15 year old female with Cystic Fibrosis

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k8e
New Member


Date Joined Nov 2004
Total Posts : 3
   Posted 11/25/2004 11:00 PM (GMT -7)   
I guess I should have added a little background info. The doctors found that I had CF at 9 months. Got a G-Tube at the age of 5. Was pretty healthy until I turned 13. Got a port put in shortly after because I developed a trend of going in the hospital every other month. Still on that schedule. Never really long stays. Was put onto the transplant list in June. But I'm proud to say that CF does not dictate how I live! I'm still your typical teenage girl. I’m in the high school marching band, and just recently became a horse owner thanks to the great people of the make a wish foundation (now that’s a long story!). So I guess what I'm getting at is that don’t let CF get you down, sure its a big inconvenience but once you get around that you can live your life to its fullest!! (If you have any questions about anything gimme an E-mail and I'll answer the best I can!!) VIEW IMAGE

Post Edited By Moderator (Admin) : 4/12/2005 1:19:19 PM (GMT-6)


k8e
New Member


Date Joined Nov 2004
Total Posts : 3
   Posted 11/25/2004 11:03 PM (GMT -7)   
my e-mail is K8e43089@cfl.rr.com

Lady Fox30
New Member


Date Joined Jan 2005
Total Posts : 6
   Posted 1/8/2005 12:23 AM (GMT -7)   
k8e,
!!!!!CONGRATULATIONS ON YOUR HORSE!!!!!!!
Cf can be a big pain in the horses booty - and this is the advise that I offer. Know more than your nurses even if you have to request an answer from them because sometimes you will be educating them the same time you are being educated. Listen to your doctor and ask question. You can have your very own alternate (blended) family at a hospital. Never think of yourself as being on the wrong side of a statistic. More than anything live LIFE. You have CF - CF doesn't have you:))

crzygrl37
New Member


Date Joined Mar 2005
Total Posts : 8
   Posted 3/16/2005 6:39 PM (GMT -7)   
k8e,
Congrats on the new horse!!!
email me some time at sammyseahorse@ameritech.net
i'd really like to get to know you.

crzygrl37
New Member


Date Joined Mar 2005
Total Posts : 8
   Posted 3/20/2005 7:00 PM (GMT -7)   
k8e,
It's me again,
When did you recieve the money from the make a wish fondation? who?what?where?when?why?how?
t2us,
sam

timmy1985
New Member


Date Joined Mar 2005
Total Posts : 2
   Posted 3/24/2005 10:57 PM (GMT -7)   
the whis foundation can only help u if you're under 18

timmy1985
New Member


Date Joined Mar 2005
Total Posts : 2
   Posted 3/24/2005 11:00 PM (GMT -7)   
just curious for crzygrl37 if you're crazy girl why is your name sam??

k8e
New Member


Date Joined Nov 2004
Total Posts : 3
   Posted 5/12/2005 12:46 PM (GMT -7)   
*Update*
Just had my sweet 16! Doing great and feelin fine! Oh and i'v been ont the list for almost a hole year YAY!! well got to jet bye!

Citty
Regular Member


Date Joined Jun 2004
Total Posts : 42
   Posted 5/14/2005 5:07 PM (GMT -7)   
Timmy1985

Probably because her name is Samantha :)

Captain Jack
New Member


Date Joined May 2005
Total Posts : 11
   Posted 6/13/2005 12:37 AM (GMT -7)   
Hey, your story is alot like that of a friend of mine that brought me to this board recently. She's 16 with CF, like you she's doesn't let CF rule her life, she does whatever she likes (she's an incredible runner on our cross country team, and she's trying to get me to join her in dance) Well, congradulations on your horse and your sixteenth! Getting a liscense soon?

sasha12
New Member


Date Joined Jan 2009
Total Posts : 6
   Posted 1/25/2009 8:57 PM (GMT -7)   
you sound like me. i'm a 15 year old girl with cf too! do you have any siblings with or without it? my brother has it and he's a great support. he's 12 so we aren't that far apart.

i agree, DON"T LET CF GET YOU DOWN! my teacher told me that keeping a positive mental attitude helps with the physical stuff as well. i believe him, because i have tons of confidence that i can live a normal life and someday go to college, get a job, have a family, and all that. people beat the odds every day! why should we be any different?

my friends all know i have cf and they're cool with it, they don't treat me any different and we can do all the things we did before I knew I had cf. obviously there are some extra things to do, but that's not really a big deal in the long run. you get use to it i suppose...right?

of course, you have more room to talk than i do because you've been battling it for most of your life life and your still strong! i'm new to this, but just as positive. after being diagnosed I've learned that there are so many nice people in this world and even when we may be cyncal (ex. why did this happen to me? what did i do? i didnt ask for this!) they are there to help. when i was at the hospital, everyone was positive and nice. one nurse told me that if we choose to, we can be healthier than other people. i choose that option! lol, i mean with the exercise and stuff we really can be. plus if you look at cf over the years, you see that tons of pregress has been made and is being made. someday, maybe in our lifetime, there will be a cure. there will definitely be better treatments options available i'm sure. sorry this is so long....but i needed someone to relate to. it feels good to vent..lol. oh and by the way, you got a horse! that's so cool..my friend has one, i've always wanted one because we have the perfect yard for it. you can email me, if its ok i'll add your email. i promise i wont talk this much, lol. best of luck to you, k8e!!! :)

sasha12
New Member


Date Joined Jan 2009
Total Posts : 6
   Posted 1/25/2009 9:00 PM (GMT -7)   
yeah..i just realized how old this post is. i wonder if you still read it? hmm..my bad.
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