throat and lungs of anything valuable-though I'm still producing loads of gunk. Thankfully, this is my first and last full month of Tobi. As of Friday, it will be 2 weeks on, 2 weeks off. I'm hoping this will give less of a chance to build up and start hurting my lungs and throat, and less of a break for bacteria to grow, and for me to completely get out of routine.
 
I'm ok though otherwise CF wise. My heads still a bit fuzzy-but it's getting better.
 
There's my update lol. How is everyone else? Hope you're all ok! What have you been upto? You had a good valentines day? You been enjoying the snow? Fill us in! :-)
 
Gem x
Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid,  Lofepramine, Slow-Sodium, Azithromycin, Cirpofloxacin, Omeprazole, Tobi Ineb, Fresubin Liquid Feed, Skandishakes. I use PEP device as my physio.
Had a Port-a-cath fitted on chest wall since Nov 05
Help support the forums so we can support you:  http://www.healingwell.com/donate
Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.


diddles
Regular Member


Date Joined Mar 2007
Total Posts : 35
   Posted 2/19/2009 3:44 PM (GMT -7)   
Heyo! Good to hear you're out of the hospital! Sorry the endoscopy was so awful; I can't imagine. It seems like you were in the hospital for a really long time.
As for me, I'm in New Orleans for Mardi Gras. This is my first time doing any real traveling, and I've made the choice not to bring along my vest. It's a bit scary; I'm always paranoid something is wrong. I feel great, though, being out here. It's an awesome experience. I've been from New York to Maine to Montreal, and just arrived here in New Orleans a few days ago. In each place, I've only stayed about a week, and I guess i'm not planning well, but I haven't been able to get any appointments at any of the various CF clinics listed on the CFF website. I've called ahead for Texas, which is my next stop, so I hope I get something. Anyway, things are good. I'm doing something I've always dreamed of doing (traveling), and I'm learning to deal with this disease along the way. It's a huge responsibility. I've taken the semester off school, and I'm glad I did. I need to learn to balance having CF with my regular life. It makes things a lot easier being able to focus on one thing at a time, especially my health, which is something I usually put off for last.
Well... it's nice coming to this site to have something to respond to, so thanks for posting. I'd love to get some emails if anyone wants to chat. Alright, hasta la vista, baby.
-deirdre
we are all lying in the gutter, but some of us are looking at the stars.


Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 2/21/2009 5:50 AM (GMT -7)   
Deidre, I emailed you, from new email address:)

I'm so glad you're doing so good:)

xxxx
Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid,  Lofepramine, Slow-Sodium, Azithromycin, Ciprofloxacin, Omeprazole, Tobi Ineb, Fresubin Liquid Feed, Skandishakes. I use PEP device as my physio.
Had a Port-a-cath fitted on chest wall since Nov 05
Help support the forums so we can support you:  http://www.healingwell.com/donate
Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.

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