I'm going to try and organise a schedualed chat time for us. To do this, I'm gonna need a basic idea of what times people are going to be around to chat.
If when you want to or have time for chat, you make a post in here.
I personally will try and make it my mission to get into chat whenever someone posts-though obviously with most being in USA and me being in UK, there is a big time difference.
So, if it's 12pm central USA time-then it's 6pm UK time.
But, it everyone tries to do this. I'd like to try to work us out a regular time slot. I think it would be helpful to some of the newer members who are just learning about CF, and the old timers who can always learn something new about CF. Plus it'll be nice to just get us talking, it helps so much to talk about CF, as there is so much to it, and it can be quite overbearing at times as I'm sure you will all agree.
Also, if you know that you're going to be able to be in chat a bit later in the day-post that here too. If you're from America, post which state you're in, so we have an idea what time that will be in other places in the world.
If anyone needs to convert the time to there country, then go to:
They have a good converter on there which is quite easy to use. If you do need help converting still, let me know.
I really hope we can get a regular chat going, as I think it will be good for us.
Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Lofepramine, Slow-Sodium, Azithromycin, Ciprofloxacin, Omeprazole, Tobi Ineb, Fresubin Liquid Feed, Skandishakes. I use PEP device as my physio.
Had a Port-a-cath fitted on chest wall since Nov 05
Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.