Cystic Fibrosis and Polyps

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New Member

Date Joined Sep 2009
Total Posts : 11
   Posted 9/28/2009 4:42 PM (GMT -6)   
Hello, I am completely new to this forum.
I'm 18 years old with CF. I have a twin sister, who also has CF and both of us have problems with polyps.
My ENT doctor has told me that people with CF get nasal polyps much more frequently than those without.
I have had two surgeries in my life to remove these annoying things. They are such a nuisance.
I was just wondering, does anyone else here have this problem?

Forum Moderator

Date Joined Feb 2007
Total Posts : 1050
   Posted 9/29/2009 4:52 AM (GMT -6)   
Hello Abbs,

I don't get problems with my polyps yet (though noone ever looks up my nose to see, and I'm forever have nose bleeds).

You're right, nasal polyps in CF is very common! Sorry to hear you have had to go through 2 ops to have them removed. That must be a real pain!

Have fun posting on the forums

Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
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New Member

Date Joined Sep 2009
Total Posts : 11
   Posted 9/29/2009 11:21 PM (GMT -6)   
Thanks for the response!
It really hasn't been that bad. Two surgeries, yes. But one was in June 1998 and the other was March 2009... so all in all, an eleven year gap isn't too bad.

New Member

Date Joined Dec 2009
Total Posts : 3
   Posted 12/28/2009 1:59 AM (GMT -6)   
i am 13 and i have had 4 surgeriers cause polyps... i use the sinus nasal washes... they clear out your nose and prevents surgeries.... since i have been doing this daily this is the first time in 1 1/2 i havent had surgery....

New Member

Date Joined Sep 2009
Total Posts : 11
   Posted 1/22/2010 4:16 PM (GMT -6)   
Yeah, I use nasal rinses too. And Nasonex. It works!

New Member

Date Joined Mar 2010
Total Posts : 3
   Posted 3/9/2010 2:31 PM (GMT -6)   
hi im hayden im 16 and yes i have this problem all of the time i have had mine removed once
and now i have them again but this time i cant SMELL anything! so im going to have another
surgery soon but ya your not the only one!

New Member

Date Joined Aug 2010
Total Posts : 13
   Posted 8/4/2010 8:14 PM (GMT -6)   
hi, i had nasal polyps until i was 13 i had them removed and so far they havent returned yet and im 20 now, although i had a bad experience when i had mine out, i was told not to sneeze but hey when you need to your gonna, well i did bout 6 hours after surgary and i lost a heck of alot of blood, i wouldn't go through that again. one thing i will say though is when i had mine i could swim without getting water up my nose, now theres no chance and it hurts more i cant stand getting water up there. x x
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