New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

SickJames
New Member


Date Joined Jul 2010
Total Posts : 5
   Posted 7/3/2010 5:00 PM (GMT -7)   
Hello all, I'm James. I'm an Ozzie living in Calafornia, 20 years old and I have Cystic Fibrosis. I'm new to the fourms so I'm unfrimilar on how activly you cysters and fibros use it!!

I was wondering I any of you had any weight gain tips. I'm not to sucessful, my lung function is non existant, but any help I will accept!

I'm also on the transplant list for lungs and liver. Been on the lung list for almost a year and three weeks!

If anyone uses the fourm, I'd love to hear about you and your family/self CF struggle. Keep on breathing!

norasmith15
New Member


Date Joined Jul 2010
Total Posts : 3
   Posted 7/3/2010 9:34 PM (GMT -7)   
well im new to this site to but i had to gain like 25 lbs in like 2 months and it took me forever to find something to drink that wasnt nasty! I tried the instant carnation breakfast stuff Nasty! ensure is okay but it gets old after a while so now i drink like 10 a week and that helped me gain my weight in time! Also like Ice cream is good! lol im addictied to the ones at sonic (Butterfinger blast) there awsome and i eat thoughs ALOT! thats alot of weight gain if you eat enough..lol! I always try to add fatting when i excrise so i keep my weight up!
In about 2-3 years im gonna have to be on the liver Transplant list...how did you keep your body in good shape when you were a teenager??!! Im 15 and im pretty sick for my age! turn but anyway hope these tips work for you!

loopylass
New Member


Date Joined Jul 2007
Total Posts : 3
   Posted 7/4/2010 11:39 AM (GMT -7)   

Hi James!

For over a year now I have been doing NG tube feeding and that has really helped to boost my weight.  In the first five weeks I put on 4kg!  tongue

Some people don't like the idea of passing the tube but it really does get easier with practise and now I can pass it in about 10 seconds!  I really would recommend it to you.  I also have tried various supplements (Calshakes and Fortisip milkshake style drinks) but the NG feeding has really kept the weight on and I am the heaviest I have been for a couple of years.

What have you tried so far?

Leo 


norasmith15
New Member


Date Joined Jul 2010
Total Posts : 3
   Posted 7/4/2010 2:32 PM (GMT -7)   
what is the ng tube?? Is it a tube that gets passed through your nose into your stomach??

Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 7/6/2010 5:30 AM (GMT -7)   
Yep, that's the one.
Means you can have over-night feeds and the like. :)
 
I used to like Skandishake, you can make alsorts out of Skandishakes. Stopped them now, as I'm at a decent weight thanks to anti-depressants. But, they were definately a good weight stabiliser for me, as I could make each one different, so never got bored.
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Vitamins A,D+E, Salbutamol, Paracetamol, Tramadol, Nefopam, Ursodeoxycholic Acid, Trazodone, Slow-Sodium, Azithromycin, Metachlopromide, Omeprazole, DNase Ineb, Folic Acid, Adcal-D3. I use PEP and Flutter device as my physio as well as the occasional ABC when bored. Had a Port-a-cath fitted on chest wall since Nov 04
Help support the forums so we can support you:  http://www.healingwell.com/donate
Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.
I'm from the UK!!!!! If anything I say makes no sense to you, let me know so I know how not to be so English.

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, February 24, 2017 12:21 PM (GMT -7)
There are a total of 2,764,923 posts in 304,110 threads.
View Active Threads


Who's Online
This forum has 150794 registered members. Please welcome our newest member, Alyssarc93.
425 Guest(s), 13 Registered Member(s) are currently online.  Details
jars05, Mrs. Brady, Scaredy Cat, 1000Daisies, Girlie, Eph, ks1905, Traveler, Natik/LA, jdiane, Tall Allen, Jack & Diane, tommyc


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer