I have couple of questions for anyone who know please:1st: They have suggest a lung transplant is this a good idea or not?2nd: I have been in the hospital 3 time sense I was diagnosed 3months ago, is this normal?3rd: Is there anyone else out there who was diagnosed as an adult andif so how often do you visit the hospital?4th I just got the Vest does anyone have any pointers for me?
Wow 33 and just diagnoised. You should feel so lucky. i only hope to see that day. hi im 22 yrs old, i was diagnoised with asthma at the age of 10 and told i only had asthma. my sister died with cf at the age of 9 and my aunt died of cf at the age of 27. i dont know much about lung transplants but if you get one it adds 5 yrs to your life. my lungs are deterioating and they are expecting for me to get one in like 5 years. however they told me recently that they dont see me making it to 30. i was diagnoised with Cf about 7 months ago. i dont have asthma. its been cf all along. so i wasnt being treated right. as a result in this, i now have cepacia,pancreatic insuffiency(which they are talking about tubes now), my liver is starting to go and im now on oxygen at night, im barly holding 100 lbs. a year ago i weighed 140. i take 10 pancreas mt 16 with each meal,a lot of inhalers,a nebulizer(duoneb 4 x a day and albuterol 6 x a day),i have a son so i need to make my will soon,however,i know i wont make it much longer,i wont live as long as you have, but i dont like to think about dying. im not ready for it. i take about 15 differnt medications a day. it sucks having cf. but there are worse diseases out there. AS for the vest. i just recently starting it,its a bit of a hassel so i skip it sometimes. i do not like it. i dont know what kind of help or advice i can give you but to hang in there and always prepare yourself for the worst. thats what i learned the hard way. i never thought i had cf. i thought it was just asthma. very serious asthma. surprise and now they think my son might have it too. :>( god i hope not. i love my son. hes only 2. i feel very fortune to live this long. i watched it kill my sisiter, she didnt even make it to 10. Anyways i wish ya well,get all the info you can while you have your strength.
Good luck to you