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caroline-anne
New Member


Date Joined Apr 2009
Total Posts : 4
   Posted 4/29/2009 7:10 AM (GMT -7)   
hi im new on hear.i have 2 kids with cf one age 8 and just found out my 5 week old daughter has cf to.my 8 year old gos in to hostpital every 2 months for iv treatment for 2 weeks,dos it mean it will be the same for my 5 week old? i am finding it hard at the moment but i think it will just take some time to get used to. dos it get easyer?

Post Edited By Moderator (Darkies Gem) : 5/2/2009 10:48:18 AM (GMT-6)


Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 5/1/2009 2:59 AM (GMT -7)   
Hi there Caroline-anne, welcome to Healingwell!!

Everybody with CF is completely different. My CF is actually closer than my friends than to my brother. My brother suffers more with his bowls and is only hospitalised every 1-2 years. I have more chest troubles and am hospitalized for IV's every 3 months. A lot can influence CF, such as other genes in the body, how many infections you have, what infections you have and also how old a person is when they're diagnosed.

Speaking as a CF patient, I think it does get easier over time, as you get used to treaments and the routine of CF. I think people with CF tend to have a fairly strong mental attitude too.

Hope all your family are feeling ok, glad you have found healingwell, I'm sure you will find it to be informative and supporting.

All the best
Gemma


Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Trazodone, Slow-Sodium, Azithromycin, Metachlopromide, Omeprazole, Tobi Ineb, Fresubin Liquid Feed, Skandishakes. I use PEP device as my physio.
Had a Port-a-cath fitted on chest wall since Nov 05
Help support the forums so we can support you:  http://www.healingwell.com/donate
Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.

Post Edited (Darkies Gem) : 5/1/2009 4:02:51 AM (GMT-6)


Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 5/2/2009 9:50 AM (GMT -7)   
Caroline-ann, I have edited your post to add a title to it. Just thought I'd let you know.

If you don't like the title, either edit the original post yourself, or let me know what you want it changing too.
Just makes the place tidier, and means more people should read it.

Gem x
Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Tramadol, Nefopam, Ursodeoxycholic Acid, Trazodone, Slow-Sodium, Azithromycin, Metachlopromide, Omeprazole, Tobi Ineb, Fresubin Liquid Feed, Skandishakes. I use PEP device as my physio.
Had a Port-a-cath fitted on chest wall since Nov 04
Help support the forums so we can support you:  http://www.healingwell.com/donate
Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.

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