Hi Haven't been on for awhile. 29 in 38 days with CF that in the past 8 months has progressed a LOT. Lung functions down from 90% to 60% and oxygen at night with some during the day. 3 times I had to stop at the firestation for a little O2 boost. I owe them cookies. 4 major stays in the hospital, 2 being over a month long. Multiple times on home iv's and oral meds, And psuedomonis(sp) that is resistant to everything......and THEN!!!!!! I got a cold.
So, how are you all doing? :)
My question is SSD or Social Security Disability. Obviously with the above I don't need to tell you how hard it has been to work. I have a job, but I have been given notice "due to the economy"....and with my track record so far with my cf.......finding a new full time job, will be a BLAST!!!! Sure, I will show up to work EVERY DAY!!!! I can't guarentee that anymore. And a week ago I had my first episode of hemoptysis, followed by a severe panic attack. Yes, I am a wimp. I have no defense, I am a wimp. It happened twice in a 12 hour period and it was about 200ml of blood. Fun!
Are any of you on SSD? Are you able to work part time or temp jobs on SSD? Do you have issues with medicaid covering your meds or doc appointments ? Have any of you with CF been denied for SSD? Where is a good place to go to get answers to questions on how it works and such without paying a lawyer $$$$$$?
Thank you for your time in answering my questions.
Diagnosed: Cystic Fibrosis, Diabeties, Osteoporosis, Marcus-Gunn, Hasimotos, Webber's Syndrome, Raynaud's, Reactive airway disease, Aspergillus, 2 strands of pseudomonas, scupluariopsis, ashthma, fibromyalgia, achromobacter xylosoxidans, scedosporium prolificans fungus, basliar migraines, frontal lobe seizures(in two doc's different opinions on this one), Depression
Medications: Too many
Allergies: Everything under the sun
Motto: It will be OKAY