Dear Kristens Mom,
I can certainly feel your sorrow right now in my heart and tears in my eyes. I have twins with CF and feel the same way even tho my twins have yet to pass away. You know, when my boys were first diagnosed, they told me from the moment of diagnosis that this starts the grief process. This is what you are experiencing. May I suggest that you seek counseling or see your doctor to feel better, it's a real diagnosis...greif and loss of a child can take a toll on your health, mentally and physically.
All within a years time, I lost my grandmother, my dad on christmas day, my aunt the next month, my twins were in very bad shape in two different hospitals then their diagnosis which pushed me over the edge almost. I needed some help and I think you do too right now. Your shoulders are heavy right now, please, seek some help to lighten the load.
Let me know if you wish to talk some more in private.
Mom to twins with CF, if there is a cure found today....you would hear this mom "ACROSS AMERICA" YESSSSSSSSSSSSSS!!!