Allergies to Dressings

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Gemsi
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Date Joined Feb 2007
Total Posts : 1050
   Posted 7/1/2011 2:43 PM (GMT -6)   
Anyone else have Allergies to dressings, tapes etc? I find I have really sensetive skin and it gets more sensetive as the days go on.
 
My current list stands at:
Mepore, Mepore Ultra, Plastic tape, Micropore tape, Primapore, IV3000, Opsite, Tegaderm. Alyvn Heal doesn't stay on long enough to cause allergies, it just won't stick to my skin.
 
There is one dressing I am ok with-Mepilex and one tape-Scanpore.
 
Problem is the tissue people in the hospital who think they have a right to put patients health at risk (blistered skin or no dressing around my port-a-cath is not acceptable in my eyes) and they are refusing to allow me to use Mepliex as I'm not using it for the purpose intended and it's too expensive. If the issue doesn't correct itself soon, then I will be writing a complaint to the hospital cheif pointing out they haven't got patients best interests at heart and this is wrong even in the NHS.
 
Anyway, can anyone think of any dressings I've not mentioned, preferably silicone based or similar as I do much better with those? Someone once mentioned a barrier spray, but I have been told by dermatology that this won't make a difference to allergies. The other dressings I can't even wear for an hour or 2 without some sort of reactions.
 
Thanks
 
Gem x
Hey, I'm Gem with CF, age 25 and diagnosed at 2 years old. I'm from the UK and say weird things sometimes. I'm no expert but I've lived through a lot of CF stuff.
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type thing.

~August~
New Member


Date Joined Jul 2011
Total Posts : 4
   Posted 7/8/2011 11:37 PM (GMT -6)   
Hi I'm August (or April), 18 years old with CF (and a host of related stuff) and I'm brand new to this forum, but wanted to hopefully help you with this as it's an issue I have too. (Let me just state first off that I've never been to a dermatologist before, so...)
I actually got a port because my skin on the inside of my arm reacted so so badly to adhesive when they would place PICC lines. I would always request they place them in the median cubital (I took Anatomy and Physiology... in English it's the bend in your elbow.) because that area was far less sensitive to adhesive and wouldn't break out. The Cephalic Vein is the one they generally place PICCS in and occasionally ports in- but I find I can not stand any occluded dressing there and the risk for infection was just so high. My port is below my right collarbone, and while I can't use adhesive tape, most dressings are fine. So basically this was a round-about way of asking if your port is in your arm. turn

But the one that seems to work best for me is actually a certain type of dressing that has an anti-microbial patch in the middle that goes over the port (or I suppose PICC site... but it's so sticky I cringe to think of that...) but I have never broken out with that dressing. Next time I do a port flush I'll look and post what the dressing type is specifically.
But, in either case, Hi, and nice to meet you!

Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 7/9/2011 3:46 PM (GMT -6)   
Hi, and nice to meet you too!

My port is on the left side of my chest wall. I know my skin is very sensetive around it, so usually test any new dressings on the bend of my elbow so I don't have problems with the allergies around my port site.

I haven't officially seen a dermatologist about this, they were treating me some weird spot things (maybe erythema nodosum) that I have been getting for years. They decided to do a skin biopsy. After talking to them when I realised I'd left my mepilex in the car, they assured me that Scanpore tape, noone is allergic to. They use it on people they're testing for allergies as they've not had a problem with it yet. They gave me a roll of tape to take to my CF team to see if they will provide me with this rather than Micropore tape for blod tests etc. Annoyingly still doesn't solve the port problem, but that with a bit of gauze might be enough when I'm in hosp to protect my port during the day if they don't have any Mepilex for me (usually takes 7 days at least to order, and they won't order it until the day I go in.) They usually give me any new dressings they have for me to test on my arm, but I always have a reaction. Mepliex is brill anyway, as it is also water resistant. Even if wet as long as it hasn't seeped underneath, it is fine to keep on. It also doesn't tear your skin away because it's too sticky or leave any residue. One problem I had with IV3000 was it left the residue on as well as making the area blistered and very painful. It was hard trying to clean of the dressing residue when it was like that.

Thanks for replying, it would be interesting to hear what the dressing you can use is called. Then would just have to see if I could get tissue people to allow it. I've never met the tissue people, but I sometimes wish I could, I'd have a few strong words for all the stress they put me through when on IV's (I spend at least 2 days massively fuming that I have nothing to cover my port with.) Also for putting my port at risk, I have had my port for 6 years and I'm not ready to lose it yet. It's my best friend as cannulas still only last max 3 hours in me.

Hope you are well
Gem
Hey, I'm Gem with CF, age 25 and diagnosed at 2 years old. I'm from the UK and say weird things sometimes. I'm no expert but I've lived through a lot of CF stuff.
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type thing.

~August~
New Member


Date Joined Jul 2011
Total Posts : 4
   Posted 7/9/2011 9:29 PM (GMT -6)   
Sounds like I'm going to have to try mepilex.
Of course I'll probably have to see dermatology to get it... the hospital I go to doesn't even have zenpep- the enzyme they recommend for their patients. (they actually had me switch from Creon to Zenpep, and although it works a lot better for me, they have Creon on formulary- not Zenpep. rolleyes )
I'm going to go look up this dressing now to see if I can order it for my next dressing change. This antimicrobial one is nice, but the "patch" in the middle that's antimicrobial is SO sticky that you can't get it off the top of the needle sometimes to deaccess the port- you end up having to maneuver around the dressing to get the needle out. Which is a definite downside.

Oh, and the one I use is tegaderm CHG. Which is odd because for some reason I react to tegaderm, but not this particular one. And when I say odd I mean like, beyond explanation. And apart from you I've never met someone with skin quite as "sensitive" as mine- though it's nice to know I'm not the only one with these issues. The IV teams like to make it out like "No one is ever allergic- that is a total impossibility!" so...
Hopefully this will work for you.

Post Edited (~August~) : 7/9/2011 9:36:54 PM (GMT-6)


Better
New Member


Date Joined Jul 2011
Total Posts : 1
   Posted 7/27/2011 1:24 PM (GMT -6)   
Sorbaview made by Centurion Medical products offers many sizes
Of different dressings for ports, picc's and all other central lines.
Works great

Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 7/27/2011 2:04 PM (GMT -6)   
Thanks for that suggestion Better. I will have to ask my docs if they can get it in the UK.

:)
Gem
Hey, I'm Gem with CF, age 25 and diagnosed at 2 years old. I'm from the UK and say weird things sometimes. I'm no expert but I've lived through a lot of CF stuff.
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type thing.
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